Support Group for Parents of Adults

[Guest guest]

Sorry for off topic, butting in, is there a florida group for parents of adults?? I need a group that have the same thing in common on line like this list! Thanks, liaSent via BlackBerry by AT&T

Sender: sList

Date: Thu, 3 Mar 2011 15:09:05 -0500To: <sList >ReplyTo: sList

Subject: RE: Re: ABA Therapy, CMS will no longer cover it

We should all be very concerned about this. As you may know,

the State legislature is considering all sorts of proposals for reducing the

budget deficit, particularly in Medicaid funded programs. The CMS Title 21 is

currently the only Medicaid funded option that covers ABA. Without this option,

we are once again left with only a few being able to access this valuable

service – those who are strong enough financially to be able to pay out of

pocket and the 14% of Floridians whose insurance qualifies under the Autism

Mandate. It’s important that we speak up. I suggest you not only contact your CMS

office, but also your State representative, Senators, and the Governor, and let

them know how this funding cut back would affect you personally.

Silvia

Silvia Marussich-Starin MSW

Ext. 23

Director of Operations

Behavior Analysis, Inc., and

Behavior Analysis and Therapy, Inc.

8001 SW 36 Street, Suite # 9, Davie, FL 33328

www.behavior-analysis.org

This message may contain confidential information. Unauthorized use

or disclosure is prohibited.

From: sList

[mailto:sList ] On Behalf Of

Sent: Wednesday, March 02, 2011 5:04 PM

To: sList

Subject: Re: Re: ABA Therapy, CMS will no longer cover it

I spoke to univ of Miami yesterday and they didn't inform

me of the cancellation of ABA. Guess we are in a waiting period.

It's possible you didn't speak to the right person. Iam counting on it.

Subject: Re: ABA Therapy, CMS will no longer cover it

To: sList

Date: Friday, February 25, 2011, 12:12 PM

I have bad news for those who

have CMS TItle 21 and were hoping to get ABA therapy. I called yesterday the

number on the back of the card (for Mental Health providers)and they informed

me that same morning they had received a MEMO stating CMS will no longer

cover ABA. They don't know yet exactly on what date they will stop coverage

though. So unless something changes, this is what the future is holding for

CMS title 21 holders.... Ida

> >

> > CMS (through Medicare) does not cover ABA, only Title 21 CMS covers

ABA. Insurance companies do cover ABA if you are from a large group policy.

As far as I have been able to tell, public schools in FL do not have ABA

trained staff to implement the programs. Some private schools do offer ABA

and they also accept McKay. If you want or need your child to get ABA while

at school then you will have to go the private school route.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ABA Therapy

> >

> >

> >

> >

> >

> > I have been hearing alot about ABA therapy lately and I am trying

get better educated about it for my son who is in a Broward EH cluster in 4th

grade and needs additional behavior interventions. Is this something that the

public school offers, McKay and Charter schools, or is it something that is

only available from private practitioners? Can it be written into an IEP if

the public schools offer it? And, I'm guessing the health insurance companies

don't cover it. We don't have MedWaiver but we have CMS.

> >

>

[Guest guest]

I have a son who is 18... & I am working on licensure for day program since I too was not successful with locating relevant parent group or appropriate resources for Young adults...so I will be happy to connect with you ;-)

From: evnrpr@...Sent: Thursday, March 03, 2011 4:48 PMTo: sList Subject: Support Group for Parents of Adults

Sorry for off topic, butting in, is there a florida group for parents of adults?? I need a group that have the same thing in common on line like this list! Thanks, lia

Sent via BlackBerry by AT & T

Sender: sList

Date: Thu, 3 Mar 2011 15:09:05 -0500

To: <sList >

ReplyTo: sList

Subject: RE: Re: ABA Therapy, CMS will no longer cover it

We should all be very concerned about this. As you may know, the State legislature is considering all sorts of proposals for reducing the budget deficit, particularly in Medicaid funded programs. The CMS Title 21 is currently the only Medicaid funded option that covers ABA. Without this option, we are once again left with only a few being able to access this valuable service – those who are strong enough financially to be able to pay out of pocket and the 14% of Floridians whose insurance qualifies under the Autism Mandate. It’s important that we speak up. I suggest you not only contact your CMS office, but also your State representative, Senators, and the Governor, and let them know how this funding cut back would affect you personally.

Silvia

Silvia Marussich-Starin MSW

Ext. 23

Director of Operations

Behavior Analysis, Inc., and

Behavior Analysis and Therapy, Inc.

