Re: Cuddle Ewe

[Guest guest]

I just googled it and they have a list of bed products.........

Nina/Chiari I

Nina - My husband's cousin had that Chiari thing with the brain stem. He had

the surgery to fix it. I believe many of your symptoms especially the migraines

might be symptoms of this condition. I understand that with military insurance,

they probably don't want to do expensive surgery on you. I remember when he was

going through that, reading on a website that many of the symptoms were common

with FM. Does the military allow you to get a 2nd opinion? I suppose if you saw

a private practice neurologist, you'd have to foot the bill?

Now, don't get me wrong. I understand that having major brain surgery is very

scary. His recovery was not fun, lots and lots of headaches, but he did improve

and as far as I know, he is fully recovered. I just wonder if the military is

giving you all your options or not.

I understand about the cost of chiropractic and massage, too. I get some

chiro. coverage, but none for massage or acupuncture. What we do have is a flex

account for medical expenses to come out pre-tax, and since my doctor has

authorized massage and acupuncture as viable treatments for my FM, we can use

that flex money.

I hope you are able to find a solution to your constant headaches and othe

problems. Take care.

Jeanne in WI

Chiropractic care is another one that isnt covered by the insurance, and the

chiropractor actually has to be very careful with me because I have a rare

congenital disorder called Chiari I, that causes the back

part of my brain(i cant remember what that parts called right now , tired!)to

push onto my spinal cord. in actual reality it doesnt mean anything, the doctors

wont do anything because the only way to 'fix' it is major surgery and unless

the patient is having like massive

neurological symptoms such as loss of feeling in limbs from it, they dont do

anything. It just means from my chiropractors standpoint theres certain

adjustments he cant do very easily. I dont know if that affects his ability to

treat me well or not.

The same goes with massage therapy, although Ive read that that in particular

is good for fibro patients.

Unfortunately the end matter always comes down to cost.. The money just isnt

there, for any of them on a regular basis, much less all of them. And military

doesnt cover them as medical practices so all of those, while I consider them

medical treatments and valid, they arent

covered by my health insurance. As to the hormone levels, that may be the one

I havent had done.

although in the multitudes of testing and medications ive had, I may be

incorrect there. what sort of testing are you speaking of?

Right now the migraines dont even seem to be the entire problem. The days i

dont have migraines, im so tired and sore I cant hardly move. So the massages

and chiropractics , even if they helped that and i could afford it, i need to

figure ouit the best way to slowly rebuild my tolerance for physical activity.

Thankyou for your suggestions. Im curious what the hormone treatment is. And i

do think that chiropractics(when its the right chiro) and massage therapy are

valid treatments and helpful.. jsut expensive for one like me who has

narrow-minded insurers.