fibro,hypersensitivity,add/adhd

[Guest guest]

hi christi,

i can probably find some links, but dr.teitlebaum's book, from

fatigue to fantastic, talks about the stimulants helping with the

fatigue and brain fog in fibro. the " rich doctor teitelbaum " who

lives in hawaii, must be nice to make money off sick people, does

have fibro and cfids, he had to drop out of ohio state university

medical school (where i was accepted) when his fibro/cfids flared for

the first time, and he said he was homeless. so he has spent his life

studying fibro/cfids, all the causes,triggers,treatments, medically

and supplementally. so i think his medical perspective is the most

comprehensive so far that i've read. i have no financial interest,

and he is the medical director of the national fibro & fatigue

centers around the usa, but i feel these clinics are thiefs.

another theory i read, maybe the university of michigan website, they

are researching things fibro patients are sensitive to, like levels

of sound. kindof archaic, in my opinion. i had to have all my walls

painted white and take down all my hanging pictures, any clutter at

all bothers me visually, so i feel that something going on in our

brains makes us hypersensitive to all/any stimulation whether it is

pain,noise,bright colors, whatever. this is consistent with us having

increased levels of that pain chemical-P we read about.

i also believe that when we are so painfull and fatigued, it is

impossible to focus and concentrate on anything. i am constantly

putting things that should go in the fridge into the cupboards,

stupid stuff like that. so some of these odd behaviors caused by

being so distracted by pain and disabling fatigue can make us appear

like we have add or adhd. and maybe, i will accept that dx in order

to get more meds like ritalin or adderall. but docs still won't write

scripts, because after we take these meds for a short while, i read

out brains make fewer of the receptor cells for dopamine, which is

why we need higher doses of the meds to get the same benefit.

i would like to read the links on fibro and add/adhd if anyone does

post them, too.

take care,

marg

>

> Rhonda,

>

> That is interesting on the connection between ADD and Fibro. I

have one son who is ADHD and the other is ADD. I myself am ADD, but

have learned coping mechanisims and do not have to take meds to help

me. My oldest is ADD, but has no insurance and HATES medication so

will take nothing. My youngest is ADHD and cannot take any of the

meds as he has the homicidal and suicidal side effects...wonderful

huh? Meds work for him, except for those pesky side effects. So he

is having to learn how to cope and function without the meds.

Anyway, sorry, got off on a tangent there. Do you have any research

that you could post a link to that I could read up on this

connection?

>

> Thanks

>

> Christi Randall

> www.singingwomenoftexas.com

[Guest guest]

>

> Marg,

When I get home after watching kids all day, I am super sensitive to

noise. If I get home and Mom is listening to the tv, (loud, she's deaf)

I have to go up to my room and close the door and just be alone in the

quiet for awhile. It does really bother me...a lot.

/Mi