Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Hi, my name is and I am new here. I have been living with fibro for about 6 years and I would just like to talk to someone else that feels the same way as I do, since no one around me knows how I feel, it gets hard trying to convince people how I feel. so most of the time I do not let on to anyone that I feel bad. How about everybody else out there? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 We're here, and believe me, we understand. Many of us are at different levels. some are functional and some, like myself, are functional only on some days. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of teresasliger Sent: Monday, March 10, 2008 4:42 PM To: Fibromyalgia_Support_Group Subject: fibro Hi, my name is and I am new here. I have been living with fibro for about 6 years and I would just like to talk to someone else that feels the same way as I do, since no one around me knows how I feel, it gets hard trying to convince people how I feel. so most of the time I do not let on to anyone that I feel bad. How about everybody else out there? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Yeah I totally understand how you feel. When I told my regular doctor about my pain (which I had been putting off because I didn't think she would take me seriously and I was just kinda hoping the pain would just disappear) she looked at me as if I had two heads. And other people including my husband just don't understand how bad the pain really is. Britt fibro Hi, my name is and I am new here. I have been living with fibro for about 6 years and I would just like to talk to someone else that feels the same way as I do, since no one around me knows how I feel, it gets hard trying to convince people how I feel. so most of the time I do not let on to anyone that I feel bad. How about everybody else out there? ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 I have same problem, . Is like, when I am flaring..I get this.. " oh your using as excuse " look..and I absolutely hate that. Can't stand too long, cause of pain, can't sit too long cause of pain..can't bend over at all, because the pain is excrusiating. I get snappy, with my hubby..cause, he always starts with his aches and pains..and, I have to be supportive of him, but, cannot find no support at all for me. Makes me sound selfish..and bitter, but I'm not. I just don't do anything..and don't say much anymore when I am flaring. Just try to sleep when I feel I can. Mostly is at 1 hour intervals..and that sucks. I suppose, I am supposed to feel good all the time, But, as I am flaring now, when I say anything about the pain..it is just ignored. On the other hand..there are sometimes, that I am like the way I am feeling now..that hubby will look at me and know..and he just says.. " you're not feeling good, are you? " .. Not feeling good, is such an understatement..my shoulders hurt me so bad, it hurts to hold my own head up...and hip and legs..omgosh, is unexplainable how " I'm not feeling good...!! " Not feeling good, is a bad cold or flu. Most of the time, I just read posts in my email, rarely do I reply, but your post..it hit home for me. I've not been diagnosed with FM as of yet. Still going thru the making sure is not something else..with neurologist telling me that his guy says FM. My regular doctor saying the same. My tender points check out. My mri showed nothing but bulging disc in my neck area, and degenerative disc that comes as we age. I was told today by Neurologist, that his gut says FM..but he wants my reg doctor to be the one to actually diagnose. GRRRRRRRR,,they all know it..and I am frustrated mentally, and financially with all these tests that come back showing nothing. I am going to hate to think, that during a flare..that I lose my patience with one of them..and fuss and cuss..and kick and scream! (lol, would be kinda funny tho)! I have been going thru this for nearly a year...and I am just so over it! I am on lyrica. At least they trying to treat it the right way. They had me on neurotin, but I could not function, and I hate not being alert, and unable to focus...Lyrica, does not take the pain away, but it does keep it from being unbearable for me. Sorry that I let it loose...as much as I did..but..this group..does understand, and are supportive to one another..! God Bless us All.. (magical dream) > > Yeah I totally understand how you feel. When I told my regular doctor about my pain (which I had been putting off because I didn't think she would take me seriously and I was just kinda hoping the pain would just disappear) she looked at me as if I had two heads. And other people including my husband just don't understand how bad the pain really is. > Britt > > > > fibro > > Hi, my name is and I am new here. I have been living with fibro > for about 6 years and I would just like to talk to someone else that > feels the same way as I do, since no one around me knows how I feel, it > gets hard trying to convince people how I feel. so most of the time I > do not let on to anyone that I feel bad. How about everybody else out > there? > > > > > > ________________________________________________________________________________\ ____ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 > Yeah I totally understand how you feel. When I told my regular > doctor about my pain (which I had been putting off because I didn't > think she would take me seriously and I was just kinda hoping the > pain would just disappear) she looked at me as if I had two heads. > And other people including my husband just don't understand how bad > the pain really is. > I know what you mean about the two heads. Although as my grandmother used to say, " Two heads are better than one, even if one is a cabbage " ;D I can remember many times, before Fibro was even a diagnosis, going to the doctor, and she'd say, " Where does it hurt? " I'd say " Where *doesn't* it hurt? " , and then describe what hurt, and exactly *how* it hurt. She would look, well, bemused, as I described that the roots of my hair hurt, my fingernails hurt, the tops of my feet hurt, my hands hurt, and go through every body part and how it hurt, including the burning, deep-under-the-skin pain. It started to make sense to her as fibromyalgia became better understood. So put *both* of your heads together and get them describing the pain as exactly as you see it to your doc. Your doc may catch on. And I've been hoping the pain would disappear since 1962. The nice thing is that sometimes it does. The rotten thing is that sometimes there are days like today. :::: sigh :::: I'm supposed to go to my drawing class this morning. I just don't see how I'm going to do it. Cr*p. Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 Dear , I feel like this too. When I " m hurting and having to make dinner, etc., hubby is sitting there wincing cause his hand hurts from arthritis. I'm like try having it from the waist down and make me dinner. I too, don't complain, and then everyone thinks I'm okey dokey. I don't think there is a magic way to handle this. Take care, /Mi fibro > > Hi, my name is and I am new here. I have been living with fibro > for about 6 years and I would just like to talk to someone else that > feels the same way as I do, since no one around me knows how I feel, it > gets hard trying to convince people how I feel. so most of the time I > do not let on to anyone that I feel bad. How about everybody else out > there? > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.