Hello - new person saying hello (may be long)

[Guest guest]

Hi everyone, my name is (I feel like I'm in front of a meeting LOL) and I

have fibromyalgia! And I hate that I have it - in fact I hate that any of us

have it. I'm normally a very upbeat, happy person. I shall try to convey that

even though I am not feeling that way at the present time.

I am 53 (very very very soon to be 54 which is perhaps the reason for my less

than happy mood), divorced and live with my 3 furbabies, Sophee and Sammee (9

year old whippet mixes) and a recent adopted rescue dog, Dayzee, 2 year old deaf

pomeranian who, when she isn't being a stinker, is a sweetheart.

I work full time, as there is only me, I have no choice. I would love to be

able to stay home and fight with SS/disability but I can't afford to fight with

them for 3 years and not get paid. I have one son who is 29, married and they

have blessed me with my first grandchild who is almost 8 months old. She is the

light of her Nana's life. She makes me laugh, she makes me smile, she sometimes

gives this Nana a reason to go on.

I may be able to retire in 2 1/2-3 more years if they don't fire me for

absenteeism before then. I've been there 21 years this July.

Fibro was diagnosed about 4 or 5 years ago. Didn't get really bad until

neuropathy appeared in my legs and feet in January. Now I just seem to hurt

constantly all the time. I was diagnosed with pre-diabetes so have been sticking

pretty close to a low carb lifestyle in an effort to keep it from going into

Type I or Type II (although technically my MD informs me I AM Type II even

though I only had one reading a bit over 100).

Several years ago my doctor switched me from Celexa to Cymbalta and that

helped my fibro-shoulder-upper back pain a lot. Last August I started on a low

dose of Lyrica for the fibro however at this time they were thinking my leg/foot

pain was neuropathy even though I hadn' t had a high glucose reading yet. We've

been gradually increasing the Lyrica (nasty side effects but my legs/feet hurt

so much I was desperate to stay with it). After I hit the 200mg/day mark the

side effects were not as harsh. I am now up to 400 mg/day and I can say it has

made a marked difference in my leg/foot pain and I also noticed a few weeks ago,

the insides of my elbows knees were very much less painful. Cost is becomming a

factor even with insurance so I asked him to switch me back to the Celexa and

see if I can do that (much cheaper). So I stopped the Cymbalta on Sunday and

started the Celexa last night (which could also account for my less than joyful

mood tonight LOL). I also take Tylenol

#4 and Tramadol and Soma for pain as well as a number of other supplements.

Will not take Tramadol now until I go back to my Doctor in May because the

druggest warned me of some thing that could happen with the Tramadol and the

Celexa?

At any rate - I suppose all things considered, it 'could' be much worse. I am

also a very strong Christian although I have not ventured to church in a long

while. Weekends for me are mostly spent catching up on sleep so I can work

during the week.

Hoping to get to know some of you much better. Thank you for having me

in Phx, AZ

Sherry wrote:

I recently joined this group myself. Here are a few paragraphs from

my fibro book.

it says...It's critical that you heed what your body is telling you,

which is " Stop - I need rest. " That means you may need to find new

ways of doing things, strategies that will conserve your energy and

minimize your pain.

One of the Difficulties with fibro is that you often won't know

youv'e overdone it until the next day. When this happens, look back

on your previous day's activities, and try to get sense of how you

overdid it. Then, avoid doing too much in the future, even though you

may not feel tired at the time.

For some people, doing routine household vhores can become quite

daunting in the face of fibromyalgia. And if your'e accustomed to

having a clean house, you may need to readjust your standards in

order to cope with the rigors of managing your house.

Of course, the best answer to housework might be hiring outside

help.Of course most of us can not afford that luxury. You will need

to adjust your housecleaning and standards to meet your health needs.

Hope This helps Sherry in Arkansas.......

P.S. If you can...get Friends and/or Family to help.

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Hi, . WELCOME!!!! You've joined a great group and I look forward to

getting to know you.

I'm Debi, 55...just turned back in Jan...I have 3 grown children, 8

grandchildren...although, one became an angel when he was 6 days old. I have

had

fibro most of my life, but it has hit me hard the last 10 years. I live with

my

daughter, her Marine husband and her 4 surviving children. I swear, if it

weren't for my family, my life wouldn't be worth living.

Love and gentle hugs,

Debi/Central Cal.-55

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[Guest guest]

----- Original Message -----

From: in AZ

To: Fibromyalgia_Support_Group

Sent: Wednesday, March 12, 2008 2:04 AM

Hi ,

That is ONE of the things I hate about fibro....needing to rest a lot on

weekends so I can work all week!! It's frustrating getting nothing done.

Be well,

/Mi

[Guest guest]

Thank you for the nice and warm welcome. LOL Thank you for the welcome at all

Debi!

I'm so very sorry you lost one of your grandbaby's

You know I really cannot remember the onset of fibro. I can tell you when it

got much worse but not when it started. It's been years though, it's just

gradually gotten worse and worse.

What part of Cali are you in? My folks are in southern California about 25

mins from Disneyland. They will be here on Sunday for a little while before

going home on Monday.

Looking forward to getting to know you

hugs

in Phx

DebiAC012553@... wrote:

Hi, . WELCOME!!!! You've joined a great group and I look forward to

getting to know you.

I'm Debi, 55...just turned back in Jan...I have 3 grown children, 8

grandchildren...although, one became an angel when he was 6 days old. I have had

fibro most of my life, but it has hit me hard the last 10 years. I live with my

daughter, her Marine husband and her 4 surviving children. I swear, if it

weren't for my family, my life wouldn't be worth living.

Love and gentle hugs,

Debi/Central Cal.-55

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Be a good e-mail buddy, and ALWAYS

protect your friends from email address harvesters which can lead to more

Spam, unwanted mail, and even viruses.

Copy and paste forwards into a new email and place parenthesis around the

addresses.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)