Re: more than picky eating

[Guest guest]

All the foods you just listed that he does eat are loaded with Casein and Gluten and many ASD kids are addicted to it and will only crave what they are addicted to!

Many kids (not all) benefit greatly from removing dairy and gluten containing foods, especially if they have gastrointestinal issues.

You might think that he will starve since these are the only foods he eats but you can slowly replace all those foods with gluten and casein free substitudes!

Good luck!

To: sList Sent: Tue, March 8, 2011 6:54:17 PMSubject: more than picky eating

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help? Debbie

[Guest guest]

I don't know if anyone is doing this program locally but I have heard good things about it. Dr. Toomey works out of Lucy s, a leader in sensory issues, in Colorado. Lucy's web site www.SPDfoundation.net under education has some information or goggle her. The SOS program takes a non invasive approach, and addresses the sensory, dietary and the psychological issues while and disarming the child.....Cari

The S.O.S.Sequential Oral SensoryApproach to Feeding Featuring:Kay A. Toomey, PhDPediatric Psychologist

Carolyn Murray-Slutsky, MS OTRRehabilitation for Children4041 North 41 StreetHollywood, Fl 33021www.STARServices.TV

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help? Debbie------------------------------------

[Guest guest]

Sounds like he has food allergies and/or intolerances/sensitivities... The cold like symptoms are common in kids who have allergies/intolerances/sensitivities to dairy particularly. It causes phlegm to build up over time.

Many of our kids are drawn to exactly what they should not be eating because they are allergic/sensitive/intolerant to it. For example, foods containing gluten and casein tend to be high on the list and often are preferred foods over any other.

Because he has struggled so much with foods in the past and you indicated he’s worked with specialists, I would not recommend removing them so quickly. There is a great book called, “Just Take a Bite.†Perhaps you have it already? It presents food aversion challenges in our kids from a developmental perspective and offers really great and practical informational, strategies and interventions to address food aversions.

For example, for your little guy, you indicate he is “terrified to taste a new food.†In the book, it discusses the developmental age of (I believe) 9 months to a year, when babies seem fearful of something new on their plates. The intervention is just to have the new food close to them, moving it closer and closer until it’s accepted by the child. Not trying to get them to eat it or touch it, just accept its presence.

It is a very practical book with doable activities.

Again, though, it’s important to recognize the very big possibility that your son has food allergies/intolerances/sensitivities. They may not show up in a test but the research shows that only a food challenge test (removing specific food items for periods of time and then reintroducing them) will show for certain if there’s an issue. If he’s having these issues, I’d work really hard on introducing the new foods first into his repertoire and having a much larger food repertoire, before removing any foods. But my guess is the dairy is the issue. Any eczema?

For my son, he’d had this noise he made that was considered a vocal tic and because he had autism, professionals tended to indicate this was just part of it...ugh... He’d had a history of eczema too. We removed dairy from his diet over the course of a month (very slowly and while replacing it with other foods) and we were experimenting with the gluten free casein free diet and had started with dairy (casein). He was off of dairy for 3 weeks I believe. We gave him a yogurt and the next day, the vocal tic came back. We hadn’t even noticed it went away until it came back. We checked the journal and sure enough, it could be linked to the dairy. He has delayed reactions. So, within 1-3 days of dairy, he can be expected to produce excess phlegm, causing throat noises trying to clear it, stuffy nose and eczema.

I did many of the interventions from the book (above) and found them to be very helpful.

Hope this helps!

From: hurdyburr

Sent: Tuesday, March 08, 2011 6:54 PM

To: sList

Subject: more than picky eating

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help? Debbie

[Guest guest]

Debbie,My son is 16 now, and is still the same picky eater he was at 5. Actually, he probably eats less foods now, mainly pizza, chicken nuggets, french fries, and chicken salad (plain chicken and mayo only), and of course chocolate chip cookies. He takes a multivitamin every day, and is healthy as a horse. Not being a huge fan of biomed, I'm thinking that your son's colds may be unrelated to his eating habits?To: sList Sent: Tue, March 8, 2011 6:54:17 PMSubject: more than picky eating

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help?

Debbie

[Guest guest]

Debbie,

I think that most children are very picky at that age, with or without

diagnosis. In my experience changing a child's eating habits is more harsh for

the parents that it is for the children.

I am a practitioner in Oriental Medicine and works with many children just like

yours! I do also believe that your child may have a sensitivity to the foods he

is eating because of the constant cold symptoms and also because if you notice,

all the foods he eats are based on the same ingredients. You do not need to be

a fan of biomedical interventions in order to figure out that the runny nose can

be due to the dairy. If you ask any allergist, they will recommend to stop the

dairy if your child has cold symptoms. Dairy produces mucus and it can worsen

sinuses problems.

