Re: hi every1 Debi in UK

[Guest guest]

Hi Debi I understand the not making appt.due to lack of sleep. I have that

for so many yrs now and has gotten worse in recent yrs. The running to appt's,

labs, test, wears me out more then the disease itself. I myself after trying

most of what is out there,that my Dr. has tried me on they are very supportive

to believing in Fibro, understanding it, and believing in me, my symptoms etc.,

but they I understand also have to cover themselves, and have me come in q 3 mo,

do any needed tests to rule out other possible disease, illness etc., so they

are within there guidelines, and don't get into trouble with the higher ups. I

am on Soma x 3 a day, diazapam 1-2 HS,prn, vicodin ES q 6 hrs prn, but this has

been q 6hrs for a long time now, I have tried to wait it out but I quickly get

in severe pain in to many areas if I don't take it regular, and since I now have

developed being in pain also through the night, it wakes me up and can't move to

change position so I now have

had to use oxcycodone prn, because the vicodin if I take through the night

keeps me awake and I need to sleep which I was given ambien, prn, and this won't

knock me out either!, I have been on every sleep aide OTC and RX and have

battled with no sleep most nights for yrs about 20 now, this will kill me

quicker I think then the long term use of pain meds, or the sleep apnea,

hypothyroid etc. It is a trial and error with each one of us. I do see though

alot of the members have found that the vicodin has been there real helper when

coming to bad pain. I too am now suppose to think about going to Fibro Center

there is one in Boston, which is a commute for me, I don't like that place at

all, would never drive there, and the train and subways make me anxious., so I

don't know how I tell them I think not, I also am suppose to go to Ortho and

possible get injection in my sacreilliac SP, OUCH, but would like to get some

relief of this pain on RT side. I don't know, there are a

few other things I am suppose to do before I see my DR. again next mo., and

have not made the calls for appt;s yet. the weather here is cold, and now snow

again tonight!, this has me not wanting to go out and the commute for me to

these places right now is 3 hrs! Whee in the UK are you?, do they not have

alot more TX's to offer there? I thought there might be easier to get a better

treatment. Hope this helps and welcome back on. I am a newer mem. only since

Feb. Hope you some relief

Sharon

debial05 wrote:

hi all iv not posted for ages my names debi im living in uk

i was too go on a drugs program for fybro but had too come off my

meds for 3 weeks be4 trying new 1 but i didnt go as i get no sleep too

start with so i refused im going too see my jp this week as the meds im

on are no good driving me crazy all this pain and numbness wat meds did

any of you find most effective

debi

[Guest guest]

Hi Debi I understand the not making appt.due to lack of sleep. I have that

for so many yrs now and has gotten worse in recent yrs. The running to appt's,

labs, test, wears me out more then the disease itself. I myself after trying

most of what is out there,that my Dr. has tried me on they are very supportive

to believing in Fibro, understanding it, and believing in me, my symptoms etc.,

but they I understand also have to cover themselves, and have me come in q 3 mo,

do any needed tests to rule out other possible disease, illness etc., so they

are within there guidelines, and don't get into trouble with the higher ups. I

am on Soma x 3 a day, diazapam 1-2 HS,prn, vicodin ES q 6 hrs prn, but this has

been q 6hrs for a long time now, I have tried to wait it out but I quickly get

in severe pain in to many areas if I don't take it regular, and since I now have

developed being in pain also through the night, it wakes me up and can't move to

change position so I now have

had to use oxcycodone prn, because the vicodin if I take through the night

keeps me awake and I need to sleep which I was given ambien, prn, and this won't

knock me out either!, I have been on every sleep aide OTC and RX and have

battled with no sleep most nights for yrs about 20 now, this will kill me

quicker I think then the long term use of pain meds, or the sleep apnea,

hypothyroid etc. It is a trial and error with each one of us. I do see though

alot of the members have found that the vicodin has been there real helper when

coming to bad pain. I too am now suppose to think about going to Fibro Center

there is one in Boston, which is a commute for me, I don't like that place at

all, would never drive there, and the train and subways make me anxious., so I

don't know how I tell them I think not, I also am suppose to go to Ortho and

possible get injection in my sacreilliac SP, OUCH, but would like to get some

relief of this pain on RT side. I don't know, there are a

few other things I am suppose to do before I see my DR. again next mo., and

have not made the calls for appt;s yet. the weather here is cold, and now snow

again tonight!, this has me not wanting to go out and the commute for me to

these places right now is 3 hrs! Whee in the UK are you?, do they not have

alot more TX's to offer there? I thought there might be easier to get a better

treatment. Hope this helps and welcome back on. I am a newer mem. only since

Feb. Hope you some relief

Sharon

debial05 wrote:

hi all iv not posted for ages my names debi im living in uk

i was too go on a drugs program for fybro but had too come off my

meds for 3 weeks be4 trying new 1 but i didnt go as i get no sleep too

start with so i refused im going too see my jp this week as the meds im

on are no good driving me crazy all this pain and numbness wat meds did

any of you find most effective

debi