Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Hello, I'm 37 and living in Louisville, KY US and was diagnosed late last year after suffering begining just over a year ago. My rhumetoligist sent me to another DR that specilizes in Fibro (Healing Options is the name of the office) and we're still finding a balance. Still have to have hydrocodone for the spikes in pain during the day. Also taking Lyrica (300mg day) Cymbalta (60mg/d) and Ambien (20mg/n) to sleep along with supplements for Adrenals, DHEA, vitamin D, and testosterone. Also doing hydro therapy. Started in my left hand, diagnosed as carpal tunnel til a nerve induction test showed no narrowing of the bridge. Soon it was in my right hand too, then feet, hips and back. Had several rounds of cortizone pills til the diagnosis... horrible side effects and eventually little effect/duration of pain management. Dr says it's the stress/trauma that started it all along with some other triggers. 'Severly' sensitive in 17 of the 18 points. Though the nice (young) assistant/RN feels I'll be 100% back to normal... I'm not so sure, but it's no where near as bad now as it was (could barely walk for a couple of months). Side effects I'm dealing with is coated tounge (everything just doesn't taste right) and some loss of smell. Strange body odor/sweat and that's about it. Off to the Dr here in a few hours. Now have TMJ with it (clenching teeth because of the pain) so have to figure out how to get that helped. Also to ask about disability. Have aunt diagnosed with it (and supposedly every other person in her office as well) who calls it 'normal aches and pains of living' and that I should 'get over it'. Only sister felt the same way about it til she saw how bad it could be. Mum diagnosed with rhumetoid arthritis (caught it early in the process so prevented a lot of damage to her system) a year before so she totally understands. Looking forward to other perspectives about how to deal with it. This actually took me about 50 mins to write and post. Can't stick at the keyboard long on even medium days before things start feeling like I'm being stabbed into the keyboard or desk. *Wave* Tom P.S. Can't get away without mentioning I love kilts, and my 2 boys and wifey. So this was more of the medical intro and not the craziness I live with. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 > > Hello, > > I'm 37 and living in Louisville, KY Hi Tom, Welcome to our group of sickies!!! I think you will like it here, lots of info and support. /Mi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 > > > > Hello, > > > > I'm 37 and living in Louisville, KY > > > Hi Tom, Welcome to our group of sickies!!! I think you will like it > here, lots of info and support. > /Mi >Hello I am from Buffalo just wanted to say hello and welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Hello, I am new to the board as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Hello Missy, I am just getting started answering to the messages, they were right though, the number of mail is outstanding ! Hope to talk to you soon. Pam missy8632 wrote: Hello, I am new to the board as well. --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Hi Missy - welcome Jump right in - the water's fine! LOL missy8632 wrote: Hello, I am new to the board as well. ------------------------------------ 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Re: Re: Saluations Hi Missy - welcome Jump right in - the water's fine! LOL missy8632 wrote: Hello, I am new to the board as well. Hi Missy, Welcome 2 group. Hope it helps. Jodi M. ------------------------------------ 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
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