There are many things that can be done, and I am not encouraging you to do a

particular diet like the GFCF diet, I want you to introduce better healthy food

choices in your child's diet. His diet right night is only based on single

carbohydrates, he has not fiber or proteins!

>

> my 5 year old son with pdd is food neophobic. terrified to taste a new food. I

have worked with aba therapists and speech pathologists who supposedly

specialise in feeding issues and it only made the problem worse. All he eats is

cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with

colds. Can anyone help?

> Debbie

>

[Guest guest]

Debbie, My son is 6 and also has pdd. He eats basically the same foods as your son. He takes multi vitamins with immunity support and he has not gotten sick for about 2 years now. I also make sure he washes his hands regularly especially after school. I think the vitamins are definitely the reason why he is so healthy now.Sent from my BlackBerry® on the MetroPCS NetworkSender: sList Date: Wed, 9 Mar 2011 08:12:34 -0800 (PST)To: <sList >ReplyTo: sList Subject: Re: more than picky eating Debbie,My son is 16 now, and is still the same picky eater he was at 5. Actually, he probably eats less foods now, mainly pizza, chicken nuggets, french fries, and chicken salad (plain chicken and mayo only), and of course chocolate chip cookies. He takes a multivitamin every day, and is healthy as a horse. Not being a huge fan of biomed, I'm thinking that your son's colds may be unrelated to his eating habits?To: sList Sent: Tue, March 8, 2011 6:54:17 PMSubject: more than picky eating my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help? Debbie

[Guest guest]

What kind of vitamins? Thanks:-)Sent from my iPhone

Debbie, My son is 6 and also has pdd. He eats basically the same foods as your son. He takes multi vitamins with immunity support and he has not gotten sick for about 2 years now. I also make sure he washes his hands regularly especially after school. I think the vitamins are definitely the reason why he is so healthy now.Sent from my BlackBerry® on the MetroPCS Network

Sender: sList

Date: Wed, 9 Mar 2011 08:12:34 -0800 (PST)To: <sList >ReplyTo: sList

Subject: Re: more than picky eating

Debbie,My son is 16 now, and is still the same picky eater he was at 5. Actually, he probably eats less foods now, mainly pizza, chicken nuggets, french fries, and chicken salad (plain chicken and mayo only), and of course chocolate chip cookies. He takes a multivitamin every day, and is healthy as a horse. Not being a huge fan of biomed, I'm thinking that your son's colds may be unrelated to his eating habits?To: sList Sent: Tue, March 8, 2011 6:54:17 PMSubject: more than picky eating

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help?

Debbie

[Guest guest]

My daughter is (will be) 18 and also is extremely healthy. I giver her a women's once a day daily multi vitamin & 3 easy to swallow calcium pills. And of course - her daily chocolate chip cookie - which I think is the cure all. ))) Wish it worked on me...LOL cheryl

To: "sList " <sList >Sent: Wed, March 9, 2011 12:48:04 PMSubject: Re: more than picky eating

What kind of vitamins? Thanks:-)Sent from my iPhone

Debbie, My son is 6 and also has pdd. He eats basically the same foods as your son. He takes multi vitamins with immunity support and he has not gotten sick for about 2 years now. I also make sure he washes his hands regularly especially after school. I think the vitamins are definitely the reason why he is so healthy now.

Sent from my BlackBerry® on the MetroPCS Network

Sender: sList

Date: Wed, 9 Mar 2011 08:12:34 -0800 (PST)

To: <sList >

ReplyTo: sList

Subject: Re: more than picky eating

Debbie,My son is 16 now, and is still the same picky eater he was at 5. Actually, he probably eats less foods now, mainly pizza, chicken nuggets, french fries, and chicken salad (plain chicken and mayo only), and of course chocolate chip cookies. He takes a multivitamin every day, and is healthy as a horse. Not being a huge fan of biomed, I'm thinking that your son's colds may be unrelated to his eating habits?

