Re: Re: New to group The Brain Fog issue! Connie and Sharon

[Guest guest]

Connie and Sharon,

FibroFog is the most frustrating part of this disease. i know, it is considered

a syndrom but we know better. we tend to be very bright people and the

frustration of not being able to remember words we've known since preschool age

or be in the middle of a discussion And suddenly not remember what you were

talking about is over the top. It is like my daughter we is very bright but has

a learning disability. She is unable to do phonics so every word has to be a

sight word. She would be very frustrated and have verbal temper tantrums with me

doing her home work because she could write independently " baby sentences " but

could speak in sentences at grades 2-3yrs above her grade level.

At least with pain, pain meds either oral or topical and other non medications

can help, but the fibrofog is different. Unlike Alshimers you don't regress in

time and forget how to uses things and what they are for. You still know that a

remote is a remote and a phone is a phone even if the words are not there. I

remember trying to talk about the sailboats in the bay and the words wouldn't

come. Instead I was making ocean wave motions trying topull the word out. I know

lately, I am getting more frustrated with it because my husband and I are

arguing more.Phone calls are most of them because I can't always make them .

Sometimes I forget and sometimes I remember but can't make my brain work right

to do it. I tried to make a call one time when I wasn't feeling the best and

when the woman was giving me the information, I couldn't process the information

and my teenage daughter had to take the phone and get the informaztion. it's

like you suddenly became drunk and what someone is saying is going in but no one

is home.

JudyMer

---- sharon studley wrote:

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> Hi There- Just wanted to say glad you found us, I am a newer member, but it

is so great here, feel like I have been with all these wonderful suffers for

ever!. I was at a very desperate time last mo. when I stumbled upon this, as my

brain was almost non- exsistant, I believe, at the time, I was searching for

some type of support group, info etc. on this disease that would be supportive,

and help me come to terms with validating that it IS real. I know all about it,

but since I have had it sooooo long, and only newly diagnoised within the last 2

yrs, for the past 20 something, when you have been told, it is just, stress, you

must be unhappy at home, maybe you need a shrink, and am sure you know the rest,

anyway this still is drilled in my head, and some of the odd things that

continue to happen catch those word's ringing in my head! I have very

supportive Dr's, but have moved away from MA. to ME and though did travel back

and forth all summer keeping up with appts., it

> has become very hard, I can barely handle thinking about the trip, which I

use to look forward to, as I also have my ffriends, and family there. I am

scheduled for the 4th time to go on the 11th, but we keep getting snow storms

causing me to cancel, and if I don't get there this time, I am in trouble, more

ways then one. I have had to quit work this past Nov., after fighting to stay

working for the past 5yrs, I think some of it I caused as I should of cut hours,

when suggested by Dr. Anyway just wanted to let you know, I now go through what

you are with the Husband, he is always loudly breaking through my bullet proof

window, I call it, which I am always deep inside trying to channel my pain, and

he will say WHAT IS THE MATTER WITH YOU, YOU DON'T EVER ANSWER ME ANYMORE, WHY

DOES IT TAKE U SO LONG TO JUST GIVE A SIMPLE STRAIGHT ANSWER? I have no answer

why, this is just what has become of me. He is great though, does everything,

and really worried about me, but this

> get's to him, I told him, I don't do it on purpose. This is why I knew I

could not work anymore besides the pain, I swithched job fields, tried going

from healthfield, to custmer service, and I could not remembetr what I had

learned, as it was actually a call center, and a call would come in, and I would

forget, all I was doing? You Take it easy when you can, hope you have lighter

days, and glad your with us.

Sharon

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> Connie Grudzinski wrote:

> Hey to All, yes I am new to the group as well, and I am just

learning what this thing is, and all the little related details that I did not

even know about! Yes I understood that I was in pain and the docs could not or

would not help me, but I have been reading about this brain fog thing! WOW

again! Sometimes my husband will speak to me and I am just not able to process

it for several minutes. He yells at me that I am ignoring him and it just gets

worse. I fight trying to understand what he has said and nothing is making any

sence. I get frustrated and we get into it good, me telling him to stop yelling

and him telling me to listen to him and stop daydreaming! He is a retired

soldier complete with all the PTSD bells and whistles, and while that subject is

being addressed in other circles, it still creeps into this one often. I do

concider myself very smart and even quite wise, I love learning and I have many

credits over my teaching degree all with top scores, but

> sometimes I cannot even remember my dog's name! I have been so worried that I

was getting alzhieimers desease that I stay awake at night with worry! I used to

have a large and fun vocabulary, but sometimes I cannot even remember what I was

saying a minute ago. Mostly it is in the morning, but it also happens to me as I

get tired at work. I am a full time cashier now at a large department

Super-store (believe it or not I get better pay, more benefits, and less stress

than teaching) I am also the cashier trainer. I know my job very well, and I am

finding out that I do not want to learn more things any more, I just hate when

they reset the store and move stuff (it's a marketing ploy to get folks to buy

more) Does this make any sence to any one!!! It is early here and I am just

getting going for the day (got a day off in the middle of the week) I can

usually type very fast, but my fingers are reallly stumbling right now! I just

had to addreess this new thing at least it is new

> to me! Well, then I nearly forgot to send this message! I got distracted and

left the computer about 20 minutes ago to do some other stuff and just sat down

again and saw this! That is what is going on now!!!!

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> Connie

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