RE: Re: Does Anyone NOT take RX!??? Tigger?.../Sharon

[Guest guest]

Sharon,

The pain specialist I saw is mostly a spine specialist and since I didn't

have anything wrong with my spine or bones there wasn't anything he could do

to help me. I can't even tell you how many doctors say they can't help.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of sharon

studley

Sent: Saturday, March 08, 2008 2:25 PM

To: Fibromyalgia_Support_Group

Subject: RE: Re: Does Anyone NOT take RX!??? Tigger?...

Hi Tigger- How are things in Rhode Island? My husband, and bro-in-law. are

waiting for the Marine weather to change from here in ME., to get down that

way to start there scallop season, We are awaiting another storm,,No fishing

no income! I hope this is it. But anyway just curious to find out what

happened with you and the pain specialist you saw, as I know I am heading

there, and the first experience with just the initial call with the place my

Dr. wants me to go to was awful, and I have not looked that way again, that

was a yr. ago! The front office was so poor, rude, and put me in such a

maddening state, that I wonder if this is the attitude of the Dr. behind

them, as I was always taught no matter how you feel, think etc. when working

a Dr. office the fromt office is the most important impression you make on a

PT, and someone calling for an appt. is always calling for a reason so

remember this, they are anxious, not feeling well, etc. so always treat them

kindly,

no matter how u feel when the call comes in. Anyway, I am assuming whomever

you saw was no help to your pain issues? Hope you lighter days. Take Care

Storm just starting here! Sharon

Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

@gmail.com> wrote: A lot of the time I do. I have to fight tooth and nail to

get any pain

relief and the pain specialist was a joke.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group

[mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group ] On Behalf Of ddean228

Sent: Saturday, March 08, 2008 11:32 AM

To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group

Subject: Re: Does Anyone NOT take RX!??? For what ever reason...side

effects, $, etc.....

Sherry,

Long before I was dx'd with fibro, I had those mysterious low back

pains, back spasms, etc., and for a long time, flexeril worked (10

mg) because it wasn't that often. Then I started to notice that

before I could vacuum/mop, I would have to take one and before I was

done, I would have to take a 2nd one to be able to finish.

When my PCP (no dx yet) heard that, they gave me robaxin, which

helped a little bit more. Also, naproxyn (sp?) for inflammation and

as a last resort, darvocet (which I literally only take as a last

resort).

I got dx'd January '08 by a rheum and he started me on lyrica (low

dose 75 mg 2x/day) for 2 weeks. I did not notice any sides except the

initial few days when I felt " punch drunk " like many on this list.

Since that time, I am up to the 150 mg 2x a day and not noticing too

many side effects (drowsiness, etc.).

Of course, every single one of us is different. Your doctor may have

to tinker and tweak your meds. The best person to speak with is your

doctor. None of us want to be a zombie and merely travel thru life,

we all want to live the best possible life we can, dealing with this

disease, which attacks each one of us a little differently and yet oh

so much the same, its scary.

I hope that helps; wanted to give you my experiences.....

(((Hugs)))

Darlene

>

> I have taken a few RX given to me by my doctor. I did not like! One

> made me a zombie, one made me hyperventalate(sp?). And, they were

just

> too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO

they

> really the RX that is, stop the pain. I think I'd rather hurt than

be a

> Zombie all drugged up! What is your opion?

>