To: sList Sent: Tue, March 8, 2011 6:54:17 PMSubject: more than picky eating

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help? Debbie

[Guest guest]

Flinstones immunity support with extra vitamin cSent from my BlackBerry® on the MetroPCS NetworkSender: sList Date: Wed, 9 Mar 2011 12:48:04 -0500To: sList <sList >ReplyTo: sList Subject: Re: more than picky eating What kind of vitamins? Thanks:-)Sent from my iPhone Debbie, My son is 6 and also has pdd. He eats basically the same foods as your son. He takes multi vitamins with immunity support and he has not gotten sick for about 2 years now. I also make sure he washes his hands regularly especially after school. I think the vitamins are definitely the reason why he is so healthy now.Sent from my BlackBerry® on the MetroPCS NetworkSender: sList Date: Wed, 9 Mar 2011 08:12:34 -0800 (PST)To: <sList >ReplyTo: sList Subject: Re: more than picky eating Debbie,My son is 16 now, and is still the same picky eater he was at 5. Actually, he probably eats less foods now, mainly pizza, chicken nuggets, french fries, and chicken salad (plain chicken and mayo only), and of course chocolate chip cookies. He takes a multivitamin every day, and is healthy as a horse. Not being a huge fan of biomed, I'm thinking that your son's colds may be unrelated to his eating habits?To: sList Sent: Tue, March 8, 2011 6:54:17 PMSubject: more than picky eating my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help? Debbie

[Guest guest]

I agree with the dairy theory...My autistic son, now 11, has had a major feeding disorder all his life...it was so bad that the doctors wanted him to have a g-tube.  I refused this, feeling very strongly that there must be an underlying problem.  It took 3 1/2 years to get to the bottom of it (last year) when he was found to have chronic ulcers.  To cut a long story short, he was put on Nexium and within 10 days came off all the formula that was keeping him alive.  He is now eating really well....put on 15 llbs in the last 10 months but is very picky and loves his dairy.  He has a lot of sinus problems and I have notice that the dairy contributes to these.  The problem is, how do you take away the only thing/s that a child will eat?  I tried to substitute with soy/rice products but didn't work.  I now try and control the mucus production with antihistamine with decongestant when it happens.  It is far from ideal but better to treat it before it turns into a problem and he then has to take antibiotics.

At another point my son was getting a lot of colds/sinus infections and I had his pneumococcal titers checked.  These were found to be out of whack and I agreed to give him a vaccine that could boost his titers.  It did work (he was retested) and did not suffer from any sinus problems for about six months.  We have recently moved overseas and are now living in a new environment, so it's back to square one...the allergies have now kicked in!

I don't know if any of this will help and I do hope that you are able to find a solution.Best of luck.Caroline

 

My daughter is (will be) 18 and also is extremely healthy.  I giver her a women's once a day daily multi vitamin & 3 easy to swallow calcium pills.  And of course - her daily chocolate chip cookie - which I think is the cure all.  ))) Wish it worked on me...LOL  cheryl

To: " sList " <sList >

Sent: Wed, March 9, 2011 12:48:04 PMSubject: Re: more than picky eating

 

What kind of vitamins? Thanks:-)Sent from my iPhone

 

Debbie, My son is 6 and also has pdd. He eats basically the same foods as your son. He takes multi vitamins with immunity support and he has not gotten sick for about 2 years now. I also make sure he washes his hands regularly especially after school. I think the vitamins are definitely the reason why he is so healthy now.

Sent from my BlackBerry® on the MetroPCS Network

Sender: sList

Date: Wed, 9 Mar 2011 08:12:34 -0800 (PST)

To: <sList >

ReplyTo: sList

Subject: Re: more than picky eating

 

Debbie,My son is 16 now, and is still the same picky eater he was at 5.  Actually, he probably eats less foods now, mainly pizza, chicken nuggets, french fries, and chicken salad (plain chicken and mayo only), and of course chocolate chip cookies.  He takes a multivitamin every day, and is healthy as a horse.  Not being a huge fan of biomed, I'm thinking that your son's colds may be unrelated to his eating habits?

To: sList

Sent: Tue, March 8, 2011 6:54:17 PMSubject: more than picky eating 

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help?

Debbie

[Guest guest]

Debbie: if you want to know what your child needs in terms of nutritional supplements and dietary intervention you can do a urine and saliva BioCellular Analysis www.pHtestlab.com

This tests the basic foundational biochemistry which is usually abnormal in these kids. Protein levels, ammonia, sugar, salt, cell productions, organs, dehydration, cell wall and much more...

Badillo9@... if you want further info

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help? Debbie

[Guest guest]

Have you ever read about dietary interventions? Often times we crave the vary foods we shouldn't have. My child is a very picky eater and we have added eating interventions to his ABA program and that has helped so much, but what has helped the most is a gluten and casein free diet. Additionally, we avoid phenols and preservatives. When we started the GFCF diet over two years ago my son at anything and everything but when we went to the GFCF diet he would barely eat anything but his behavior was so much better so we kept it up. Two years later he is eating meat, a few veggies, fruit and cereals. It took a lot of prayer, patience, therapy, both his and mine, and tons of trial and error but he is eating much better now.

more than picky eating

my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help?

