I don't know if I can handle another day

[Guest guest]

As I posted before my boss called me to work 3 days to help him catch

up on a few things. Well Monday I made it 4 hours and my lower back was

throbbing. Today I made it 5 and 1/2 hours and my lower back felt like

it was going to explode. I thought a long time ago that I would never

be able to work full time again, but there was always a sliver of hope

that I was wrong. Well this week has crushed that hope all together.

This sucks, my brain still knows what to do, I still want to do it, but

this body won't let me.

,

[Guest guest]

I'm so sorry . Is there a way you can adjust the way you are sitting or

sit with a heating pad? When my back does that I sit with a heating pad.

(((huggles)))

wrote:

As I posted before my boss called me to work 3 days to help him catch

up on a few things. Well Monday I made it 4 hours and my lower back was

throbbing. Today I made it 5 and 1/2 hours and my lower back felt like

it was going to explode. I thought a long time ago that I would never

be able to work full time again, but there was always a sliver of hope

that I was wrong. Well this week has crushed that hope all together.

This sucks, my brain still knows what to do, I still want to do it, but

this body won't let me.

,

------------------------------------

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

I can so relate. I don't know what I am going to do. I still am forcing myself

to work full time out of pure necessity, but I don't know how I am still doing

it. Last night I came home and the fibro beast was really bad to me. I was

hurting severely everywhere, and was so damn exhausted it was hard to even take

a bath. My body keeps telling me " no " and I have to keep moving. It sucks. I

am not able to work anymore. I know this. I am just hanging on by a thread.

I sure understand the back pain honey. It seems it use to be mostly my upper

back that hurt. Now days it is my lower back too. It feels like someone beat it

with a board. Stiff, and full of pain. I am just hoping an answer to this will

come to me because I cannot see myself working like this another 20 something

years. I have two young kids and I don't know how in the hell I am going to

provide for them into adulthood.

love and hugs,

Debra V.

wrote:

As I posted before my boss called me to work 3 days to help him catch

up on a few things. Well Monday I made it 4 hours and my lower back was

throbbing. Today I made it 5 and 1/2 hours and my lower back felt like

it was going to explode. I thought a long time ago that I would never

be able to work full time again, but there was always a sliver of hope

that I was wrong. Well this week has crushed that hope all together.

This sucks, my brain still knows what to do, I still want to do it, but

this body won't let me.

,

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Debra,

I'm in the same boat also. Every month it gets harder and harder to

work full time. It has gotten routine now that by Thursday evening on

the way home I am nauseous from the pain and fatigue or I have to

pull over and take a short nap just to make it the hour's drive home.

I have cried until there are no tears left trying to figure out what

me and the kids are going to do. I am lucky that my daughter is 17

and a junior in high school. She will be at home a little over one

more year and then will be in college. But honestly, I don't know how

I'm going to make it through the next year 1/2 to get her out of hte

house and to college. It scares me to no end because if I don't work

there is no other solution. I am the only support for me and my kids,

my parents are on a tight fixed retirement income and can not help,

my sister and her husband are struggling more than I am and I would

end up homeless before ever being able to get disability, especially

since the only person I've ever seen for my fibromyalgia is a

licensed nurse practioner never been to a specialist.

Anyway, enough of my rambling. Keep you chin up and hopefully things

will work out for the best for all of us!!

N.

[Guest guest]

I know you feel it is out of necessity to work, but I am afraid you are

doing more harm to your body. Do you have medical leave? Maybe take the time

to apply for ssi, so when You absolutely need to quit, you have something. I

am worried about you.

<http://www.pyzam.com/graphics/details/1654>

On Wed, Mar 26, 2008 at 11:45 AM, debra van ness

wrote:

> I can so relate. I don't know what I am going to do. I still am forcing

> myself to work full time out of pure necessity, but I don't know how I am

> still doing it. Last night I came home and the fibro beast was really bad

> to me. I was hurting severely everywhere, and was so damn exhausted it was

> hard to even take a bath. My body keeps telling me " no " and I have to keep

> moving. It sucks. I am not able to work anymore. I know this. I am just

> hanging on by a thread.

> I sure understand the back pain honey. It seems it use to be mostly my

> upper back that hurt. Now days it is my lower back too. It feels like

> someone beat it with a board. Stiff, and full of pain. I am just hoping an

> answer to this will come to me because I cannot see myself working like this

> another 20 something years. I have two young kids and I don't know how in

> the hell I am going to provide for them into adulthood.

