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Hi All:

Well, on Friday, I don't know what happened, if I pulled or strained my back

somehow, but with the fibro, I was in severe pain and could barely move

(sit, walk etc)....Made an appt with my family doctor, who was no help

whatsoever...First thing he said was, well, we don't really know if fibro is a

legitimate disease/condition! When all bloodwork, tests, etc are normal,

doctors

just say fibro cos they can't think of what else it could be...He then tells

me,

well, just eat a healthy diet, and exercise...I told him, how can I exercise

when I can barely move? No answer...Then he told me to drink a glass or 2

of wine at nite...I told him I don't drink anymore, nor do I smoke, and I do

eat a healthy diet and exercise, and guess what? I'm still in pain!

He reluctantly gave me a script for a muscle relaxer and a few

percocet....He was ready to send me on my way, when I asked if I could have a

referral

for a rheumatologist....I couldn't think of anything else to do, and he really

pissed me off...

The rhuemy appt is not until May 22.....I hope he has some better answers

for me than this schmuck!

in PA

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Good luck , I'm finding out this disease is one frustration after another.

/Mi

Doctor Visit Friday

Hi All:

Well, on Friday, I don't know what happened, if I pulled or strained my back

somehow, but with the fibro, I was in severe pain and could barely move

(sit, walk etc)....Made an appt with my family doctor, who was no help

whatsoever...First thing he said was, well, we don't really know if fibro is a

legitimate disease/condition! When all bloodwork, tests, etc are normal,

doctors

just say fibro cos they can't think of what else it could be...He then tells

me,

well, just eat a healthy diet, and exercise...I told him, how can I exercise

when I can barely move? No answer...Then he told me to drink a glass or 2

of wine at nite...I told him I don't drink anymore, nor do I smoke, and I do

eat a healthy diet and exercise, and guess what? I'm still in pain!

He reluctantly gave me a script for a muscle relaxer and a few

percocet....He was ready to send me on my way, when I asked if I could have a

referral

for a rheumatologist....I couldn't think of anything else to do, and he really

pissed me off...

The rhuemy appt is not until May 22.....I hope he has some better answers

for me than this schmuck!

in PA

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

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Oh !

I think I'd find another family doctor! Ours is a clinic, I usually

see one of two of the providers there and they believe in the fibro.

In fact, my rheumy gave me lyrica only; it was my PCP that said you

may experience break-thru pain who gave me robaxin and naproxen

(which I can't take now because it irritates my kidneys) and

darvocet. I use the robaxin when I'm having spasms and minimal pain

and the darvocet when I'm having all-over pain.

You should call the rheumy's office and tell them you'd like to be

considered for an earlier appt if someone should cancel. Having to

wait until May sounds tortous to me! They always have cancellations

and keep a list of folks who will take an earlier appt. It may help

and can't hurt, right?

I hope your back feels better soon. I know heat helps my areas of

pain out and they have those awesome thermacare patches that cover a

large area and are warm/hot for at least 8 hrs. Plus the salonpas,

but I'm not sure they make big ones of those.

Darlene

>

> Hi All:

>

> Well, on Friday, I don't know what happened, if I pulled or

strained my back

> somehow, but with the fibro, I was in severe pain and could barely

move

> (sit, walk etc)....Made an appt with my family doctor, who was no

help

> whatsoever...First thing he said was, well, we don't really know if

fibro is a

> legitimate disease/condition! When all bloodwork, tests, etc are

normal, doctors

> just say fibro cos they can't think of what else it could be...He

then tells me,

> well, just eat a healthy diet, and exercise...I told him, how can

I exercise

> when I can barely move? No answer...Then he told me to drink a

glass or 2

> of wine at nite...I told him I don't drink anymore, nor do I

smoke, and I do

> eat a healthy diet and exercise, and guess what? I'm still in

pain!

>

> He reluctantly gave me a script for a muscle relaxer and a few

> percocet....He was ready to send me on my way, when I asked if I

could have a referral

> for a rheumatologist....I couldn't think of anything else to do,

and he really

> pissed me off...

>

> The rhuemy appt is not until May 22.....I hope he has some better

answers

> for me than this schmuck!

