Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Thanks =) > Lorraine, > Welcome to the group......Its a great group and you will find lots of > answers here and great people as well....Good luck with your surgery, > we all > wish you a speedy recovery and a new lease on life... > > Mike T > > Hello > >> I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo >> nervous >> well I just wanted to interduce myself >> >> >> >> We are a very active support group. >> If the email becomes overwhelming, >> please change your setting to NO EMAIL! >> Please contact Group Creator >> Robyn@... >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I'm having it @ st bernadines in sandbernadino same here when I started I was soo excited now I think I'm going crazy being nervous my whole family backs me up except my mom =( but she has gone to every appointment I gotta give her that lol > Hi Lorraine! I live in the Pasadena area. > I have not been scheduled yet - at Huntington Hospital. > I too am nervous lately....I was so enthusiastic at first. > > Jackie in CA > > Lorraine wrote: > I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo nervous > well I just wanted to interduce myself > > --------------------------------- > Low, Low, Low Rates! Check out Yahoo! Messenger's cheap PC-to-Phone > call rates. > > --------------------------------- > Want to start your own business? Learn how on Yahoo! Small Business. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I'm having it @ st bernadines in sandbernadino same here when I started I was soo excited now I think I'm going crazy being nervous my whole family backs me up except my mom =( but she has gone to every appointment I gotta give her that lol > Hi Lorraine! I live in the Pasadena area. > I have not been scheduled yet - at Huntington Hospital. > I too am nervous lately....I was so enthusiastic at first. > > Jackie in CA > > Lorraine wrote: > I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo nervous > well I just wanted to interduce myself > > --------------------------------- > Low, Low, Low Rates! Check out Yahoo! Messenger's cheap PC-to-Phone > call rates. > > --------------------------------- > Want to start your own business? Learn how on Yahoo! Small Business. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I'm having it @ st bernadines in sandbernadino same here when I started I was soo excited now I think I'm going crazy being nervous my whole family backs me up except my mom =( but she has gone to every appointment I gotta give her that lol > Hi Lorraine! I live in the Pasadena area. > I have not been scheduled yet - at Huntington Hospital. > I too am nervous lately....I was so enthusiastic at first. > > Jackie in CA > > Lorraine wrote: > I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo nervous > well I just wanted to interduce myself > > --------------------------------- > Low, Low, Low Rates! Check out Yahoo! Messenger's cheap PC-to-Phone > call rates. > > --------------------------------- > Want to start your own business? Learn how on Yahoo! Small Business. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 > > I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo nervous > well I just wanted to interduce myself > Hi Lorraine Don't be nervous I had my surgery on August 28 2006 and I have lost 60 pounds. It will be ok and you will be soooooo happy I live in So Cal too whereabouts.? write back if you want to talk and welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 > > I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo nervous > well I just wanted to interduce myself > Hi Lorraine Don't be nervous I had my surgery on August 28 2006 and I have lost 60 pounds. It will be ok and you will be soooooo happy I live in So Cal too whereabouts.? write back if you want to talk and welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 > > I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo nervous > well I just wanted to interduce myself > Hi Lorraine Don't be nervous I had my surgery on August 28 2006 and I have lost 60 pounds. It will be ok and you will be soooooo happy I live in So Cal too whereabouts.? write back if you want to talk and welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 My parents went to a few meetings too and I talked it over a lot with my pre-teen kids. They were all a bit scared for me of course but they seemed to appreciate being included and all the information we shared. I probably still take them for granted too much with their support and interest. It's only when I read some of the hardships others here experience that I realize how special my support has been from my family with their time, loyalty and love for me. Be sure to thank them Lorraine! Mike in GR > > I'm 25 I live in so cal and Im having surgery dec 6 I'm am sooo nervous > > well I just wanted to interduce myself > > > > --------------------------------- > > Low, Low, Low Rates! Check out Yahoo! Messenger's cheap PC-to- Phone > > call rates. > > > > --------------------------------- > > Want to start your own business? Learn how on Yahoo! Small Business. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 > > > > Don't be nervous I had my surgery on August 28 2006 and I have lost 60 > > pounds. > > > > > > Hi , > > I had my surgery August 21, 2006, but I only lost 31 lbs. I started > > out having to lose 100 lbs. Can I ask you how much you started out > > having to lose? I keep seeing so many people who had the surgery the > > same month as me and they lost 2 or 3 times more weight than me. > > > > Donna/NY > > >Hi Donna I have at least100 pounds to lose or more, I was 366 before surgery. It will come off don't worry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 > > > > Don't be nervous I had my surgery on August 28 2006 and I have lost 60 > > pounds. > > > > > > Hi , > > I had my surgery August 21, 2006, but I only lost 31 lbs. I started > > out having to lose 100 lbs. Can I ask you how much you started out > > having to lose? I keep seeing so many people who had the surgery the > > same month as me and they lost 2 or 3 times more weight than me. > > > > Donna/NY > > >Hi Donna I have at least100 pounds to lose or more, I was 366 before surgery. It will come off don't worry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 hello I have not written in for awhile though I have been reading the posts. I just thought I would take a moment and let you all know I am still here and doing ok. The FM seems to be a little quieter than it had been for awhile. I am on 20 mgs of Kadian...which has been wonderful. My pain level has definitely dropped. However, my fatigue and brain fog are still there....guess there is really nothing that can be done for that though. Can't have it all. I do have a neighbor though that thinks I should cook, clean, and do the laundry even if I can't move an inch! Course, she was raised in the era where women did that kind of thing no matter what. She is 65. Anyway, just wanted to say hi and hope you all have a pain-free day. Tabi D <)))>< Dear Tabi, Have you ever tried Gingo Biloba for the memory /brain fog,and COQ10 for energy? You just have to be careful with gingo because it has a blood thinning property and you can't take it if taking other blood thinners such aspirin/coumadin/or large doses Ibuprophen. Hope this helps! Jodi M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Hi , Welcome to our Group. We are always so sorry to see new people need support for this monster of a disease. Please, when you begin to research this PF stuff, Don't panic. You are not going to die tomorrow or next week. It really stinks but know you are not alone.Ask questions. Make comments, vent whatever you need. God Bless you with peace and strength to fight. Love & Prayers, PeggyFlorida, IPF/UIP"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." I am new to this group and new to PF. I am . I am 42, and have just been diagnosed with PF. Any information and support would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Welcome . sorry you need to be here........but you sure did come to the right place. You must have a million questions, worries, etc. Just ask and ye shall receive. There are a whole bunch of us that know exactly what you are going through right now. jim IPF 05 alaska Subject: HelloTo: Breathe-Support Date: Saturday, September 6, 2008, 3:52 PM I am new to this group and new to PF. I am . I am 42, and have just been diagnosed with PF. Any information and support would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 , I am sorry It's been a long day and I wanted to ask where you are. What state? We have people from Australia, UK, Scotland, India. Each and every one of us have been where you are.I have IPF/UIP diagnosed in 2004. 65 years young. and will be so glad to help you as will others herein the "Air Family" Where do you go for the Dr.? Quite a few of us have found a teaching University is a very good place. I live in Florida and go to Shands at the University of Fl. Take care of you. Love & Prayers, PeggyFlorida, IPF/UIP"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi , Welcome to our Group. We are always so sorry to see new people need support for this monster of a disease. Please, when you begin to research this PF stuff, Don't panic. You are not going to die tomorrow or next week. It really stinks but know you are not alone.Ask questions. Make comments, vent whatever you need. God Bless you with peace and strength to fight. <pastedGraphic.tiff>Love & Prayers, PeggyFlorida, IPF/UIP"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." I am new to this group and new to PF. I am . I am 42, and have just been diagnosed with PF. Any information and support would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 , Welcome to the "air family" We all know what you are going through right nw. We've been there and done that and have the videos to prove it! Just know that any and all questions are welcome and answered by someone here. If an answer is not available we have many who will research and find the answer. We also share ourselves a bit, laugh, and cry too. Be thankful that you've found us so quickly, your journey with PF will be easier with this group along for the ride. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower ? wrote: I am new to this group and new to PF. I am . I am 42, and have just been diagnosed with PF. Any information and support would be appreciated. No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.17/1655 - Release Date: 9/5/2008 7:05 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 , Welcome to our group! I'm so sorry you have reason to be here but since you do, I'm happy you found us. I was 46 when I was diagnosed with non-specific interstitial pneumonitis a form of pulmonary fibrosis. I understand completely how overwhelmed you are. Please know that anything you are feeling is normal and ok. You've likely got lots ahead of you in terms of doctors and testing etc. Take it all one day at a time and ask lots of questions. Write everything down, make lists of questions for your doctors. Keep your own copies of all your medical records. Trust me on that one you will find that invaluable down the road. Most importantly make sure you take good care of yourself through all this, eat well, get tons of rest and have someone you can turn to for support. Read some of the older posts, this group has been around for about 3 years now so there's lots to read and learn. If you haven't already take a look at the website of the Pulmonary Fibrosis Foundation, www.pulmonaryfibrosis.org There's lots of great information there. In short, welcome. You are among friends, we all understand and will do anything we can to help! Beth Moderator Age 49 Fibrotic NSIP 06/06 UCTD 07/08 Change everything. Love and Forgive Hello I am new to this group and new to PF. I am . I am 42, and have just been diagnosed with PF. Any information and support would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 MB, I gotta go for right now. can you talk to for the information she needs ?? Dumb question.. LOLLove & Prayers, PeggyFlorida, IPF/UIP"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." ,Welcome to our group! I'm so sorry you have reason to be here but since you do, I'm happy you found us. I was 46 when I was diagnosed with non-specific interstitial pneumonitis a form of pulmonary fibrosis. I understand completely how overwhelmed you are. Please know that anything you are feeling is normal and ok.You've likely got lots ahead of you in terms of doctors and testing etc. Take it all one day at a time and ask lots of questions. Write everything down, make lists of questions for your doctors. Keep your own copies of all your medical records. Trust me on that one you will find that invaluable down the road.Most importantly make sure you take good care of yourself through all this, eat well, get tons of rest and have someone you can turn to for support. Read some of the older posts, this group has been around for about 3 years now so there's lots to read and learn. If you haven't already take a look at the website of the Pulmonary Fibrosis Foundation, www.pulmonaryfibrosis.org There's lots of great information there. In short, welcome. You are among friends, we all understand and will do anything we can to help! BethModerator Age 49 Fibrotic NSIP 06/06 UCTD 07/08 Change everything. Love and Forgive HelloI am new to this group and new to PF. I am . I am 42, and have just been diagnosed with PF. Any information and support would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 Hello! Your with a great group for info thats for sure! Everyone is different, yet bonded by this terrible disease. By now its probably overwhelming as it was for most of us in the beginning. My advise goes along with what has already been said. Just remember to "keep the faith and stay the course!" MO IPF 06-08 awaiting the call. Hello I am new to this group and new to PF. I am . I am 42, and have just been diagnosed with PF. Any information and support would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi, all...I don't get a chance to write very often, but I do try to keep up with your posts! The latest news from us here in Houston is that 1) our PF support group and the PF Association of Texas is going to participate in the Wreaths Across America program at our local Veterans Cemetary on the 13th of Dec. hoping to assist another non-profit and garner some awareness for PF also! 2) My husband and I leave for Dallas, one week from today, to have my first transplant evaluation visit...this is exciting and scarey at the same time! I hope you all have a great week! Jan Life should be easier. So should your homepage. Try the NEW AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 BEST WISHES FOR SUCCESSFUL TESTING, OUR PRAYERS ARE WITH YOU..TRAVEL SAFELY JOE & JOANIE JOE-IPF 1/08 GRIFFIN, GA. -- Re: Hello Hi, all...I don't get a chance to write very often, but I do try to keep up with your posts! The latest news from us here in Houston is that 1) our PF support group and the PF Association of Texas is going to participate in the Wreaths Across America program at our local Veterans Cemetary on the 13th of Dec. hoping to assist another non-profit and garner some awareness for PF also! 2) My husband and I leave for Dallas, one week from today, to have my first transplant evaluation visit...this is exciting and scarey at the same time! I hope you all have a great week! Jan Life should be easier. So should your homepage. Try the NEW AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2010 Report Share Posted November 29, 2010 Thanks to denises group. I feel happy to start receiving emails. Marisol Sent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
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