Debbie

[Guest guest]

Debbie,

My son used to be the same way. We took him off of dairy and gluten, and that

helped a lot, but when we put him on digestive enzymes it disappeared completely

after 2 weeks. He gained weight, got healthier and was eating all kinds of new

foods that he would scream at just even looking at them before.

It isn't easy doing a special diet, I would take out dairy first since it is

easier to do, and the results are more immediate an dramatic. If you do try it

you have to be very committed b/c even a little dairy in baked bread, or eggs

cooked in butter at a restaurant that we didn't realize would cause a reaction.

There is so much dairy hidden in many products and many times it won't say

" MILK " it will be in the form of lactic acid or something. So you need to be

very careful.

It definitely doesn't hurt to try For us he stopped his constant drooling and

runny nose after 3 days of removing dairy. This is after a year of speech oral

motor therapy that couldn't help fix the drooling.

HTH,

Shiri

>

> my 5 year old son with pdd is food neophobic. terrified to taste a new food. I

have worked with aba therapists and speech pathologists who supposedly

specialise in feeding issues and it only made the problem worse. All he eats is

cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with

colds. Can anyone help?

> Debbie

>

[Guest guest]

Oh I almost forgot!Zinc deficiency is also related to poor eating habits. It keeps us from smelling our foods and can very much adversely affect our food choices. My son takes 20 mg additional zinc a day because his labs showed consistent deficiencies in zinc. There is research about food aversions and zinc deficiency.The difficult part is that when taken on an empty or close to empty stomach, zinc can cause nausea or even vomiting. We remedy this by giving it only on a full belly and/or dividing the doses over the course of the day, along with food. Hope this helps!Sent from my iPhone

Debbie,

My son used to be the same way. We took him off of dairy and gluten, and that helped a lot, but when we put him on digestive enzymes it disappeared completely after 2 weeks. He gained weight, got healthier and was eating all kinds of new foods that he would scream at just even looking at them before.

It isn't easy doing a special diet, I would take out dairy first since it is easier to do, and the results are more immediate an dramatic. If you do try it you have to be very committed b/c even a little dairy in baked bread, or eggs cooked in butter at a restaurant that we didn't realize would cause a reaction. There is so much dairy hidden in many products and many times it won't say "MILK" it will be in the form of lactic acid or something. So you need to be very careful.

It definitely doesn't hurt to try For us he stopped his constant drooling and runny nose after 3 days of removing dairy. This is after a year of speech oral motor therapy that couldn't help fix the drooling.

HTH,

Shiri

>

> my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help?

> Debbie

>

[Guest guest]

Can anyone recommend a naturopath and a nutritionist dieticianIn broward or south palm beach county? Also maybe an allergistWho works with immune deficient autistic children?Thanks!!!Sent from my iPhone

Oh I almost forgot!Zinc deficiency is also related to poor eating habits. It keeps us from smelling our foods and can very much adversely affect our food choices. My son takes 20 mg additional zinc a day because his labs showed consistent deficiencies in zinc. There is research about food aversions and zinc deficiency.The difficult part is that when taken on an empty or close to empty stomach, zinc can cause nausea or even vomiting. We remedy this by giving it only on a full belly and/or dividing the doses over the course of the day, along with food. Hope this helps!Sent from my iPhone

Debbie,

My son used to be the same way. We took him off of dairy and gluten, and that helped a lot, but when we put him on digestive enzymes it disappeared completely after 2 weeks. He gained weight, got healthier and was eating all kinds of new foods that he would scream at just even looking at them before.

It isn't easy doing a special diet, I would take out dairy first since it is easier to do, and the results are more immediate an dramatic. If you do try it you have to be very committed b/c even a little dairy in baked bread, or eggs cooked in butter at a restaurant that we didn't realize would cause a reaction. There is so much dairy hidden in many products and many times it won't say "MILK" it will be in the form of lactic acid or something. So you need to be very careful.

It definitely doesn't hurt to try For us he stopped his constant drooling and runny nose after 3 days of removing dairy. This is after a year of speech oral motor therapy that couldn't help fix the drooling.

HTH,

Shiri

>

> my 5 year old son with pdd is food neophobic. terrified to taste a new food. I have worked with aba therapists and speech pathologists who supposedly specialise in feeding issues and it only made the problem worse. All he eats is cheese, milk, bread, pasta and mac and cheese. He is sick all of the time with colds. Can anyone help?

> Debbie

>