>

> in PA

>

>

>

> **************Create a Home Theater Like the Pros. Watch the video

on AOL

> Home.

> (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?

ncid=aolhom00030000000001)

>

>

>

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In a message dated 3/26/2008 4:40:08 P.M. Eastern Daylight Time,

djgraves9497@... writes:

- Fire that schmuck and find a doc who believes in FM and in treating

it. They are out there, but sometimes tricky to find.

Take care.

Jeanne in WI

Thanks Jeanne...I am going to just deal with it the best I can with the pain

meds he gave me, heating pad, rest, etc....I only take 1/2 a percocet a day,

which I should probably take more when the pain is this bad, but I don't

want to run out.....There are times last summer that for months I had no pain at

all, was swimming, etc...This winter was the worst for some reason, and I

live in NE PA and it is still very cold and damp here...

I will look forward to my rheumatologist appt and hopefully he will be more

competent!

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

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What a JERK. This is just the kind of imbecile we need in this world. FIBRO

has specific and real symptoms. The dumb A$$ obviously does not keep up with

any kind of medical research. Those kind of people just tick me off to no end.

hugs,

Debra V.

SpiritSpeaker7@... wrote:

Hi All:

Well, on Friday, I don't know what happened, if I pulled or strained my back

somehow, but with the fibro, I was in severe pain and could barely move

(sit, walk etc)....Made an appt with my family doctor, who was no help

whatsoever...First thing he said was, well, we don't really know if fibro is a

legitimate disease/condition! When all bloodwork, tests, etc are normal, doctors

just say fibro cos they can't think of what else it could be...He then tells me,

well, just eat a healthy diet, and exercise...I told him, how can I exercise

when I can barely move? No answer...Then he told me to drink a glass or 2

of wine at nite...I told him I don't drink anymore, nor do I smoke, and I do

eat a healthy diet and exercise, and guess what? I'm still in pain!

He reluctantly gave me a script for a muscle relaxer and a few

percocet....He was ready to send me on my way, when I asked if I could have a

referral

for a rheumatologist....I couldn't think of anything else to do, and he really

pissed me off...

The rhuemy appt is not until May 22.....I hope he has some better answers

for me than this schmuck!

in PA

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

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, where in PA do you live??? I heard those same kinds of

remarks back in the late 1980's but the AMA now lists Fibro in the

big book they should all check!!!! It has been a recognized

condition since the middle 1990's!!!! When and where did he get his

MD training? and how old is he???? I do think I would look for a

copy of the PDR and copy the pages about fibro!!!!

So nice when they bury their Blank, Blank heads in the sand!!! Does

he not watch TV??? Has he had a visit from a drug rep for the

company that got FDA approval for Lyrica???? I think I would be very

tempted to call the company --- I can't remember who has the rights

to that drug, but they need to send a rep to your doctor!!! And yes,

I know there is this ongoing concern about the conflicts between the

drug companies, the docs, etc. But unless the reps see THE DOCTOR

sometimes they don't even see the material. (front desk can be told

to screen material and the may 86 it! (I.E. in the trash.)

And I realize I am biazed as I have worked in the pharma industry,

but with out the reps, many docs wouldn't know. And I also have to

wonder how many years it took to get Lyrica approved by the FDA.

My question about PA is because I live in a Pittsburgh suburb and

have also lived in the Philly area. So know of docs in both areas.

>

> Well, on Friday, I don't know what happened, if I pulled or

strained my back

> somehow, but with the fibro, I was in severe pain and could barely

move

> (sit, walk etc)....Made an appt with my family doctor, who was no

help

> whatsoever...First thing he said was, well, we don't really know if

fibro is a

> legitimate disease/condition! When all bloodwork, tests, etc are

normal, doctors

> just say fibro cos they can't think of what else it could be...He

then tells me,

> well, just eat a healthy diet, and exercise...I told him, how can I

exercise

> when I can barely move? No answer...Then he told me to drink a

glass or 2

> of wine at nite...I told him I don't drink anymore, nor do I smoke,

and I do

> eat a healthy diet and exercise, and guess what? I'm still in pain!

>

> He reluctantly gave me a script for a muscle relaxer and a few

> percocet....He was ready to send me on my way, when I asked if I

could have a referral

> for a rheumatologist....I couldn't think of anything else to do,

and he really

> pissed me off...