>

> love and hugs,

> Debra V.

>

> wrote:

> As I posted before my boss called me to work 3 days to help him

> catch

> up on a few things. Well Monday I made it 4 hours and my lower back was

> throbbing. Today I made it 5 and 1/2 hours and my lower back felt like

> it was going to explode. I thought a long time ago that I would never

> be able to work full time again, but there was always a sliver of hope

> that I was wrong. Well this week has crushed that hope all together.

> This sucks, my brain still knows what to do, I still want to do it, but

> this body won't let me.

> ,

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

[Guest guest]

I am curious! And you know that means in want of answers. Since I am

working on the $*#@* income taxes, and while I doing so, I pulled the

receipt out from Allsup for all the good work they did in assisting me

in getting Social Security Disability. So, my question to the group as

a WHOLE, am I the only PERSON on this site to be declared disabled the

FIRST time at bat????>

I ask as I sometimes feel guilty when I read how many of you are doing

what I did for years, and that was get up and go work my 8 to 11 hours

a day. And then, with the death of my mother, there was the initial

small amount and later a larger amount, plus my husband is a fulltime

professional state employee (and, despite that fact, he is NOT making a

fortune, I will say that in this state that no matter how high up the

ladder you may climb or years you put in, you still are not getting

what you might earn in a private company.)

[Guest guest]

,

What a pity...and what frustration..like I said...the spirit is willing and the

body say no way. The longer I have the more I see that people will never

understand us and the frustration and pain we go through. I'm sorry honey, I

understand.

Hugs,

/Mi

I don't know if I can handle another day

As I posted before my boss called me to work 3 days to help him catch

up on a few things. Well Monday I made it 4 hours and my lower back was

throbbing. Today I made it 5 and 1/2 hours and my lower back felt like

it was going to explode. I thought a long time ago that I would never

be able to work full time again, but there was always a sliver of hope

that I was wrong. Well this week has crushed that hope all together.

This sucks, my brain still knows what to do, I still want to do it, but

this body won't let me.

,

[Guest guest]

>

Debra, what the hell can we do? Take a pill and go to work, hurt like

crazy and come home and carry on. I am really depressed at the thought

of spending the rest of my life acting like an old granny. I have

always been active, and my life has come to a screeching halt. Having

to stop and think first if I am able to run into the store is something

I can't wrap my mind around.

I have also been typing one type after another today. The mind is going

too. And I've always been a good speller...Ugh...

We have to hold on...no other choice, I guess.

Hugs,

/Mi

[Guest guest]

Well I have 2 problems w/ that, 1 I was sanding woodwork, I changed

positions from sitting to standing but a heating pad would never stay

in position, 2 and most important, heat causes my back to swell witch

makes the pain unbarable, it get's so bad I can't walk.

> As I posted before my boss called me to work 3 days to help him

catch

> up on a few things. Well Monday I made it 4 hours and my lower back

was

> throbbing. Today I made it 5 and 1/2 hours and my lower back felt

like

> it was going to explode. I thought a long time ago that I would

never

> be able to work full time again, but there was always a sliver of

hope

> that I was wrong. Well this week has crushed that hope all

together.

> This sucks, my brain still knows what to do, I still want to do it,

but

> this body won't let me.

> ,

>

>

> ------------------------------------

>

> 1. While it is wonderful to share our experiences with everyone on

the list as to what treatments do and don't work for us, pls always

check with your dr. Some treatments are dangerous when given along

with other meds as well as to certain health conditions or just

dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is)

pls don't be afraid to ask for help. It is the first step to trying

to make that situation better.

>

> 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-

unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling

bad at the same time when it comes to flares and b/c of that

potentially take something another member says the wrong way. And

that includes the things that one member may find funny (even if it's

laughing at fibro itself) even though we who deal with illness

whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad

day pls let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

[Guest guest]

I don't know how you all keep working, my problems started in my

lower back, and even though they can't find a reason, I lose the use of

my legs if I overdo it. I worked through the pain before that, and I

woder if I didn't just make the problem worse. As far as SSD is

concerned I have been turned down twice and the letter said both times:

We see that you are not phyically able to work in the jobs you have

done in the past and that your mental health issues make it very

difficult to work with people, but we feel that you can still work in

some other feild........explain to me someone WTH other feild is there?

