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I didn't realize the impact that this disease has on family members,

my grand son was in the kitchen the other night eating little candies

from his easter basket, looked at me and said look Nana " I'm taking my

pain pills! " I understand the kid is only 7yrs old, but i tried to

explain to him that this was a very painful disease, it runs in

families and I hope and pray that he never gets it or any thing like

this, I probably didn't handle the situation the way I should have,

but i guess it doesn't help when his Uncles sit and laugh at me every

time the commercial comes on about F.M. It just is so frustrating,

that people don't understand what we go through with this god awful

disease. thanks for letting me vent and get this off my chest. Leanne

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Leanne,

It is upsetting. Just when I made myself believe I maybe didn't really have

it...wham..I was standing in the middle of the kitchen getting the kids a snack

and boom, it felt like a hand was inside my legs twisting my muscles. the pain

was unbelievable. I'm soon off to bed I am only really comfy laying down and all

covered up and toasty.

/Mi

Impact

I didn't realize the impact that this disease has on family members,

my grand son was in the kitchen the other night eating little candies

from his easter basket, looked at me and said look Nana " I'm taking my

pain pills! " I understand the kid is only 7yrs old, but i tried to

explain to him that this was a very painful disease, it runs in

families and I hope and pray that he never gets it or any thing like

this, I probably didn't handle the situation the way I should have,

but i guess it doesn't help when his Uncles sit and laugh at me every

time the commercial comes on about F.M. It just is so frustrating,

that people don't understand what we go through with this god awful

disease. thanks for letting me vent and get this off my chest. Leanne

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Ah Leanne, I can sympathize with you! My twins are 8 and already my

daughter has had to get my purse - either for my inhaler or for my pain

pills. That's not a good way to grow up and I truly try to minimize

what and how I feel. Because if I mention how I am physically feeling

(tired, hurting, that kind of thing), DH will usually make a comment

that I did too much. Well to put it quite bluntly, he DOESN'T notice

the dust in the house and both my daughter and I have severe allergies

so dusting is important. He also DOESN'T notice that our shower stall

is dirty - but my daughter has to clean it because I literally cannot

handle the fumes from any cleaner anymore without going into an asthma

attack. So sometimes, whether or not I WANT to do these things, they

have to be done and get done......

But I'm sorry that your brothers laugh every time the FM commercial

comes on. Truthfully, that's flat out rude. I think I'd tell them it

was too. Why not? They wouldn't treat a stranger like that, so why are

they treating you like that??? I think my hormones are on overdrive

today - I want to tell everyone off....lol. But I do think you should

tell them they are being rude the next time they laugh. Because what we

have is very very real. We may look okay but in reality, if folks

looked closely, they could see by the look in our eyes that we are in

pain.

(((Hugs))))

Darlene

>

> I didn't realize the impact that this disease has on family members,

> my grand son was in the kitchen the other night eating little candies

> from his easter basket, looked at me and said look Nana " I'm taking my

> pain pills! " I understand the kid is only 7yrs old, but i tried to

> explain to him that this was a very painful disease, it runs in

> families and I hope and pray that he never gets it or any thing like

> this, I probably didn't handle the situation the way I should have,

> but i guess it doesn't help when his Uncles sit and laugh at me every

> time the commercial comes on about F.M. It just is so frustrating,

> that people don't understand what we go through with this god awful

> disease. thanks for letting me vent and get this off my chest. Leanne

>

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