>

> The rhuemy appt is not until May 22.....I hope he has some better

answers

> for me than this schmuck!

>

> in PA

>

> **************Create a Home Theater Like the Pros. Watch the video

on AOL

> Home.

> (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?

ncid=aolhom00030000000001)

>

>

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I just have to make one more comment about the doctor --- ask him if

he wants to walk in your shoes for a month???? They make me so

angry when they say the things that I used to hear in the late

1980's! At least part of the time when I lived in Chicago and had a

new resident every 18 months or so, they were all determined they

would find the cause!! And my doc in St. Louis, while she didn't buy

the fibromyalgia as a reall condition, she knew that I was in pain ---

I will never forget the day she barely touched the area around my

sterum and said " I know you are in a great deal of pain, you almost

went through the ceiling!!! " And I hardly felt the touch!

So, she and her partner were always trying to find something that

would help ease the pain, if nothing else!

Oh, and I saw a list somewhere in the past two or three days about

drugs pulled from the market --- I found it interesting that the ONE

I could take on a Saturday morning, work all day in my yard and

garden and never have any difficulty, was on the market for only a

year before the drug company pulled it because dentists (I think were

the ones who were mis prescribing it!!) If only someone would buy

the patent and tweek it, it might just help more people than it ever

hurt --- it was one of those that supposedly caused liver damage.

And I either have a cast iron internal system or my body doesn't

react to many of the drugs that can do liver damage because I have

taken so many things. (I got the call from my doc to stop taking

that drug back in the 1990's, but since I only used it on an as

needed basis, I used them very sparingly and never told anyone).

But it was interesting in the list of drugs that had been removed,

the one that worked for me was the ONLY one that was taken off the

market volunterrially by the company in ONE year.

Well, now that I have expressed my opinon about the FDA, I am going

to bed and perchance to sleep and dream.

>

> , where in PA do you live??? I heard those same kinds of

> remarks back in the late 1980's but the AMA now lists Fibro in the

> big book they should all check!!!! It has been a recognized

> condition since the middle 1990's!!!! When and where did he get

his

> MD training? and how old is he???? I do think I would look for a

> copy of the PDR and copy the pages about fibro!!!!

> So nice when they bury their Blank, Blank heads in the sand!!!

Does

> he not watch TV??? Has he had a visit from a drug rep for the

> company that got FDA approval for Lyrica???? I think I would be

very

> tempted to call the company --- I can't remember who has the rights

> to that drug, but they need to send a rep to your doctor!!! And

yes,

> I know there is this ongoing concern about the conflicts between

the

> drug companies, the docs, etc. But unless the reps see THE DOCTOR

> sometimes they don't even see the material. (front desk can be

told

> to screen material and the may 86 it! (I.E. in the trash.)

> And I realize I am biazed as I have worked in the pharma industry,

> but with out the reps, many docs wouldn't know. And I also have to

> wonder how many years it took to get Lyrica approved by the FDA.

>

> My question about PA is because I live in a Pittsburgh suburb and

> have also lived in the Philly area. So know of docs in both areas.

>

> >

> > Well, on Friday, I don't know what happened, if I pulled or

> strained my back

> > somehow, but with the fibro, I was in severe pain and could

barely

> move

> > (sit, walk etc)....Made an appt with my family doctor, who was no

> help

> > whatsoever...First thing he said was, well, we don't really know

if

> fibro is a

> > legitimate disease/condition! When all bloodwork, tests, etc are

> normal, doctors

> > just say fibro cos they can't think of what else it could be...He

> then tells me,

> > well, just eat a healthy diet, and exercise...I told him, how can

I

> exercise

> > when I can barely move? No answer...Then he told me to drink a

> glass or 2

> > of wine at nite...I told him I don't drink anymore, nor do I

smoke,

> and I do

> > eat a healthy diet and exercise, and guess what? I'm still in

pain!

> >

> > He reluctantly gave me a script for a muscle relaxer and a few

> > percocet....He was ready to send me on my way, when I asked if I

> could have a referral

> > for a rheumatologist....I couldn't think of anything else to do,

> and he really

> > pissed me off...

