RE: Re: Tigger I suggest your right

[Guest guest]

Hi just a quick thought I am in agony with newer hip/butt/leg/ sacreiliac

horrific pain, night after night and am not trusting typing now, will get back

tomm. But u are right on being treated who manages not just drugs. My Rhuemo

is very smart travels all over the world learning new, on the board of a few

hosp. I don't take but one muscle med from her, she prefers finding hands on

TX's she said the only cocktail mixes she belives in come in a glass with ice!

lol but she uses the med's more so for R/A and those diseases = MX etc. I gotta

exit need to get more ice and try and get comfortable. Hope things ok your way

Take Care.

Sharon

Tigger wrote: I did do that. No, I'm in

Westerly Rhode Island and went to a doctor here.

I used to have what I thought was a good rheumy, but then I realized he

would give me anything I asked for and that's not what I need. I need a

knowledgeable doctor who can help me manage not keep me drugged.

I went back to the doctor because I have a frozen shoulder and we talked and

nothing gets resolved. I see her again at the beginning of April and I

fully intend to have something done. My patience is wearing very thin.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of sharon

studley

Sent: Thursday, March 13, 2008 8:02 PM

To: Fibromyalgia_Support_Group

Subject: RE: Re: Tigger I suggest

Hi Tigger, My Rhumo is in Newburyport, where is yours?, you didn't travel

that far did you?, but truthfully mine does have patients who drive from far

as she is smart diagnoising but just prefers to treat with old time meds for

the fibro as sometimes she says the RA meds will work. But I suggest you go

back to your PCP and tell him/her of your pain and that Rheumie has some

other ideas, as this is kind of what I did. I told mine I needed to stay on

the pain meds they had started me on and would continue to see the Rheumo

but she just kind of keeps a check on how I am, and provides the Soma. Hope

this will work. Take Care. Sharon

Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

@gmail.com> wrote: Hey Sharon, are you sure we didn't see the same

rheumatologist? My PCP was

upset because she thought she was going to start me on some meds for Lupus

(one test came back positive). Well, unless the two of them talk I'm stuck

in the middle. and in pain.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group

[mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group ] On Behalf Of sharon

studley

Sent: Wednesday, March 12, 2008 9:57 PM

To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group

Subject: Re: Re: Rhemie said Nothing to be done?

This is absurd! Mine diagnoised me first visit as was in a big flare,

swollen forearm areas, nodules on back of neck and all check point areas. My

primary had thought this is what it would be, but the Rhuemie is the one

that know the med's non narcotic to treat the disease, she has me on Soma

muscle relaxor, and that is all only because she had tried me on all the

others usually used and did not work or bad side effects. Oh she also

prescribed me Lidoderm patches for the pain sites. Sometimes works,

sometimes not, but is not the one to treat with pain meds long term, this is

by primary. Rheumie' know more about the disease and uses MX PT etc, so

suggest you find another willing to try med's that do work for some. Good

Luck Sharon

uniceander <Lander2004 (AT) comcast (DOT) <mailto:Lander2004%40comcast.net> net>

wrote:

>

> I'm new here and just recently have been told that I have

fibromyalgia.

>

My internist did all sorts of lab work to rule out anything like RA,

etc. She sent me to a rheumotologist who diagnosed me on first visit

and then told me there was nothing to be done. Am looking for new

doctor. Good luck and try to find a doctor who cares.

/MI