Re: RX or No RX

[Guest guest]

I take Motrin 400 mgs when I'm feeling pain. I try to limit taking it

to when my pain is severe. I wish you pain free days...from Deb

[Guest guest]

<http://geo.yahoo.com/serv?s=97359714/grpId=10519220/grpspId=1705061682/

msgId=87588/stime=1204998159/nc1=5191951/nc2=5191945/nc3=5191955>

Good afternoon new friends,

My name is Rise " ( pronounced Reesa) and I live about 50 miles south of

Atlanta, Ga.

My Dr has just diagnosed me with this disease so all of htis is very new

to me. I went so see him before Christmas with pain in my body, constant

aching and total exhaustion. My mind stayed foggy too. At first he

wanted to dismiss everything saying It was middle age and that fact that

I have 11 adopted children. But I can not believe that and I told him

so, After doing a more in depth exam and listening to me he said that he

believes I am suffering from Fibro and so here I am.

i think that thing that I hate the most is that m body, which is

supposed to be my support, has turned on me and feels like an enemy. It

is very difficult to wrap my brain around all of this and I am looking

forward to just getting to know others that have been where I am and can

help me in dealing with all of this.

Along with Fibro, I have arthritis, a degenerative bone disorder in the

lower part of back, RLS< migraines, asthma, and sometimes I feel like i

take more pills than I eat food.

One thing I am wondering is does Fibromyalgia contribute to a stomach

disorder? I have had problems with my stomach for almost a year now, and

they DR's can not figure out what is going on, Ihave lost nearly 100 lbs

in the less than a year and still have problems eating and not throw it

back up. At first they wanted to suggest that I was anorexic but finally

was able to get the dr's to realize that I do not do it on purpose it

just happens. I have been over weight all of my life, and I learned to

be happy as I am, so this is jsut not me, after so many tests we are

still at a place where they can not fig u re this out.

Last night was a very bad for me so today is naturally a bad day. I hate

it when the legs hurt so bad that I have to sit in a hot bath to get any

relief and then even after that walk the house to ease the pain. The

inability to sleep can kill my entire day sometimes. BUT I guess that as

I learn more about this I will be able to figure out ways of helping

myself, I am looking forward to meeting every one and learning how you

deal with all of this.

God bless and hugs, Rise "

[Guest guest]

I've been taking 4 Advil at a time just to get some relief from the

shoulder. It helps the shoulder, but not the stomach.

Tigger (Ruth) in Rhode Island

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From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Debbie

Sent: Saturday, March 08, 2008 12:52 PM

To: Fibromyalgia_Support_Group

Subject: Re: RX or No RX

I take Motrin 400 mgs when I'm feeling pain. I try to limit taking it

to when my pain is severe. I wish you pain free days...from Deb

[Guest guest]

Unfortunately, that is the curse of these diseases. Some of the treatments are

really bad. As I've reiterated a few times; these diseases have no cure; only

treatments. None of the treatments were initially developed for the disease; so

its a balancing act between the meds and the disease.

Take for example Lupus (which I have); the treatments are 'chemo'. If keeping

it at bay isn't working then they basically try to wipe out your immune system

in hopes that when it comes back it will somehow 'reset' itself. It works about

half the time; maybe less. I'm sure I don't have to explain the side effects

that come with chemo; but you do what you have to; sometimes hoping you can ward

off the worst of the disease for longer.

If I had to go bald and puke for a couple months in order to be able to sleep

and walk without pain again; I'd do it. You have to be careful 'sucking it up'

isn't detrimental to the long run of the disease. It's like waiting too long to

get your breaks fixed. By the time you finally decide to do something about it;

there is a whole lot more wrong.

So PLEASE be careful leaving your health unchecked in any way. Fibro, high

blood pressure, pap smears, mammograms, cholesterol and anything else you might

be dealing with.

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