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Appt w/new Rheumy

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Hi Everyone,

I am new, having only posted a few times. I wanted to share that I saw

my orthopedic surgeon yesterday for possible carpal tunnel surgery, as I

have it in both hands. Dr. Lang told me no way will he perform just

carpal tunnel surgery on anyone with Rheumatoid Arthritis, that I must

also have a Synovectomy (sp) on both hands b/c RA affects and even

causes Carpal Tunnel. He said as long as the Synovial tissue is still

around the tendons in my wrists, the carpal tunnel will not get any

better and maybe worse.

He also said that before we operate, he insists on being certain that my

RA is totally under control for 6 months or more. This was a perfect

opportunity for me to mention him referring me to the Rheumy in his

practice for a second opinion. He was glad to do that and thought it

was an excellent idea.

I also mentioned to him that I was going to ask for a referral anyway

b/c I think I have Fibro, actually think I have had it for 9 + years,

and that it was getting worse. I told him my Rheumy that I have seen

for 5 years does not want to hear about it. He asked my symptoms. I

did not get to half of them when he stopped me and said it certainly

sounds like Fibro. He said the Rheumy in his practice was trained at

Mayo Clinic and knows good and well Fibro is very real.

I cannot get in to see her until 4/15. But, to me it is worth the wait.

I know she cannot cure me and maybe will not change anything I am taking

etc. But, if she just acknowledges that my pain is real, that my Fibro

is real, and LISTENS to me, that is all I need. I am so tired of

feeling like a complainer.

Again, I am so glad I found this group!

F.

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Guest guest

>

> Hi Everyone,

>

> I am new, having only posted a few times. I wanted to share that

I saw

> my orthopedic surgeon yesterday for possible carpal tunnel surgery,

as I

> have it in both hands. Dr. Lang told me no way will he perform just

> carpal tunnel surgery on anyone with Rheumatoid Arthritis, that I

must

> also have a Synovectomy (sp) on both hands b/c RA affects and even

> causes Carpal Tunnel. He said as long as the Synovial tissue is

still

> around the tendons in my wrists, the carpal tunnel will not get any

> better and maybe worse.

>

> He also said that before we operate, he insists on being certain

that my

> RA is totally under control for 6 months or more. This was a

perfect

> opportunity for me to mention him referring me to the Rheumy in his

> practice for a second opinion. He was glad to do that and thought

it

> was an excellent idea.

>

> I also mentioned to him that I was going to ask for a referral

anyway

> b/c I think I have Fibro, actually think I have had it for 9 +

years,

> and that it was getting worse. I told him my Rheumy that I have

seen

> for 5 years does not want to hear about it. He asked my symptoms.

I

> did not get to half of them when he stopped me and said it certainly

> sounds like Fibro. He said the Rheumy in his practice was trained

at

> Mayo Clinic and knows good and well Fibro is very real.

>

> I cannot get in to see her until 4/15. But, to me it is worth the

wait.

> I know she cannot cure me and maybe will not change anything I am

taking

> etc. But, if she just acknowledges that my pain is real, that my

Fibro

> is real, and LISTENS to me, that is all I need. I am so tired of

> feeling like a complainer.

>

> Again, I am so glad I found this group!

> F.

> Hi I too am glad thet you found this group. There are

wonderful people here.I also had to wait a long time to see my fibro

specialist but it was worth the wait. So I hope you get great

treatment from your dr ...... from buffalo

>

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Good for you , I am so glad you found a good Rheumy....keep us posted.

/Mi

Appt w/new Rheumy

Hi Everyone,

I am new, having only posted a few times. I wanted to share that I saw

my orthopedic surgeon yesterday for possible carpal tunnel surgery, as I

have it in both hands. Dr. Lang told me no way will he perform just

carpal tunnel surgery on anyone with Rheumatoid Arthritis, that I must

also have a Synovectomy (sp) on both hands b/c RA affects and even

causes Carpal Tunnel. He said as long as the Synovial tissue is still

around the tendons in my wrists, the carpal tunnel will not get any

better and maybe worse.

He also said that before we operate, he insists on being certain that my

RA is totally under control for 6 months or more. This was a perfect

opportunity for me to mention him referring me to the Rheumy in his

practice for a second opinion. He was glad to do that and thought it

was an excellent idea.

I also mentioned to him that I was going to ask for a referral anyway

b/c I think I have Fibro, actually think I have had it for 9 + years,

and that it was getting worse. I told him my Rheumy that I have seen

for 5 years does not want to hear about it. He asked my symptoms. I

did not get to half of them when he stopped me and said it certainly

sounds like Fibro. He said the Rheumy in his practice was trained at

Mayo Clinic and knows good and well Fibro is very real.

I cannot get in to see her until 4/15. But, to me it is worth the wait.

I know she cannot cure me and maybe will not change anything I am taking

etc. But, if she just acknowledges that my pain is real, that my Fibro

is real, and LISTENS to me, that is all I need. I am so tired of

feeling like a complainer.

Again, I am so glad I found this group!

F.

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