Debra V

[Guest guest]

*Nice to hear from you sweetie. I am behind also, so I understand. warm and

sunny here today. I may even venture outside after I nap. This fatigue is

catching up with me. Guess it is my body fighting off this infection? Hope

you start feeling better also my friend.*

*Big hugs,*

* VH*

On Thu, Mar 20, 2008 at 12:56 PM, debra van ness

wrote:

> Just wanted to say I am still around. I just have been very behind on the

> email. Still think of you all and will try to find time soon to really sit

> down and read here.

>

> Just another day here. Weather is on and off cold and hot. (cool

> today.... and my pain level is up also). Gotta drag into work. I suppose I

> could consider myself almost lucky because my job is really fairly laid back

> for a nursing job. It is not nearly as stressful as most jobs I have had.

> So, for that, I can be thankful.

>

> Well, love and hugs to all of you from the heart.

>

> Debra V.

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

Debra

I hear you on that. I have been off on leave,as new symptoms have set

in and I had 3 horrible horrible days and nights.The pain was bad, but then came

the RLS,RDS, and my whole body went into RS type jerking, the harder I tried to

sleep the worse it got, so had to shake body parts to keep that feeling from

stopping. It is outrageous huh. Now I have my neuropathy setting a spell I

guess, never felt it like this though, as you had mentioned, my lft foot is

burning, cold like it is frost bitten, and pain all at once! Nothing helping at

all. Though I had tried to stop the pain meds for a couple days, and kept up my

water trying to detoxify a little, this is the resutls!, now I can't get rid of

the foot thing, I had 2 soxs on it, a slipper heat pad, and still feeling is

cold, yet not cold to touch, color good, pulse alright.???? I just know this

is like you say something all that doubt us, should experience for a 24 hr

period, then come see us again, And how

about us that had to raise children, work a FT job cook, clean, mend, shop etc

with this? I do ?? though the thought that this whole site is all overweight

members, where did that come from??? I am not, and not bragging, but I never

paid attention did I miss that people posting like a WW group?? Anyway doesn't

matter what size we are, we all are the real deal, we all have different levels

of capabilities, and non with this disease. I don't like the commercial either,

but if you listen to the RX side effects it puts it in a better aspect, as look

how scary they are, and this is our choice?, well my opion on it is if we have

to go to that kind of a med, some should realize this is real. Also she is thin,

and the ?? came up how could she be suffering with muscle pain, well my legs are

the thinnist part of me, and the calf muscle are shot, I have always been a avid

walker miles, since young, and they are gone, mush, hurting all the time, but it

is more than that lady says

Tender to the Touch?, no SCREAMing to the touch. Am I wrong there? I only wish

something would come up better, explaining that this is not a simple disease,

one uses to be lazy, sit on there ass, because they have been diagnoised, it

gets pretty darn uncomfortable sitting, laying and shuffling, most of the time.

For those of you who continue struggling to work because you want to, I say you

better plan well, balance your time, as you never expect to be put out, and most

of us work to a demanding level. Those that need to work, I wish you didn't

because I know you are having to push your body past it's limits, I did, and I

crashed. So remember this disease may be treating some lightley, and you think

you don't have to heed things you do, but I do believe you need to go lightly as

much as you can with things.. After all my mom's neighbor has this disease has

had it 30yrs, she is now almost 90 yrs old and it is the days she still deals

with this disease she told my mom

she has thought of suicide, not because of her age.

Debra I hope you are having a lighter time, but sorry if not, we got dumped

with 3-4 inch of snow yesterday so now I believe I am also feeling what

depression is, this yeckky feeling came on last night, and anxiety with it, I am

really begining to worry about alot of things, and it is probably because I have

been couped up, and my husband's job has not started back on time, and usually I

am working to kick in when this happens! My consentration is out the window,

etc. Sound like a bit of depression to anyone? Take Care Debra

Wishing you a better day anyway.

Sharon

The next person that says you don't have pain and it is all in your

head.... tell them to just try for one day to " imagine " that someone beat them

with a board and try try with all their might to MAKE their body hurt with just

the thought. IT WONT HAPPEN. We do not have to ability to create pain with our

thoughts. BS. Tell them to sit there and visualize and imagine they have pain in

their big toe or something.... I will bet they can't MAKE it hurt unless they

hit it with something. (or unless they have fibro... then they don't need to try

to make pain happen).

OK...if it is created by my thoughts, then by all means I want them to " think "

themselves into the pain we suffer everyday and see if it happens.

Debra V.

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