8001 SW 36 Street, Suite # 9, Davie, FL 33328

www.behavior-analysis.org

This message may contain confidential information. Unauthorized use or disclosure is prohibited.

From: sList [mailto:sList ] On Behalf Of Sent: Wednesday, March 02, 2011 5:04 PMTo: sList Subject: Re: Re: ABA Therapy, CMS will no longer cover it

I spoke to univ of Miami yesterday and they didn't inform me of the cancellation of ABA. Guess we are in a waiting period. It's possible you didn't speak to the right person. Iam counting on it.

Subject: Re: ABA Therapy, CMS will no longer cover itTo: sList Date: Friday, February 25, 2011, 12:12 PM

I have bad news for those who have CMS TItle 21 and were hoping to get ABA therapy. I called yesterday the number on the back of the card (for Mental Health providers)and they informed me that same morning they had received a MEMO stating CMS will no longer cover ABA. They don't know yet exactly on what date they will stop coverage though. So unless something changes, this is what the future is holding for CMS title 21 holders.... Ida> >> > CMS (through Medicare) does not cover ABA, only Title 21 CMS covers ABA. Insurance companies do cover ABA if you are from a large group policy. As far as I have been able to tell, public schools in FL do not have ABA trained staff to implement the programs. Some private schools do offer ABA and they also accept McKay. If you want or need your child to get ABA while at school then you will have to go the private school route. > > > > > > > > > > > > > > > > > > > > ABA Therapy> > > > > > > > > > > > I have been hearing alot about ABA therapy lately and I am trying get better educated about it for my son who is in a Broward EH cluster in 4th grade and needs additional behavior interventions. Is this something that the public school offers, McKay and Charter schools, or is it something that is only available from private practitioners? Can it be written into an IEP if the public schools offer it? And, I'm guessing the health insurance companies don't cover it. We don't have MedWaiver but we have CMS.> >>

[The entire original message is not included.]

[Guest guest]

Honestly I haven't stopped crying thinking about this. My son is 13 and I'm even debating about dropping him out of school @ 16 because I feel everyone is preparing him for an adult day care such as places like Lucanus. This is not the type of enviornment that I want for my son. Something has to change. I'm sorry call me delusion but I expect more. But there is nothing else out there in this state. I don't know if anyone has seen the movie which is a documentary about a sibling of a famous actress in france. It documents how a high function child became a low functioning adult due to her enviornment. How heavily medicated she was throughout the day. Our kids which were born around the years of 1998 and 2001 are feeling the pressures of how is our child going to fit in the comunity. Though the resources are horrific. Staff members not educated and no one really cares. Where are the people who care about our kids to help them succeed in this world. And just because you say non for profit does it have any justice on what they do. Cat aka enzos momConnected by MOTOBLUR™ on T-Mobile ABA Therapy> > > > > > > > > > > > I have been hearing alot about ABA therapy lately and I am trying get better educated about it for my son who is in a Broward EH cluster in 4th grade and needs additional behavior interventions. Is this something that the public school offers, McKay and Charter schools, or is it something that is only available from private practitioners? Can it be written into an IEP if the public schools offer it? And, I'm guessing the health insurance companies don't cover it. We don't have MedWaiver but we have CMS.> >> [The entire original message is not included.]

[Guest guest]

Hello, please let me know where u r located! LiaSent via BlackBerry by AT&TSender: sList Date: Fri, 4 Mar 2011 09:51:28 -0500To: <sList >ReplyTo: sList Subject: RE: Support Group for Parents of Adults

Honestly I haven't stopped crying thinking about this. My son is 13 and I'm even debating about dropping him out of school @ 16 because I feel everyone is preparing him for an adult day care such as places like Lucanus. This is not the type of enviornment that I want for my son. Something has to change. I'm sorry call me delusion but I expect more. But there is nothing else out there in this state. I don't know if anyone has seen the movie which is a documentary about a sibling of a famous actress in france. It documents how a high function child became a low functioning adult due to her enviornment. How heavily medicated she was throughout the day. Our kids which were born around the years of 1998 and 2001 are feeling the pressures of how is our child going to fit in the comunity. Though the resources are horrific. Staff members not educated and no one really cares. Where are the people who care about our kids to help them succeed in this world. And just because you say non for profit does it have any justice on what they do. Cat aka enzos momConnected by MOTOBLUR™ on T-Mobile ABA Therapy> > > > > > > > > > > > I have been hearing alot about ABA therapy lately and I am trying get better educated about it for my son who is in a Broward EH cluster in 4th grade and needs additional behavior interventions. Is this something that the public school offers, McKay and Charter schools, or is it something that is only available from private practitioners? Can it be written into an IEP if the public schools offer it? And, I'm guessing the health insurance companies don't cover it. We don't have MedWaiver but we have CMS.> >> [The entire original message is not included.]