> >

> > The rhuemy appt is not until May 22.....I hope he has some better

> answers

> > for me than this schmuck!

> >

> > in PA

> >

> > **************Create a Home Theater Like the Pros. Watch the

video

> on AOL

> > Home.

> > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?

> ncid=aolhom00030000000001)

> >

> >

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In a message dated 3/27/2008 12:37:09 A.M. Eastern Daylight Time,

villaridge@... writes:

My question about PA is because I live in a Pittsburgh suburb and

have also lived in the Philly area. So know of docs in both areas.

Hi :

I live in Northeastern PA, the Pocono Mtns...About an hr and a half from

Phila.....This doctor did mention Lyrica, but I didn't want to try it at this

time due to the side effects (weight gain, swelling,etc.)..But even though he

mentioned it, he still didn't seem to believe that fibro was a " real "

condition...Just something that they say when they can't figure out anything

else

from normal bloodwork (kind of like chronic fatigue syndrome, etc.) which I

know of 2 doctors who don't think that is real either! He is affiliated with

Geisinger (if u have heard of that), and is about late 30s,early 40s I would

say...He spent most of his time telling me how I shouldn't have any pain meds

cos I didn't want to become a drug addict, and how all the doctors in his

group agree that you shouldn't have pain meds unless you have had major surgery

or cancer! That's insane to me...He seemed to brush my pain complaint off as

I was lying or it was not that severe...

This is the same group of doctors who gave me antibiotics when I had a

cold/bronchitis in Dec., and I didn't take them cos I knew it wasn't bacterial

(and they agreed), so then why should I take antibiotics un necessarily and

build up a resistance, if I really need them in the future...

Plus when I had shingles 3 yrs ago, they didnt diagnose it correctly for 2

wks ( I was there 3- 4 times), so I didnt' get the anti viral meds on

time...Finally they gave me the anti virals and it subsided quickly..I also had

to go

back 3 times until they gave me a pain med that worked....

I just feel like I have to go in there, telling them what to do, what to

prescribe and diagnosing myself......I will see the rheum in May and see what I

think of him...I don't go to the doctor often, only when something is very

bad, so I don't even trust any doctors at this point..

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In a message dated 3/27/2008 12:48:02 P.M. Eastern Daylight Time,

weachy_01@... writes:

you sound like me taking my meds in half the doses so I don't run out

and i keep being told by the dr nurse this is the klast he is going to

fill it!!!! I go see a pin management dr today so wish me luck!!!!

Leanne i will let know waht i find out!

Hi Leanne:

Good luck with the pain management doctor today..let me know how it goes,

and what types of meds he gives you..

**************Create a Home Theater Like the Pros. Watch the video on AOL

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>

>

> In a message dated 3/26/2008 4:40:08 P.M. Eastern Daylight Time,

> djgraves9497@... writes:

>

> - Fire that schmuck and find a doc who believes in FM and in

treating

> it. They are out there, but sometimes tricky to find.

> Take care.

> Jeanne in WI

>

>

>

> Thanks Jeanne...I am going to just deal with it the best I can with

the pain

> meds he gave me, heating pad, rest, etc....I only take 1/2 a

percocet a day,

> which I should probably take more when the pain is this bad, but I

don't

> want to run out.....There are times last summer that for months I

had no pain at

> all, was swimming, etc...This winter was the worst for some reason,

and I

> live in NE PA and it is still very cold and damp here...

>

> I will look forward to my rheumatologist appt and hopefully he will

be more

> competent!

>

>

>

>

>

> **************Create a Home Theater Like the Pros. Watch the video

on AOL

> Home.

>

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

>

>

>

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In a message dated 3/28/2008 4:16:07 P.M. Eastern Daylight Time,

Lander2004@... writes:

Good luck , I'm finding out this disease is one frustration after

another.

/Mi

Thanks ...I am feeling better since last Friday, but took about a week

until that happened..Of course, last nite when I was feeling better, I picked

up a 30 lb bag of deer corn to go feed the deer, and then later on, I had

bad muscle pain in my left arm and left side of the back (where I had strained

it previously)..

Oh well, the deer had to eat ! lol

**************Create a Home Theater Like the Pros. Watch the video on AOL

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