Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Hello, I have been lurking for a while, trying to learn as much as I can. I was Dx a few eyars ago with Firbo but my s/s went away and never came back until a few months ago. So, I went to my neurologist. He has treated me before for APA Symdrome and headaches. They did blood works and my APA came back (-). It waxes and wanes so if I tested today it could be (+). Anyhoo, I made an appt in NOVEMBER for a the rheumy who Dx me few years ago. (Our area is short on rhuemy.) So, I finally had my appt last week, yep after waiting in pain since November. He sid he does not treat Fibro and does not know of any Rheumy in the area that treats it as there is nothing more then pain control they can do. He said to go back to my PCP and she if he will treat me. So, I am back at the begining. He did gove me the Ultrum (SP), as he DOES NOT do pain control. What freaking good are you as a rheumy if you do not treat pain. So, I stuck here crying and in pain not knowing what to do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Hello, I don't really have any answers here but I just want to give you a hug. I cannot stand to hear our syndrome being ignored by the medical community. It took me a few years to find the right docs. I feel lucky to have a rheummy thats will work with me, though he does not do pain meds... Loretta > > Hello, > > I have been lurking for a while, trying to learn as much as I can. > I was Dx a few eyars ago with Firbo but my s/s went away and never > came back until a few months ago. > So, I went to my neurologist. He has treated me before for APA > Symdrome and headaches. They did blood works and my APA came back (-). > It waxes and wanes so if I tested today it could be (+). Anyhoo, > I made an appt in NOVEMBER for a the rheumy who Dx me few years ago. > (Our area is short on rhuemy.) So, I finally had my appt last week, > yep after waiting in pain since November. He sid he does not treat > Fibro and does not know of any Rheumy in the area that treats it as > there is nothing more then pain control they can do. He said to go > back to my PCP and she if he will treat me. So, I am back at the > begining. He did gove me the Ultrum (SP), as he DOES NOT do pain > control. What freaking good are you as a rheumy if you do not treat > pain. So, I stuck here crying and in pain not knowing what to do. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 IMissy I understand. The rhumy I go to(LOL) believes pt is the answer. She gave me a med for my OA that blew me up like a balloon. She doesn't do pain meds either even though she dx me with fibro. She seems to be good with RA so I guess if you can see it in tests she can justify treatment. I haven't been back to her since I got a referral to a fibro specialist. His office is to far away for me tro continue going for regular treatments. Now my neurologist is treating me for pain management as well as my rls, migraines, and watching my carpal tunnel and now my fibro. Just a drop in the bucket of dx I have. JudyMer ---- missy8632 wrote: > Hello, > > I have been lurking for a while, trying to learn as much as I can. > I was Dx a few eyars ago with Firbo but my s/s went away and never > came back until a few months ago. > So, I went to my neurologist. He has treated me before for APA > Symdrome and headaches. They did blood works and my APA came back (-). > It waxes and wanes so if I tested today it could be (+). Anyhoo, > I made an appt in NOVEMBER for a the rheumy who Dx me few years ago. > (Our area is short on rhuemy.) So, I finally had my appt last week, > yep after waiting in pain since November. He sid he does not treat > Fibro and does not know of any Rheumy in the area that treats it as > there is nothing more then pain control they can do. He said to go > back to my PCP and she if he will treat me. So, I am back at the > begining. He did gove me the Ultrum (SP), as he DOES NOT do pain > control. What freaking good are you as a rheumy if you do not treat > pain. So, I stuck here crying and in pain not knowing what to do. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 How frustrating. Try try try to find another doctor if you can. These people are not willing to help you. I say don't waste your time on narrow minded idiots. hugs, Debra V. missy8632 wrote: Hello, I have been lurking for a while, trying to learn as much as I can. I was Dx a few eyars ago with Firbo but my s/s went away and never came back until a few months ago. So, I went to my neurologist. He has treated me before for APA Symdrome and headaches. They did blood works and my APA came back (-). It waxes and wanes so if I tested today it could be (+). Anyhoo, I made an appt in NOVEMBER for a the rheumy who Dx me few years ago. (Our area is short on rhuemy.) So, I finally had my appt last week, yep after waiting in pain since November. He sid he does not treat Fibro and does not know of any Rheumy in the area that treats it as there is nothing more then pain control they can do. He said to go back to my PCP and she if he will treat me. So, I am back at the begining. He did gove me the Ultrum (SP), as he DOES NOT do pain control. What freaking good are you as a rheumy if you do not treat pain. So, I stuck here crying and in pain not knowing what to do. --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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