[Guest guest]

I am located in pompano beach... & also exploring locations in/near that area for opening a quality day training program ;-) where are you located?

From: evnrpr@...Sent: Friday, March 04, 2011 12:28 PMTo: sList Subject: Re: Support Group for Parents of Adults

Hello, please let me know where u r located! Lia

Sent via BlackBerry by AT & T

Sender: sList

Date: Fri, 4 Mar 2011 09:51:28 -0500

To: <sList >

ReplyTo: sList

Subject: RE: Support Group for Parents of Adults

Honestly I haven't stopped crying thinking about this. My son is 13 and I'm even debating about dropping him out of school @ 16 because I feel everyone is preparing him for an adult day care such as places like Lucanus. This is not the type of enviornment that I want for my son. Something has to change. I'm sorry call me delusion but I expect more. But there is nothing else out there in this state. I don't know if anyone has seen the movie which is a documentary about a sibling of a famous actress in france. It documents how a high function child became a low functioning adult due to her enviornment. How heavily medicated she was throughout the day. Our kids which were born around the years of 1998 and 2001 are feeling the pressures of how is our child going to fit in the comunity. Though the resources are horrific. Staff members not educated and no one really cares. Where are the people who care about our kids to help them succeed in this world. And just because you say non for profit does it have any justice on what they do. Cat aka enzos momConnected by MOTOBLURâ„¢ on T-Mobile ABA Therapy> > > > > > > > > > > > I have been hearing alot about ABA therapy lately and I am trying get better educated about it for my son who is in a Broward EH cluster in 4th grade and needs additional behavior interventions. Is this something that the public school offers, McKay and Charter schools, or is it something that is only available from private practitioners? Can it be written into an IEP if the public schools offer it? And, I'm guessing the health insurance companies don't cover it. We don't have MedWaiver but we have CMS.> >>

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Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (17) [The entire original message is not included.]

[Guest guest]

...don't drop out..focus on getting the right IEP goals for son, which will keep school on the right track.... & Also stay in touch..since I hope to have a quality enriching day program open for our young adults soon ;-)

From: MilianSent: Friday, March 04, 2011 9:51 AMTo: sList Subject: RE: Support Group for Parents of Adults

Honestly I haven't stopped crying thinking about this. My son is 13 and I'm even debating about dropping him out of school @ 16 because I feel everyone is preparing him for an adult day care such as places like Lucanus. This is not the type of enviornment that I want for my son. Something has to change. I'm sorry call me delusion but I expect more. But there is nothing else out there in this state. I don't know if anyone has seen the movie which is a documentary about a sibling of a famous actress in france. It documents how a high function child became a low functioning adult due to her enviornment. How heavily medicated she was throughout the day. Our kids which were born around the years of 1998 and 2001 are feeling the pressures of how is our child going to fit in the comunity. Though the resources are horrific. Staff members not educated and no one really cares. Where are the people who care about our kids to help them succeed in this world. And just because you say non for profit does it have any justice on what they do. Cat aka enzos momConnected by MOTOBLURâ„¢ on T-Mobile ABA Therapy> > > > > > > > > > > > I have been hearing alot about ABA therapy lately and I am trying get better educated about it for my son who is in a Broward EH cluster in 4th grade and needs additional behavior interventions. Is this something that the public school offers, McKay and Charter schools, or is it something that is only available from private practitioners? Can it be written into an IEP if the public schools offer it? And, I'm guessing the health insurance companies don't cover it. We don't have MedWaiver but we have CMS.> >>

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Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (16)

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[Guest guest]

