Re: New Member Introduction - HI....

Posted March 10, 2008 · March 10, 2008

Hi I thought you would be glad to hear this is common and most of us

have the same or commarision symptoms you are describing. I was diagnoised with

TMJ yrs ago, as just diagnoised with Fibro 2 yrs ago, after all kinds of tests,

appts. different ideas, etc. of what may of been causing my pain, illness,

headaches, dizziness etc. The Rheumie did the testing for FM and here it is. I

have had all you are saying, never know when it will come on never no how long

it will last. I have suffered all kinds of severe unexplained pain, chest

tightness, breathing trouble and all those test came back neg each time. So all

I can say is try not to stress about the symptoms when they come, if you have

been checked for life threatening problems like heart and all is ok, then just

hang on and don't enjoy the ride because Fibro does it all, never let's you

know, and hides from others well so gets just as frustrating as it does

painfull. I for yrs would not go near pills,

always was afraid, grew up in a town where drugs where abused, school mates OD

and died, and just was not a person who liked even taking my daily synthroid

pill. After yrs and yrs of the pain, that I tolerated on my own raised 3

children with, that now looking back makes me mad as this deprived me of being

the involved mother I wanted to be, but back then there was NO NAME for this,

and most likely we were just suggested by professionals as being hyperkondriacs,

mentally unstable, or just attention seekers! I pushed myself and pushed myself

hard, overworked, underslept, and never ever took time for myself, breaks at

work etc. I believed I was going to fight whatever all this was head on, I knew

I was a strong, independent individual, and all as I needed was to keep busy,

keep going, and go solo, nothing to ease the pains, tiredness etc. OH except

ice, lots of ice, I slept around the clock with this or heat, I have burned out

each heating pad I have bought in a matter of

mo's just did another one! lol Well then because I wanted to stay working was

not going to slow down like my Dr.'s suggested, I went onto tylenol, this was

alright I believed, I took every kind out there, alot to get through shiifts at

work I worked healthfield and did nights and days, and before having to give up

this last yr was working 60 hrs a week as also did private duty. I now am

barley getting around, had to stop work completley as I was waking in a.m to

many days and could not get up, and had to call out, I am in pain constantly, I

wish I could go back and had taken time, slowed down, rested when my body was

asking. I also am on RX meds. and dependent on them which is different then

addicted, I can't get up from bed without help most days. I tried to avoid

this, have done all the PT< OT< accupunture, etc. and have only this advice.

Take Care of what your symptoms are saying if rest do so, if work is getting

hard slow down, and all of us are different, each

case is not the same, but do believe the pain, in all of us gets unbearable and

trying to fight it instead of taking something is proven only to cause more

problems, like anxiety, exhaustion from the fight of dealing with it with no let

up and on and on. Anyway, welcome and reading from others will give you

uplifts, ideas, and not let you forget you are not alone, this is real, and the

people on this site are all inspiring and this has been a lifesaver for me since

finding them in Feb....Take Care lighter days Sharon

whippetiggy wrote: Hi everyone,

My name is . I'm 37. I've had fibro for at least the past 7

years that I can remember. I'm currently having the worst flare-up

that I've ever had. I just wanted to talk to others that can

understand what I'm feeling and tell me how they cope.

I've got terrible jaw, neck, shoulder, upper back, arm and chest

pains. (I've had my heart checked many times, last time was a

couple months ago and all is fine.) These are all on the left side

of my body and I believe them to be caused by the computer and

packing work I do. I tend to use my left side more than my right.

I've also got a bad case of fibro-fog, TMJ flare-up and dizziness.

Please, please tell me I'm not alone! Does anyone else feel this

way? I won't take prescription meds if I don't absolutely have to.

Does anyone find anything like ice or hot or anything works for the

pains? I try my best to stay away from all kinds of pills.

Thanks so much for letting me join.

Posted March 11, 2008 · March 11, 2008

Sharon - I'm sorry to hear that you are feeling as bad as you are. I wish no

one had to go through this. It is, however, nice to know that I'm not alone and

that I probably won't die from these pains and dizziness though it sure feels

like it right now. I spent 6 hours on the couch last night, then went to bed

and slept for 9 more. My back is now spasming and the dizziness and chest pains

are just terrible. I can barely touch some of my muscles because it's just too

painful. I have to go to work today but I may just do a couple hours and come

home and sleep some more. I sure hope this flare ends soon!

sharon studley wrote: Hi I thought you would be

glad to hear this is common and most of us have the same or commarision symptoms

you are describing. I was diagnoised with TMJ yrs ago, as just diagnoised with

Fibro 2 yrs ago, after all kinds of tests, appts. different ideas, etc. of what

may of been causing my pain, illness, headaches, dizziness etc. The Rheumie did

the testing for FM and here it is. I have had all you are saying, never know

when it will come on never no how long it will last. I have suffered all kinds

of severe unexplained pain, chest tightness, breathing trouble and all those

test came back neg each time. So all I can say is try not to stress about the

symptoms when they come, if you have been checked for life threatening problems

like heart and all is ok, then just hang on and don't enjoy the ride because

Fibro does it all, never let's you know, and hides from others well so gets just

as frustrating as it does painfull. I

for yrs would not go near pills,