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RE: Very angry Tigger

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Oh I understand you needing higher dose, I do to and I did not have the

gastric bypass, I have always had this, even included having to take a high high

dose of coumadin, back when I had a PE. I almost didn't get out of the hospital

and they were very worried when I did, as I was released only after they were

able to get the coumadin at a theraputic level at 12mg which you may might now,

about is a very dangerous high dose. Most take 2.5 -5mg at most. But for some

reason everything is in big dose, I am on 40mg of Rx prilosec,x2 day also

unusual but wasn't working so gastro kept upping. As 1 bro said to me once how

come you always have end up with the not norm things, it is true, starting from

young. And would one like to want to take this much of this bet your Dr's who

are being unfair, would think I was looking to get high to huh? Unbeliveable,

they ought to never mind whether your high or not and know your condition is

real and just give you what you need,

they need to trust you, and if they felt it was to much talk to you and work

something out, I am glad there are still a few Dr's that believe in not letting

us be in pain, this is why I don't want to give up my Ma. Dr's. I would be a

woos if I had to go cold turkey again with this amt of pain all the time again,

I was alot younger when I use to just push through it and believe I didn't need

any help with managing the pain, never asked, and I believe my children lost out

on having a better mom while they grew, as my ex there father was gone over the

road driving truck all the time and only me to run all, I was able to provide

meals, keep in school as they had to be driven and did a few school functions

with them and this was it the rest was in bed, or crying not knowing then why I

was in so much pain and tired all the time. I wish you could get someone to

help relieve the pain. Take Care Sharon

The simple answer is that doctors are idiots. They seem to think

everyone

out there wants to get high. For the record, I don't get high from any of

the pain meds, but I do need higher doses because of my gastric by-pass and

they refuse to listen to that. So, guess who suffers?... Me.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of sharon

studley

Sent: Tuesday, March 18, 2008 2:37 PM

To: Fibromyalgia_Support_Group

Subject: RE: Very angry Tigger!!

Hey there, Why won't they prescribe Med?, This is much better then the

handfulls of OTC slot of tried before going on the RX's. Is the far away Dr.

able to call your new Dr. and at least tell them you are for real and need

something to give you a break of the pain. I understand I think you are

saying it is hard for you to get prescribed because of Gastric Bypass?, but

my good friend who is a RN is on it for knee pain. Is this what started your

life threatening issue results from post surgery?, because this friend also

had a close call, her Dr, would not believe she was not ready for discharge

and something was wrong and he signed her out, we had to call 911 within 1

hr of getting her home. I wish we lived closer so I could come and help you

while suffering. Sharon

Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

@gmail.com> wrote: Sharon,

Trust me, I know the problems from Advil. About 10 years ago I had 3 ulcers

because I was taking it so much for sinus problems. I've had gastric-by

pass, and it is even more dangerous for me now, but since the butthole

doctors won't help, I have to do what I can. Luckily, I'm out of Advil and

am too sick to go to the store (feels like flu, could be flare).

I get very poor care of my pain issues. My old doctor who is really too far

away for me to drive to when I'm sick, was a Goddess in my opinion. She

treated me and my pain with reality and sincerity. If I said I was in pain,

she knew I was in pain. More than once I sat in her office in tears.

Unfortunately my current doc and I haven't had time to build that kind of

relationship. and I'm not sure we ever will.

Back to the Advil. I can't get a script for pain med, so I use what I have

to and will have to worry about the consequences later and follow up with a

huge I TOLD YOU SO.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group

[mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group ] On Behalf Of sharon

studley

Sent: Tuesday, March 18, 2008 6:39 AM

To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group

Subject: RE: Very angry Tigger/Sharon Tigger!!

Tigger you be careful with to much advil, I earlier posted on my dad who

took Advil for pain, as he did not want to take RX Dr. said to use as he was

in real bad pain needed knee replacement and would not give in to take time

off from work, that must be where I got my stubbroness, he wanted to wait

out until retirement, and still after that he waited 4 more years!, Anyway

used advil, stomach started bleeding had a bleed out, and I say his troubles

started from there, he went into hosp. stopped bleed, but then it would come

back, seemed to be when highly stressed. But the advil was the begining of

his stomach bleed, he should of taken his RX instead, this is why I say to

the good drug bad drug they all have there potential trouble. Hope your

feeling better about your bro mis-treating you. I just say they don't know

any better. Shoot even the dieing is taked amongst people now a day and if

that has to be stiffled, I would really feel for that person as it has been

what

that person wants to talk about before leaving this planet. Take Care Hope

lighter days, Don't take to many advil since it bothers your stomach this

worries me. Sharon

Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

@gmail.com> wrote:

Thank Sharon.