Hi we have a home in santa rosa beach outside of destin in panhandle! I grew up in fort walton beach! We live in PA but want to come home! We come down a few times a year! My whole family is there as well as my husbands! I look for services but have no luck! Not much better in pa! What r your thoughts ? LiaSent via BlackBerry by AT&TSender: sList Date: Fri, 4 Mar 2011 21:32:46 -0500To: <sList >ReplyTo: sList Subject: RE: Support Group for Parents of Adults I am located in pompano beach... & also exploring locations in/near that area for opening a quality day training program ;-) where are you located?From: evnrpr@...Sent: Friday, March 04, 2011 12:28 PMTo: sList Subject: Re: Support Group for Parents of Adults Hello, please let me know where u r located! LiaSent via BlackBerry by AT & T Sender: sList Date: Fri, 4 Mar 2011 09:51:28 -0500To: <sList >ReplyTo: sList Subject: RE: Support Group for Parents of Adults Honestly I haven't stopped crying thinking about this. My son is 13 and I'm even debating about dropping him out of school @ 16 because I feel everyone is preparing him for an adult day care such as places like Lucanus. This is not the type of enviornment that I want for my son. Something has to change. I'm sorry call me delusion but I expect more. But there is nothing else out there in this state. I don't know if anyone has seen the movie which is a documentary about a sibling of a famous actress in france. It documents how a high function child became a low functioning adult due to her enviornment. How heavily medicated she was throughout the day. Our kids which were born around the years of 1998 and 2001 are feeling the pressures of how is our child going to fit in the comunity. Though the resources are horrific. Staff members not educated and no one really cares. Where are the people who care about our kids to help them succeed in this world. And just because you say non for profit does it have any justice on what they do. Cat aka enzos momConnected by MOTOBLURâ„¢ on T-Mobile ABA Therapy> > > > > > > > > > > > I have been hearing alot about ABA therapy lately and I am trying get better educated about it for my son who is in a Broward EH cluster in 4th grade and needs additional behavior interventions. Is this something that the public school offers, McKay and Charter schools, or is it something that is only available from private practitioners? Can it be written into an IEP if the public schools offer it? And, I'm guessing the health insurance companies don't cover it. We don't have MedWaiver but we have CMS.> >> [The entire original message is not included.] Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (17) [The entire original message is not included.]

[Guest guest]

Autism Society Emerald Coast might be a good resource for you if you are in the

area near Destin. Their site is: http://www.ecautismsociety.com/resources

The CARD center has a site also: http://autism.fsu.edu/

Glenda

> > >

> > > CMS (through Medicare) does not cover ABA, only Title 21 CMS covers ABA.

Insurance companies do cover ABA if you are from a large group policy. As far as

I have been able to tell, public schools in FL do not have ABA trained staff to

implement the programs. Some private schools do offer ABA and they also accept

McKay. If you want or need your child to get ABA while at school then you will

have to go the private school route.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ABA Therapy

> > >

> > >

> > >

> > >

> > >

> > > I have been hearing alot about ABA therapy lately and I am trying get

better educated about it for my son who is in a Broward EH cluster in 4th grade

and needs additional behavior interventions. Is this something that the public

school offers, McKay and Charter schools, or is it something that is only

available from private practitioners? Can it be written into an IEP if the

public schools offer it? And, I'm guessing the health insurance companies don't

cover it. We don't have MedWaiver but we have CMS.

> > >

> >

>

>

> [The entire original message is not included.]

>

> Reply to sender | Reply to group | Reply via web post | Start a New Topic

> Messages in this topic (17)

> [The entire original message is not included.]

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[Guest guest]

Hello am hooked with them nothing going on! LiaSent via BlackBerry by AT&TSender: sList Date: Sun, 06 Mar 2011 05:07:43 -0000To: <sList >ReplyTo: sList Subject: Re: Support Group for Parents of Adults Autism Society Emerald Coast might be a good resource for you if you are in the area near Destin. Their site is: http://www.ecautismsociety.com/resourcesThe CARD center has a site also: http://autism.fsu.edu/Glenda--- In sList , evnrpr@... wrote:>> Hi we have a home in santa rosa beach outside of destin in panhandle! I grew up in fort walton beach! We live in PA but want to come home! We come down a few times a year! My whole family is there as well as my husbands! I look for services but have no luck! Not much better in pa! What r your thoughts ? Lia> Sent via BlackBerry by AT & T> > ABA Therapy> > > > > > > > > > > > > > > > > > I have been hearing alot about ABA therapy lately and I am trying get better educated about it for my son who is in a Broward EH cluster in 4th grade and needs additional behavior interventions. Is this something that the public school offers, McKay and Charter schools, or is it something that is only available from private practitioners? Can it be written into an IEP if the public schools offer it? And, I'm guessing the health insurance companies don't cover it. We don't have MedWaiver but we have CMS.> > >> >> > > [The entire original message is not included.] > > Reply to sender | Reply to group | Reply via web post | Start a New Topic > Messages in this topic (17) > [The entire original message is not included.]>