RE: do any of you ever- To Rise.. not simple

March 13, 2008

I don't blame you for getting aggravated. And this illness is far from simple

honey. It is life altering and changes everything for most of us. On top of

that, it is invisible and many don't believe us when we feel like we were hit

with a board and sleep deprived for a week.

You do have a pretty name. And welcome to this group. And the mood swings, it

is common. I suppose evenings would be bad for alot of us because we have gone

through the whole day with exhaustion and the exhaustion just gets worse later

in the day.

hugs to ya,

Debra V.

Rise Wampler wrote: Thank

you , my mom named me after a British opera singer, she used to

spell her like me but has changed her spelling to the new Risa.

Thank you too for answering,it is good to know that it is normal and not

just me going insane. I am so new to this, although have had symptoms

for many years, just received the diagnosis.

Sometimes I will get so upset and feel like I must be a bad person to

get so aggravated over something so simple.

Rise " / Ga

Re: do any of you ever

Hi Rise,

I like your name! I feel the same way at the end of the day. Especially

Monday thru Friday when I work. I Nanny and I have to come home and deal

with dinner and husband and 97 year old Mom and I just want to lock

myself away. It seems the noise, lights and confusion of so much

activity just freak me out by days end. And if I've had a good pain day,

by then that is starting to increase as well. You are not alone.

Take care,

/Mi

do any of you ever

have a mood change the closer to evening that it gets? I mean I find

that I lose my patience easier and I get more don't touch me the later

that it gets. I get aggravated at the least little things and I was

wondering if it normal or not.

Thanks,

Rise "

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