If you can't do a physical job and you can't do a job that requires you

to deal directly with people.....What is left?.......Sorry, I am still

waiting for my hearing we put in for last July. Lawyer says, it takes

about 18 months to get a hearing schedulled.

[Guest guest]

No, , you're not the only one. I was approved first time out without

needing an attorney 10 years ago.

Jeanne in WI

I am curious! And you know that means in want of answers. Since I am working

on the $*#@* income taxes, and while I doing so, I pulled the receipt out from

Allsup for all the good work they did in assisting me

in getting Social Security Disability. So, my question to the group as a

WHOLE, am I the only PERSON on this site to be declared disabled the FIRST time

at bat????>

[Guest guest]

,

That is just obscene making people wait that long. I know, my leg this morning

was hurting so bad, but managing to be numb at the same time...how does that

work....I was so wishing I didn't have to go to work. I made it through the day

and now I am pooped. Take care, I do understand.

Hugs,

/Mi

Re: I don't know if I can handle another day

I don't know how you all keep working, my problems started in my

lower back, and even though they can't find a reason, I lose the use of

my legs if I overdo it. I worked through the pain before that, and I

woder if I didn't just make the problem worse. As far as SSD is

concerned I have been turned down twice and the letter said both times:

We see that you are not phyically able to work in the jobs you have

done in the past and that your mental health issues make it very

difficult to work with people, but we feel that you can still work in

some other feild........explain to me someone WTH other feild is there?

If you can't do a physical job and you can't do a job that requires you

to deal directly with people.....What is left?.......Sorry, I am still

waiting for my hearing we put in for last July. Lawyer says, it takes

about 18 months to get a hearing schedulled.

[Guest guest]

Hello there,

I have been there done that, as far as the work thing goes, I was the one

also trying to work 50-60 hrs a week, basically the sole support of my family

cuz my husband was self employed and his money wasn't dependable all the time. I

was at the point where I was crying every night on my hour long drive home, and

dreaded each day when I had to drag my aching body out of bed to do it all over

again, praying all the way that no one would call off for the day and I would

have to stay and fill that spot, especially a closer, that would mean I would be

there from 8 am to 10 pm if I couldn't find anyone to fill in....I am so

thankful I don't have to do that anymore and I really sympathize for all of you

that do.....But I also went through the whole financial thing, losing my income

when I couldn't do it anymore, including a bancruptcy and losing everything we

had cuz my husband couldn't replace my salary all the way, So, if you guys are

still working and you have sick time to

use, USE IT and drain what you have, before you quit.... don't be stupid like I

was and just quit......Check out the FMLA(family medical leave act) I'm not sure

if it applies to yourself or just caring for family members, but it's worth a

check.Hope this helps anyone,,,,,,,,,,,,,,,,,,,,,,,,,,,

Take care,

Pam

---------------------------------

OMG, Sweet deal for Yahoo! users/friends: Get A Month of Blockbuster Total

Access, No Cost. W00t

[Guest guest]

,

Yes, I am waiting too for my hearing. And I can still type although I

have to use spellcheck where before fibro, I could spell just about

anything! So theorectically, I could do typing from home, because

it's a controlled environment (for my asthma and allergies) and if I

start to hurt, I can take a pain pill and hit the couch for a little

while. But it won't in any way shape or form make up for the salary I

lost! And for SSD to think that, they are insane. None of us who are

in the process are crazy about just getting by, having LTD if we got

it thru our employer (which is generally only 40-60% of our salary

anyhow).....we would prefer to be able to work and earn our way thru

life.

Darlene

>

> I don't know how you all keep working, my problems started in my

> lower back, and even though they can't find a reason, I lose the

use of

> my legs if I overdo it. I worked through the pain before that, and

I

> woder if I didn't just make the problem worse. As far as SSD is

> concerned I have been turned down twice and the letter said both

times:

> We see that you are not phyically able to work in the jobs you have

> done in the past and that your mental health issues make it very

> difficult to work with people, but we feel that you can still work

in

> some other feild........explain to me someone WTH other feild is

there?

> If you can't do a physical job and you can't do a job that requires

you

> to deal directly with people.....What is left?.......Sorry, I am

still

> waiting for my hearing we put in for last July. Lawyer says, it

takes

> about 18 months to get a hearing schedulled.

>

[Guest guest]

problem with FMLA though is that it is UNPAID leave, doesn't help the

financial problems.

N.