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Re: Hinky and Dianne/Sharon

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Yep I got online in FEB. and since then have left

many posts but really haven't seen them post or be

answered. No biggie here but just posting.

I have loved being a paramedic and also EMS educator

for the military hospital here and training the medics

going to war.

I am also know as powmiadaughter on other sites and

have my memorial site for my dad if you would like .

So are you from ville or just visiting for

Easter.

Diane

--- sharon studley wrote:

> Hey there and this may be a duplicate, as I

> remember starting to post about this but don't

> remember if i hit submit??? I am in dersville here

> today. I wanted to say though first to Dianne, I

> don't know if all of your post's have come through,

> because I remember seeing you when I first joined

> back in Feb. the paramedic stuck out to me as I

> also worked in the healthfield,but then started

> noticing you didn't come on?, so if you have been on

> some may have been lost in the shuffle, or I am as

> guilty as some of the others, because if I miss One

> day I get over 100 posts and depending on my day, I

> sometimes don't catch all or hardly any, because I

> am just to exhausted, have lately had this continous

> pain on my right side each night I lay and attempt

> to sleep in bed I wake unmovable,but yet need to to

> help the pain subside, it is really wearing me out,

> as I as most don't sleep anyway and the few hrs that

> might come are taken by this, as I need to change

> position, and this

> just wakes me and I am up, trying to make the pain

> go away. I was given oxcycodone for it this time

> 5.mg not much to me, and it isn't working! I just

> want warm weather here as I am thinking this will

> end some of my pain, my knees, neck, and hands. So

> I hope you get seen now, as I don't like to not

> respond if someone I see is looking for response,

> just saying hey, I try and rotate at the least in

> saying something.

>

> Hincky- I hope you are able to stay with just

> the 2 meds you are on., and your symptoms stay at

> bay. Again hope you find answers, friendship and

> chuckles I have on this group since joining. If you

> feel ignored Just get shout and I think one of us

> will notice then, and it is just as others said, so

> many e-mails, we all get blown by at times, we space

> out, now I am speaking for myself only members, and

> we all need a WAKE UP call once in awhile, so don't

> take it personal. Hope you both lighter days.

> Take Care Sharon

>

> Nd wrote:

> Hi Hinky ,I'm Diane from GA, I have been

> on the group

> just a little while so i am fairly new too.

> hope you get this post as i am not sure mine are

> going through either no one has answered anything i

> have posted in the last few days.

> Diane

> --- Hinky wrote:

>

> > --

> > Hi Sharon,

> > I have been on flexeril and still am I really

> think

> > it helps me best

> > at night to relax, I don't know that it helps my

> > sleep much though.

> > I wake up at least 2-4 times a night. I never get

> > ream sleep, they

> > have tried all kinds of meds but I told them I

> would

> > just learn to

> > live with that. I usually can get back to sleep,

> as

> > long as I don't

> > have anything to worry about in my life....LOL Ya

> > right? Hope it

> > continues to work for you too... Welcome to the

> > group too. I think

> > we will get some good info here. Wish I had known

> > about Yahoo's

> > groups before this!!! I could have been on here a

> > long time ago...

> > Well, were here now....Hinky

> >

> >

> >

> >

> >

> >

> >

> >

> > - In Fibromyalgia_Support_Group ,

> > sharon studley

> > wrote:

> > >

> > > Welcome. I was given flexerall first to , all

> > is it did was

> > make me so light headed, dropping my b/p that I

> felt

> > awfull all the

> > time unless just layed flat. I also was put on

> > cymbalta, which they

> > gave me a whold big box of samples of thinking it

> > would work, it

> > didn't, so another one bites the dust! But if it

> is

> > working for you,

> > it should continue, though if your disease

> > progresses, and along with

> > it more pain you may need to add pain med. Your

> > lucky it works for

> > you as that and effexor are the 2 least to cause

> > weight gain, and can

> > even cause weight loss, like I did on effexor, I

> > completley lost my

> > appetitate, and dropped weight, and then started

> > getting side

> > effects! So now I am just on my originals Pain

> med,

> > muscle relaxor,

> > and sleeping RX. I wish you well with your

> > continued relief of

> > cymbalta. I also welcome you to the group I am

> > newer but have found

> > a lot of help and interesting peiople here, and

> just

> > take the good

> > with the bad, We all have the porential to

> > > have bad days.

> > >

> >

> > Sharon

> > >

> > >

> > > Hi ya'll, I'm Hinky and I've had Fibro

> > for about 15-17

> > years. I had

> > > been on Elavil & Flexrl for ever it seems. It

> > really didn't do much

> > for

> > > me as I stayed in pain from morning till night.

> > Well, I was just

> > > diagnoised with Long QT syndrom ( you may or may

> > not have heard of

> > it)

> > > anyway there are certain drugs I can't have

> well,

> > elavil was one of

> > > them!! The have put me on cymbalta and I've been

> > taking it for

> > about a

> > > month now and I can't believe the difference it

> > has made in my pain

> > > level!!!! I really haven't had any side effects

> > either. Has anyone

> > in

> > > this group taken this and does it keep working

> > after you've been on

> > it

> > > for a long time??? I saw a Neroligist, and he's

> > the one who put me

> > on

> > > it. Please give me any insight on this medicene

> > that you can,

> > thanks

> > > so much ya'll Hinky

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> > ------------------------------------

> >

> > 1. While it is wonderful to share our experiences

> > with everyone on the list as to what treatments do

> > and don't work for us, pls always check with your

> > dr. Some treatments are dangerous when given along

> > with other meds as well as to certain health

> > conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't

> > matter what it is) pls don't be afraid to ask for

> > help. It is the first step to trying to make that

> > situation better.

> >

> > 3. To unsubscribe the e-mail is:

> >

>

Fibromyalgia_Support_Group-unsubscribe

> >

> > 4. Also, it is not uncommon for more than one

> member

> > to be feeling bad at the same time when it comes

> to

> > flares and b/c of that potentially take something

> > another member says the wrong way. And that

> > includes the things that one member may find funny

> > (even if it's laughing at fibro itself) even

> though

> > we who deal with illness whether one such as fibro

> > or multiple illnesses try to keep a sense of

> humor.

>

=== message truncated ===

Diane

________________________________________________________________________________\

____

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