Not much support seems more like a clique

[Guest guest]

I've posted twice and now my other one is not even posted.Well to heck

with it. I'm done here and will be canceling this group out! I found a

much better one where the people actually talk to you so good bye and I

hope you all get things worked out one day.

[Guest guest]

I really am sorry you feel that way, but sometimes with so many people

" talking " you need to either SHOUT, or just jump in with both feet and be

patient. I may not know how to help you, but someone else may, but they may

not be online right now.

I hope you are here long enough to give it a second chance.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of

chainedtoabutterfly

Sent: Friday, March 14, 2008 4:17 PM

To: Fibromyalgia_Support_Group

Subject: Not much support seems more like a clique

I've posted twice and now my other one is not even posted.Well to heck

with it. I'm done here and will be canceling this group out! I found a

much better one where the people actually talk to you so good bye and I

hope you all get things worked out one day.

[Guest guest]

Hey...I'm new here too. I've found a lot of really nice & welcoming

people here so far ( & it's only been a couple of days). I'm sorry

you're having such a bad experience. I know how you're feeling. I

perused a few other groups before joining this one & thought they

seemed kind of " clique-ish. " It took me a long time to decide to jump

in & give it a go. I can say this...it was worth it. You should do

whatever you're comfortable with, but if you decide to give this group

another chance, you can message me anytime. I'm always accepting new

friends! Good luck & take care...

[Guest guest]

> I've posted twice and now my other one is not even posted.Well to heck

> with it. I'm done here and will be canceling this group out! I found a

> much better one where the people actually talk to you so good bye

> and I

> hope you all get things worked out one day.

,

I've just spent about 45 minutes sitting at the computer, which is

painful for me, carefully composing a long, (hopefully) encouraging

and (hopefully) helpful response to your long post. I'm in a bad

flare, second or third this week, and more than a bit grumpy at

reading the above post. Between this and another Fibro group, I get

hundreds and hundreds of messages a day. There's no way on <insert

name of deity here>'s green earth that I can hope to read all of

them. The most I can do is browse a few each day, and respond when I

can. I end up deleting the vast majority after a few weeks. Right

now I'm 1190 messages behind on this group and that's just since Feb.

28. I'm sure I'm not the only one who finds this true.

Dad-gummit, you're not the only one who is in pain or has a rough

time. If there's anything I've learned in my months on this group,

it's how fortunate I am to have those treasured " good " days, and how

much courage and strength the people here have. I feel humbled and

privileged to be part of this group.

Don't let the door hit you in the butt on the way out.

Z (There. I've said something mean.)

[Guest guest]

Welcome Kandi. I will try to keep up with your posts better. Thanks for not

giving up on us.

hugs,

Debra V.

" Kandi J. Kieffer " wrote:

Hey...I'm new here too. I've found a lot of really nice & welcoming

people here so far ( & it's only been a couple of days). I'm sorry

you're having such a bad experience. I know how you're feeling. I

perused a few other groups before joining this one & thought they

seemed kind of " clique-ish. " It took me a long time to decide to jump

in & give it a go. I can say this...it was worth it. You should do

whatever you're comfortable with, but if you decide to give this group

another chance, you can message me anytime. I'm always accepting new

friends! Good luck & take care...

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Connie,

I thought I new a little bit about this thing called fibro before I came here

too. We have a bunch of experts here!! I am so happy you have a lovely hubby.

/Mi

Re: Not much support seems more like a clique

to the ones who are feeling a bit ignored at times, I am new too, and I have

noticed that very many of the messages here are talking about much of the

problems that I am having my self, so I just take some relief from those! As a

matter of fact I am thinking that this entire group is a clique of sorts and

that is good! We have set ourselves apart from the croud in order to fulfil our

own special needs. And needing to be in the center of attention from time to

time is just one of the things that some of us need, and sometimes the only way

to do that is to holler a bit! Anyway, I have learned so very much in the past

few days that I have been able to get on here and read, that I feel like my head

is going to fall off! I KNEW NOTHING ABOUT THIS THING BEFORE I CAME HERE! I am

still trying to pick up the pieces and fit them together into something I can

understand! The way I understand it a big huge support group like this is a

great place to vent, yell, say ugly things, because sometimes that is the only

way we can get the pressure off of our own souls, also give personal advice,

testamonies, and encouragement when we feel up to the challenge of typing. I

have been flat on my back for 2 days and have not even been able to sit at the

computer! What I see when I look at this group is over 1000 people who are in

the same boat that I am in! I am not alone afterall!

Connie