I thought he understood more, but he doesn't. Unfortunately, this is a

disease that DOES describe who you are because it is with you 24 hours a

day. I want some relief from my pain. Advil has been the best so far but

rots my stomach out. I think the frozen shoulder is going to become a " cold

shoulder " for a little while. I'm well enough now to take care of certain

things on my own. I won't ask for anything. my pride does get in the way.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group@ <mailto:Support_Group%40yahoogroups.com> yahoogroups.com

[mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group@ <mailto:Support_Group%40yahoogroups.com> yahoogroups.com] On

Behalf Of sharon

studley

Sent: Sunday, March 16, 2008 11:27 PM

To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group@ <mailto:Support_Group%40yahoogroups.com> yahoogroups.com

Subject: RE: Very angry Tigger

Hey- Tigger I am deeply sorry your brother treated you that way. That in my

mind was completly uncalled for. Geez he acted like you were sitting there

telling people you had a case of crabs or something. What the heck??? First

I have to say maybe if they would look up the word fibromyalgia now there is

a case load of info on it and the numerous symptoms one can have, second

frozen shoulder is almost as painfull as delivering a baby! U know I had the

rotar cuff surgeries 2 yrs ago and it was painfull enough but when first

developed the symptom on first shoulder they sent me right away to ortho

because the PCP was afraid I was getting frozen shoulder and she said that

was something I would not want as if not caught and TX before completley

frozen it would not be fixable and also said it was the most painfull thing

you could have. Now I am sure this is got your fibro flaring as I understand

by my Rhuemiie and have found out any added injury, surgery, and slight

things

we don't think about can cause the area injured to hurt 3x's over because

the disease has sunk it's teeth into it also, they call it exaggerated pain,

but it is REAL. I feel bad you got yourself up and out and over there and

then he says that. What was he thinking you can't talk about your illness

around others. He does need to brush up on his reading on being more

sensitive to someone not well, and be more sympathetic to how bad you can be

feeling and gratefull he was worth going to see. Hope you can just do as you

say back off, and forget about him for now as you need to get that shoulder

better, and understand it is just another statement from someone

enexperienced, Take care hope your better tomm. I hope I will sleep now had

to try an ambien. Probably will be up at 3a take care Sharon

Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

@gmail.com> wrote: Thanks Lori,

I think I'm going to step back for awhile. I can't handle this anymore. I

can't pretend that life is hunky-dorey when, in fact, I'm in agony. I've

had enough.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group@ <mailto:Support_Group%40yahoogroups.com> yahoogroups.com

[mailto:Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group@ <mailto:Support_Group%40yahoogroups.com> yahoogroups.com] On

Behalf Of Lori Hammer

Sent: Sunday, March 16, 2008 10:11 PM

To: Fibromyalgia_ <mailto:Fibromyalgia_Support_Group%40yahoogroups.com>

Support_Group@ <mailto:Support_Group%40yahoogroups.com> yahoogroups.com

Subject: Re: Very angry

I am so sorry. My mother does that to me at family gatherings in front of

everyone at tehtable.So I do not talk period.

lori H

Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

@gmail.com> wrote:

I went to my brother's house for corned beef and cabbage (St. Paddy's Day)

and we had a decent time. Unfornately, I woke up not feeling that well.

After everyone left my brother sat down and told me I can't talk about my

illness in a " party " setting. I'm so f-ing sick of it all. I thought he

had some idea, but he doesn't. He thinks he does, but he doesn't have a

clue. In addition to feeling kind of sick, I was in a great deal of pain.

especially that frozen shoulder.

I've been crying for hours now and don't know what to do. I think I'm going

to just stay clear of him until my anger subsides. I actually told him that

I wish he could feel my pain for a day and then he'd feel differently.

I'm just so sick of it all!

Tigger (Ruth) in Rhode Island

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