Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Wow - you sure know a lot about CPAP! I just have a quick question if you can render an opinion. I have a CPAP and the problem isn't the machine. I've done well on it until recently. I feel like I am smoothering and I can't use it. I should say I've lost almost 50 lbs so maybe I need another sleep study? Would 50 lbs make that much of a difference? Thanks for your opinion hugs in Phx Fibromyalgia_Support_Group wrote: 4a. CPAP and moisture - Sharon Posted by: " jeribelle2000 " girlsaylor@... jeribelle2000 Date: Sun Mar 16, 2008 10:21 am ((PDT)) Hi Sharon- Here's my invite to join cpaptalk.com. They help solve any and all cpap problems to help you use that machine every night and reap its benefits. First off, what kind of humidifier, and what kind of machine are you using? If you have a machine that has a humidifier integrated, both made by the same company, those don't deliver as much humidification as a stand-alone humidifier. At this time, one of the very best humidifiers on the market for cpap machines is the Fisher & Packel HC150. Although having your humidifier sitting next to your cpap machine on your nightstand doesn't look as nice as that nifty integrated, smaller design, these new Fisher & Packel units hold more of that pricey distilled water, so you're not likely to run dry at night. Secondly, this particular humidifier reservoir is very inexpensive to replace the reservoir, compared to those integrated ones. These are true workhorsed, will outlast your machine. You'll get more humidification from a F & P. Next, if you don't have one, get yourself a hose cover for your hose, which will provide some insulation and allow that warmed, moist air to really get to your breathing passages. A hosecover will allow you to turn up the heat, which translates into more humidity for those dried out sinus passages. Those integrated humidifiers leak! In no time! Get thee back to your DME provider and insist on a F & P please, while they will swap it out, as soon as possible. Just tell them the integrated one isn't giving out enough humidity or tell them it runs dry at night, whatever, to get the best humidifier on the market. The F & P has ambient tracking, which will also help with rainout. It's easy to fill, with no danger of splashing water into the cpap machine, as its separate. The only negative I can even think of is that it doesn't fit into the cpap bags real well for travel. Minor inconvenience when one thinks of all the benefits! Girlsaylor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 I really don't know all that much about CPAP. But I've learned alot and continue to learn from the people on cpaptalk.com. They are all people with obstructive sleep apnea, and know all the little tricks to help people get the best therapy possible. My first question would be...do you have a fully-data-capable machine? That would be one that has a smart card that you can download into software on your computer and view statistics on apneas, hypopneas, mask leaks, and such? If you do, first thing is to download that data and post it on cpaptalk.com and ask for feedback. Barring that, how long since your last sleep study? If you've lost alot of weight, your pressure(s) may have changed, and most sleep docs would consider a new sleep study. If you have to pay much or all of the bill for a sleep study, some docs will write a prescription for you to have a night on an auto-titrating machine (from your DME), which then would be downloaded to see what pressure (s) were most effective. It's not a substitute for a sleep study, but sometimes docs will go that route. Another thought is, how long since you've replaced your mask? They do begin leaking over time, and if you don't have a good seal, that prevents your machine from delivering the prescribed pressure. I really would love to see you post your question on cpaptalk.com. Nobody ever gets missed, as near as I can tell, and everybody gets helped. We also have a chat room linked to the site, once you register, with informal chats. Number one priority is always to problem-solve is someone is needing it, but we do get a bit silly much of the time, which is good for the soul. <wink> My nickname is Girlsaylor over there also, if that helps. I'm just not real sure what's going on if you feel like you're suffocating. Girlsaylor > > 4a. CPAP and moisture - Sharon > Posted by: " jeribelle2000 " girlsaylor@... jeribelle2000 > Date: Sun Mar 16, 2008 10:21 am ((PDT)) > > Hi Sharon- > > Here's my invite to join cpaptalk.com. They help solve any and all > cpap problems to help you use that machine every night and reap its > benefits. First off, what kind of humidifier, and what kind of > machine are you using? If you have a machine that has a humidifier > integrated, both made by the same company, those don't deliver as > much humidification