Re: Gretchen Read and let me know

[Guest guest]

Sharon, Everything you said sounds so familier! My mom is now 65 and I have a

twin sis also with fibro, too! { Hers is not bad enough for pain meds yet

LUCKY!} As I said she went through 20 years before a diagnosis. I remember

when we were little, she was in bed a lot and she could not cope with much, of

course, not understanding then what was going on. I now have a 4 year old of

my own and the guilt is setting in! I can't work right now and have a hard time

copeing with anything! I am very angry and very raw and anxious about seeing

any dr.! I just want a normal life with a job and to do normal mom things! My

husbands family says I am lazy and just want him to support me! Then, how come

I am the one with the college degree? I am so mad, I bark at everyone and I

don't mean too! I just want to be like everyone else! Thank you for your

perspective....... This group has helped me alot! Gretchen PS~ I have not

seen the Pain Specialist since I was

diagnosed... My dr sent me there for artheritis in my spine..... It worries me

to go back, even for this condition, because I think he's a quack!

sharon studley wrote: Hey, I wonder if you are

talking about the same thing I went to before, First of all I am probably your

mother, not literally LOL, but I have been like this 30 yrs ago, but also got

treated like I was a hypercondriac, nutty, panicky, worrier all of it, and sent

home each time with bone renching pain, causing me to develope panic attacks,

anxiety and all that,which did not need to happen, after all the pain I could of

dealt with but when the panick attacks and anxiety set in, it stayed for yrs,

and I was trying to raise 3 sm. children with a husband who worked driving truck

from one state to another. I was scared to death I was going to die while home

alone with these beautiful little kids who needed me, so I use to pray whatever

was wrong with me just let me live to have them grow up and not have to be

without a mom so young! So I made it, but I am mad that all this time no one new

this existed, my symptoms were real and

I could of been a better mom if they had just

helped me. Anyway here we are, But I want to respond to make sure you understand

as I also have been to a Pain specialist, and they wanted me to drive there 1 hr

away from home into unknown territory, my husband took me first trip, Boston

area, which I don't do, and they wanted me to come 4 days a week, for all types

of therapy , which most I had done, but this was to be done all 4 days from 8a

to 4p and go through PT OT utra sound, blah blah blah. I told them the anxiety

of thinking of driving there and back would not be good, and would surely undo

any tension that may get released after TX trying to drive home in the commuter

traffic. Anyway just to clarify, this is a pain specialist type. Then there are

the Pain Clinc's. and management Centers depending what part of the country your

from, this treats with usually heavier pain med's. Oxcycontin, Methadone,

Morphine, and are prescribed after evaluation, plus Primary referal for being

sent there, etc.. Others have

posted saying not all Pain Clinic's deal with this, well I am familiar with the

Pain Clinic's before Dr. told me it may be time I go there and get a stronger

med as I am in way to much pain to long now, as before I was told and realized I

can not work anymore, I worked in the healthfield and this was incorperated in

our training days. So just wondered if you know there is a difference as I have

never had anyone go to a Pain Clinic and be told they need to correct posture,

do PT, and that. Still I wish you find pain relief somewhere, and keep in mind

he ER option, as sometimes they will recommend a Dr. who will help,if you tell

your story about that Jerk. Best to you Sharon

Gretchen, Please keep us informed and you go girl. The disrespect has to stop.

You also need to tell him that!

Lori J

Gretchen Garlo wrote:

Sharon, Thank you for your words of advice! Have been to pain specialist a while

back and he just wanted to put me on posture thearpy! What a joke! Don't

understand what is going on in my community, but I have had it! My mom went

through 25 years without a diagnosis and the ridicule she went through was

awful! I REFUSE to be treated with disrespect an have started looking for

another PCP. I will call up my dr. tomorrow and ask for my pain meds again, if

he refuses, I will report him somehow for treating me with disrespect and

cruelty of allowing me to be in terrible pain..... Thanks again, Gretchen

sharon studley wrote:

Just wanted to say this Dr. I believe has broken the ethics he was taught and

suppose to practice as a physician, I would make sure and report him to AMA!, or

at least to a refferal site there may be in your area. I don't understand how he

provided you with the pain management med;s and if it has been for some time

just stopped you, cold turkey?, this usually is not the way, unless they felt

threatened by the Fed's because of clamp downs, because of all the misuse of

narcotic's these days. I do know in more and more states it has become harder

and harder for Dr.'s to continue long term perscribing these and are referring

patient's out to Pain Clinic's who are not at risk of being inditated on freely

passing out the drugs etc. But still you should not have been just shut off if

it's been a time you have been taking them, as it will cause some withdrawel

which is not comfortable, can be painfull, cause worse symptoms on top of the

Fibro pain etc. The Rhuemo I believe

is not going to put you back on a narcotic pain med on an ongoing basis, as they

usually treat with a different type of med, do not like to see us on ongoing

pain med's and if so have you be under the control of your PCP. I now am making

the decision whether I want to go to a Pain Clinic, as I have been dependent

different then addicted to pain and muscle med's without them now I can not move

without severe pain, but they don't eliminate the pain, only sometime make it

more bearable to get out of bed which I need to do, for more reason then one, I

have had one to many blood clots that scare me, I don't want to become bed

ridden, so these med's have been the only TX right now to keep me going. But

again due to either having to go up to a stronger narcotic, increase the dose, I

will eventually have to move to a pain clinic for closer observation. I have

awsome Dr's also, who believe in my disease have seen me at my worst, and don't

want me in pain. Alot of the other

med's I had bad side effects. But I understand when it is time for the Dr. I

have to say if I still need to take the pain meds I have to decide I will go to

the pain clinic as they are not in jeapordy like Primary/Rhuemo's are of getting

into trouble for handing out med/s and not sending us out for re-eval by the

experts. Just to warn you and not upset things worse, don't be surprised if the

Rhuemotologist won't re-prescribe the pain med, mine has known me and my family

all my life her mom was my pediatrician, and she is excellent, very easy going,

but she does not like me long term on the pain med's but because the other meds

all have tried me on she understands wants me to limit as much as possible but I

have not been able to, does not believe in one being in pain, but also says they

are not meant to be the ones to prescribe pain med long term and that is why my

Primary has done it,and I know soon I will have to decide I will go to a pain

clinic as they believe I now

need a stronger med then Vicodin but I am not ready to go there, In mean time I

suggest if pain is unbearable go to ER for shot, as I have had to do this

several times, when I could not get out of pain even with my med;s and could not

bear to put weight on my legs at least it is a break for several hrs. I hope it

all works out for you, but just want you to maybe have some back up plans incase

the Rheumo won't prescribe either, as keep in mind they are going to have your

record of why you were referred and stopped by the jerk who you saw and stopped

the med;s, and I would not go back and would definitley not let his comment go

without letting him know. Take Care I hope you will get some relief as I don't

know what I would do waiting for appt with no pain relief inbetween. Sharon

rorasmom wrote:

> >

> > Hi, I have not responded to this group in a while because of my

> pain.

> > finally, after 3 months, my dr is sending me to a

rhematologist. I

> > can't believe it! He just doesn't believe my pain level and

won't

> > even prescribe pain meds anymore... i have spent many a day and

night

> > crying and in terrible dispair! He even made jokes today saying

that

> > if I was a horse, he would've taken me out back and shot me by

now!

> > How do I handle the pain until then? Its soooo terrible I can't

think

> > or sleep or take care of my house or daughter? WHAT DO I DO?

How

> > come even after been diagonosed with fibro and RA can he be so

> cruel?

> > How do I manage my day to day life? My husband works 70 hr weeks

and

> > have no help from family! I am truly lost!!!!!!!!!!!!!!!

> >

> I just wanted to find out where you live because i have the best

fibro

> Dr and I am in the buffalo area . this dr will do all she can to

make

> sure that you have a good life as far as pain is considered so if

you

> are in my area let me know . Souter

>

i live in ohio springfield area

[Guest guest]

> > >

> > > Hi, I have not responded to this group in a while because of

my

> > pain.

> > > finally, after 3 months, my dr is sending me to a

> rhematologist. I

> > > can't believe it! He just doesn't believe my pain level and

> won't

> > > even prescribe pain meds anymore... i have spent many a day

and

> night

> > > crying and in terrible dispair! He even made jokes today

saying

> that

> > > if I was a horse, he would've taken me out back and shot me by

> now!

> > > How do I handle the pain until then? Its soooo terrible I

can't

> think

> > > or sleep or take care of my house or daughter? WHAT DO I DO?

> How

> > > come even after been diagonosed with fibro and RA can he be so

> > cruel?

> > > How do I manage my day to day life? My husband works 70 hr

weeks

> and

> > > have no help from family! I am truly lost!!!!!!!!!!!!!!!

> > >

> > I just wanted to find out where you live because i have the best

> fibro

> > Dr and I am in the buffalo area . this dr will do all she can to

> make

> > sure that you have a good life as far as pain is considered so

if

> you

> > are in my area let me know . Souter

> >

> i live in ohio springfield area

>

>