Re: Fibromyalgia and Fatigue Center

[Guest guest]

Becca -- I am reading the 3d edition of Teitelbaum's book right now

and find his successes with different approaches very intriguing and

hopeful. Did you stay on his " protocol " for long? Did anything ever

work or help??

Cheryl M.

>

> Friends,

>

> In a recent post mentioned she had been to a

Fibromyalgia and Fatigue Treatment Center. I have reviewed their

website and wondered if anyone else has been to one of their centers.

If so, I'd be delighted to hear about your experience. I am

considering going. I have the book by Teitelbaum and went to a

holistic doctor who put me on his supplements. I can only speak about

my experience but the supplements and " vitamins " provided absolutely

no relief. Can anyone else speak to this?

>

> Thanks,

> Becca

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

i have read both his books, bot the supplements,including d-

ribose,none of them have helped me, and his vitalizing powder has

alot of soy, which i have an allergy to.

i emailed him directly with a question about florinef, he emailed me

back. i emailed him a couple other questions, he did not email me

back, they really want our money, badly, $390.00 per consult, out of

pocket, they don't take insurance for consults. so i am sure he did

not email me so i would make an apt with their clinic.

he is the most comprehensive doc i have read, he does have

fibro/cfids himself and had to drop out of med school when his

started. so i think he makes alot of sense with most of his

recommended supplements and especially his medical perspective about

infections,blood clotting disorders and the rest of his medical

approach, which i am just getting to, it is complicated.

i was considering going to the detroit clinic, now i am not sure,

they are bascially thiefs towards very,very sick people, charging

what they charge. the only problem is, no other docs will dx and

treat " out-of-the-box " like these docs hopefully should and do.

becca or cheryl, will you please email me and let me know how it is f

you do go. thanks!

take care,

marg

> >

> > Friends,

> >

> > In a recent post mentioned she had been to a

> Fibromyalgia and Fatigue Treatment Center. I have reviewed their

> website and wondered if anyone else has been to one of their

centers.

> If so, I'd be delighted to hear about your experience. I am

> considering going. I have the book by Teitelbaum and went to

a

> holistic doctor who put me on his supplements. I can only speak

about

> my experience but the supplements and " vitamins " provided absolutely

> no relief. Can anyone else speak to this?

> >

> > Thanks,

> > Becca

> >

> >

> > ---------------------------------

> > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

> call rates.

> >

> >

[Guest guest]

Marg --

Sorry about the slow response, I don't get everyday and can't always

get through the emails, but specifically checked to see if there was

anymore word on the clinics and Dr. T, so found your msg

I was supposed to travel to Portland OR clinic 3/17 but I could not

even put transportation tog, let alone $$$$. I understand their theory

re: ins when I talked with the office mgr, but that aside, I also

spoke with the office mgr at Dr. T's office and I am going to do the

long form for $99 and my dr is going to f/u w/their office as needed.

I did get a pkg from the clinic with the 24 page questionnaire. That

much info you can get just scheduling the appt whether you go or not.

That at least gives any other dr a better idea of what questions they

should be asking. After you do the long form, I can't remember if T

actually looks at it or not, but what you get (from his vitality101

website) is a treatment plan.

I have gone back to taking my magnesium malate and that alone seems to

make a tremendous difference for me. I have not finished the books yet

-- just so much self stuff guess we can do -- but curious about the

ADD/ADHD discussion I glanced through here on the group list.

I hope this helps.

Cheryl M.

> > >

> > > Friends,

> > >

> > > In a recent post mentioned she had been to a

> > Fibromyalgia and Fatigue Treatment Center. I have reviewed their

> > website and wondered if anyone else has been to one of their

> centers.

> > If so, I'd be delighted to hear about your experience. I am

> > considering going. I have the book by Teitelbaum and went to

> a

> > holistic doctor who put me on his supplements. I can only speak

> about

> > my experience but the supplements and " vitamins " provided absolutely

> > no relief. Can anyone else speak to this?

> > >

> > > Thanks,

> > > Becca

> > >

> > >

> > > ---------------------------------

> > > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

> > call rates.

> > >

> > >