as a stand-alone humidifier. At this time, one of > the very best humidifiers on the market for cpap machines is the > Fisher & Packel HC150. Although having your humidifier sitting next > to your cpap machine on your nightstand doesn't look as nice as that > nifty integrated, smaller design, these new Fisher & Packel units > hold more of that pricey distilled water, so you're not likely to run > dry at night. Secondly, this particular humidifier reservoir is very > inexpensive to replace the reservoir, compared to those integrated > ones. These are true workhorsed, will outlast your machine. You'll > get more humidification from a F & P. Next, if you don't have one, > get yourself a hose cover for your hose, which will provide some > insulation and allow that warmed, moist air to really get to your > breathing passages. A hosecover will allow you to turn up the heat, > which translates into more humidity for those dried out sinus > passages. Those integrated humidifiers leak! In no time! Get thee > back to your DME provider and insist on a F & P please, while they > will swap it out, as soon as possible. Just tell them the integrated > one isn't giving out enough humidity or tell them it runs dry at > night, whatever, to get the best humidifier on the market. The F & P > has ambient tracking, which will also help with rainout. It's easy to > fill, with no danger of splashing water into the cpap machine, as its > separate. The only negative I can even think of is that it doesn't > fit into the cpap bags real well for travel. Minor inconvenience when > one thinks of all the benefits! > > Girlsaylor > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Okay thank you - I will look that site up. I have a new mask - it is auto delivered every 18 weeks I think. I was " saving " it so I have one spare LOL I'll try that tonight. Thank you! hugs and I don't know if I have all that stuff on my machine. I just know it is a resperonics unit and I don't think there is a removeable thing on it to download. jeribelle2000 wrote: I really don't know all that much about CPAP. But I've learned alot and continue to learn from the people on cpaptalk.com. They are all people with obstructive sleep apnea, and know all the little tricks to help people get the best therapy possible. My first question would be...do you have a fully-data-capable machine? That would be one that has a smart card that you can download into software on your computer and view statistics on apneas, hypopneas, mask leaks, and such? If you do, first thing is to download that data and post it on cpaptalk.com and ask for feedback. Barring that, how long since your last sleep study? If you've lost alot of weight, your pressure(s) may have changed, and most sleep docs would consider a new sleep study. If you have to pay much or all of the bill for a sleep study, some docs will write a prescription for you to have a night on an auto-titrating machine (from your DME), which then would be downloaded to see what pressure (s) were most effective. It's not a substitute for a sleep study, but sometimes docs will go that route. Another thought is, how long since you've replaced your mask? They do begin leaking over time, and if you don't have a good seal, that prevents your machine from delivering the prescribed pressure. I really would love to see you post your question on cpaptalk.com. Nobody ever gets missed, as near as I can tell, and everybody gets helped. We also have a chat room linked to the site, once you register, with informal chats. Number one priority is always to problem-solve is someone is needing it, but we do get a bit silly much of the time, which is good for the soul. My nickname is Girlsaylor over there also, if that helps. I'm just not real sure what's going on if you feel like you're suffocating. Girlsaylor > > 4a. CPAP and moisture - Sharon > Posted by: " jeribelle2000 " girlsaylor@... jeribelle2000 > Date: Sun Mar 16, 2008 10:21 am ((PDT)) > > Hi Sharon- > > Here's my invite to join cpaptalk.com. They help solve any and all > cpap problems to help you use that machine every night and reap its > benefits. First off, what kind of humidifier, and what kind of > machine are you using? If you have a machine that has a humidifier > integrated, both made by the same company, those don't deliver as > much humidification as a stand-alone humidifier. At this time, one of > the very best humidifiers on the market for cpap machines is the > Fisher & Packel HC150. Although having your humidifier sitting next > to your cpap machine on your nightstand doesn't look as nice as that > nifty integrated, smaller design, these new Fisher & Packel units > hold more of that pricey distilled water, so you're not likely to run > dry at night. Secondly, this particular humidifier reservoir is very > inexpensive to replace the reservoir, compared to those integrated > ones. These are true workhorsed, will outlast your machine. You'll > get more humidification from a F & P. Next, if you don't have one, > get yourself a hose cover for your hose, which will provide some > insulation and allow that warmed, moist air to really get to your > breathing passages. A hosecover will allow you to turn up the heat, > which translates into more humidity for those dried out sinus > passages. Those integrated humidifiers leak! In no time! Get thee > back to your DME provider and insist on a F & P please, while they > will swap it out, as soon as possible. Just tell them the integrated > one isn't giving out enough humidity or tell them it runs dry at > night, whatever, to get the best humidifier on the market. The F & P > has ambient tracking, which will also help with rainout. It's easy to > fill, with no danger of splashing water into the cpap machine, as its > separate. The only negative I can even think of is that it doesn't > fit into the cpap bags real well for travel. Minor inconvenience when > one thinks of all the benefits! > > Girlsaylor > ------------------------------------ 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Would you please share that C-Pap site? Thanks, Marla In a message dated 3/18/2008 8:02:59 A.M. Central Daylight Time, girlsaylor@... writes: , I'll look for you there. Oh, and forgot to tell you, it's got a sister site where people can list masks and cpap equipment for sale. Some is slightly used, some times one finds brand new equipment. Good place to go try out new masks for less than retail. I am one who has to pay for all my bipap supplies out of my own pocket. Good for you that supplies just arrive at your door. It's a huge expense otherwise. girlsaylor > > Okay thank you - I will look that site up. I have a new mask - it is auto delivered every 18 weeks I think. I was " saving " it so I have one spare LOL I'll try that tonight. Thank you! > hugs > > and I don't know if I have all that stuff on my machine. I just know it is a resperonics unit and I don't think there is a removeable thing on it to download. > **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 , I'll look for you there. Oh, and forgot to tell you, it's got a sister site where people can list masks and cpap equipment for sale. Some is slightly used, some times one finds brand new equipment. Good place to go try out new masks for less than retail. I am one who has to pay for all my bipap supplies out of my own pocket. Good for you that supplies just arrive at your door. It's a huge expense otherwise. girlsaylor > > Okay thank you - I will look that site up. I have a new mask - it is auto delivered every 18 weeks I think. I was " saving " it so I have one spare LOL I'll try that tonight. Thank you! > hugs > > and I don't know if I have all that stuff on my machine. I just know it is a resperonics unit and I don't think there is a removeable thing on it to download. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 It's www.cpaptalk.com Just register, and in the profile, it's helpful to list your machine make/model, your humidifier make/model, and your mask. For instance, I use a Respironics M series Bipap Auto machine, the F & P HC150 humidifier, and the Optilife Nasal pillow CPAP mask girlsaylor > > Would you please share that C-Pap site? > Thanks, > > Marla > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 I'm not sure I could use a used mask LOL. But I'll keep it in mind hugs jeribelle2000 wrote: , I'll look for you there. Oh, and forgot to tell you, it's got a sister site where people can list masks and cpap equipment for sale. Some is slightly used, some times one finds brand new equipment. Good place to go try out new masks for less than retail. I am one who has to pay for all my bipap supplies out of my own pocket. Good for you that supplies just arrive at your door. It's a huge expense otherwise. girlsaylor > > Okay thank you - I will look that site up. I have a new mask - it is auto delivered every 18 weeks I think. I was " saving " it so I have one spare LOL I'll try that tonight. Thank you! > hugs > > and I don't know if I have all that stuff on my machine. I just know it is a resperonics unit and I don't think there is a removeable thing on it to download. > ------------------------------------ 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Okay - I'm there as AZ jeribelle2000 wrote: It's www.cpaptalk.com Just register, and in the profile, it's helpful to list your machine make/model, your humidifier make/model, and your mask. For instance, I use a Respironics M series Bipap Auto machine, the F & P HC150 humidifier, and the Optilife Nasal pillow CPAP mask girlsaylor > > Would you please share that C-Pap site? > Thanks, > > Marla > > ------------------------------------ 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
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