Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Diane, You'll do fine. Not sure what meds they put you on (glucophage/metformin??) but generally it takes 48-72 hrs for any med to get into your system. I would google whatever you are taking and check to see how long it should take for you to see results. Don't be depressed. The hard part for me is remembering to eat, quite honestly. I don't have much of an appetite, but have found that if I DON'T eat, then my sugar goes thru the roof, which isn't good. So I force myself to eat, even if it's not as many carbs, at least it's " something " . Darlene > > Diane, > > I found out I had diabetes in October '07 and was > > still getting used > > to the lifestyle change when I got hit with the > > " you've got fibro " > > stick and I hadn't had a chance to absorb THAT when > > I spent 9 days in > > the hospital because my bronchitis brought on an > > asthma exacerbation. > > > > So I'm walking in your shoes, except for the > > paramedic part, and > > know how you feel. It's like - what else? And then > > you are afraid to > > ask that because there could be " something else " . > > > > They'll send you to a nutritionist. The easy " diet " > > I have found to > > follow is carb-based. I have 50 carbs or less for > > each meal (3 meals > > a day) and 15 carbs or less for each snack (3 a > > day). Since my night > > snack is a little higher in carbs, I'll eat a little > > less for either > > lunch or dinner to compensate. Unless I'm sick and > > on steroids, I've > > been able to maintain my sugars sufficiently that my > > A1C # dropped to > > 5.8 from where it was at in 3 months' time. You'll > > do fine. > > > > Darlene > > > > > > --------------------------------- > > Never miss a thing. Make Yahoo your homepage. > > > > [Non-text portions of this message have been > > removed] > > > > > > ------------------------------------ > > > > 1. While it is wonderful to share our experiences > > with everyone on the list as to what treatments do > > and don't work for us, pls always check with your > > dr. Some treatments are dangerous when given along > > with other meds as well as to certain health > > conditions or just dangerous in general. > > > > 2. If you are in a difficult situation (doesn't > > matter what it is) pls don't be afraid to ask for > > help. It is the first step to trying to make that > > situation better. > > > > 3. To unsubscribe the e-mail is: > > > Fibromyalgia_Support_Group-unsubscribe > > > > 4. Also, it is not uncommon for more than one member > > to be feeling bad at the same time when it comes to > > flares and b/c of that potentially take something > > another member says the wrong way. And that > > includes the things that one member may find funny > > (even if it's laughing at fibro itself) even though > > we who deal with illness whether one such as fibro > > or multiple illnesses try to keep a sense of humor. > > > > 5. Pls let's be gentle with each other, and if you > > are having a bad day pls let us know so that we can > > do our best to offer our support. > > > > Have a nice day everyone. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Thanks guys I guess we are all learning how to rewire ourselves. Diane --- ddean228 wrote: > Diane, > You'll do fine. Not sure what meds they put you on > (glucophage/metformin??) but generally it takes > 48-72 hrs for any med > to get into your system. I would google whatever you > are taking and > check to see how long it should take for you to see > results. > > Don't be depressed. The hard part for me is > remembering to eat, quite > honestly. I don't have much of an appetite, but have > found that if I > DON'T eat, then my sugar goes thru the roof, which > isn't good. So I > force myself to eat, even if it's not as many carbs, > at least > it's " something " . > > Darlene > > > > > Diane, > > > I found out I had diabetes in October '07 and > was > > > still getting used > > > to the lifestyle change when I got hit with > the > > > " you've got fibro " > > > stick and I hadn't had a chance to absorb THAT > when > > > I spent 9 days in > > > the hospital because my bronchitis brought on > an > > > asthma exacerbation. > > > > > > So I'm walking in your shoes, except for the > > > paramedic part, and > > > know how you feel. It's like - what else? And > then > > > you are afraid to > > > ask that because there could be " something > else " . > > > > > > They'll send you to a nutritionist. The easy > " diet " > > > I have found to > > > follow is carb-based. I have 50 carbs or less > for > > > each meal (3 meals > > > a day) and 15 carbs or less for each snack (3 > a > > > day). Since my night > > > snack is a little higher in carbs, I'll eat a > little > > > less for either > > > lunch or dinner to compensate. Unless I'm sick > and > > > on steroids, I've > > > been able to maintain my sugars sufficiently > that my > > > A1C # dropped to > > > 5.8 from where it was at in 3 months' time. > You'll > > > do fine. > > > > > > Darlene > > > > > > > > > --------------------------------- > > > Never miss a thing. Make Yahoo your homepage. > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > ------------------------------------ > > > > > > 1. While it is wonderful to share our > experiences > > > with everyone on the list as to what > treatments do > > > and don't work for us, pls always check with > your > > > dr. Some treatments are dangerous when given > along > > > with other meds as well as to certain health > > > conditions or just dangerous in general. > > > > > > 2. If you are in a difficult situation > (doesn't > > > matter what it is) pls don't be afraid to ask > for > > > help. It is the first step to trying to make > that > > > situation better. > > > > > > 3. To unsubscribe the e-mail is: > > > > > > Fibromyalgia_Support_Group-unsubscribe > > > > > > 4. Also, it is not uncommon for more than one > member > > > to be feeling bad at the same time when it > comes to > > > flares and b/c of that potentially take > something > > > another member says the wrong way. And that > > > includes the things that one member may find > funny > > > (even if it's laughing at fibro itself) even > though > > > we who deal with illness whether one such as > fibro > > > or multiple illnesses try to keep a sense of > humor. > > > > > > 5. Pls let's be gentle with each other, and if > you > > > are having a bad day pls let us know so that > we can > > > do our best to offer our support. > > > > > > Have a nice day everyone. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Diane, I am so glad you posted! I have been worried about you and wondering how you are doing. Are you feeling any better? I've missed you- R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: new member: infoTo: Breathe-Support Date: Tuesday, November 18, 2008, 3:00 PM : What province are you from? I am in New Brunswick. I was diagnosed with Pulmonary Fibrosis in June of last year and have been a member of this board for that same time period. There is a wealth of information here and there is always someone to answer your questions. The best thing is that their information is based on personal experience and not impersonal statistics. They are a very kind and caring group and always helpful. Diane IPF June 07New Brunswick, Canada From: voo99doo99 <undergroundm@ hotmail.com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, November 18, 2008 4:30:09 PMSubject: new member: info age 70; diagnosed based on CT scan in August, while doctors were looking for blood clots in either heart or lungs. Lung specialist characterizes the condition as mild; he has shown me the honeycomb pattern on his computer. He recommended 1.5 grams of NAC, which i have not yet started to take. I read online a recent report that implicates NAC with causing pulmonary hypertension.The doctor has never mentioned that IPF is a terminal illness.I have had to rely on information from the Mayo Clinic, Pulmonary Fibrosis Foundation, and a few other sites, to get a better grasp of what to expect.I have read that the median survival rate is 3 years after diagnosis. No one, however, discusses "quality of life" -- presumably that average of 3 years includes a lot of time spent in a state of being barely able to breathe.I have also read that a common pattern for IPF is for a person to be symptom-free for perhaps a year or two after diagnosis -- and then experience a sharp, rapid decline.My IPF may, or may not, be complicated by a heart condition: several weeks before the CT scan was done, I was told by an electrocardiologist that i had a flutter in one heart chamber, and atrial fibrillation in the other. (I had been taken to ER by ambulance, following an ECG done in a clinic, with a heart beat rate of nearly 200 bpm.) At the end of September, a catheter ablation was done to deal with the flutter. It apparently worked, but a recent Holter Monitor test showed that my arrythmia has increased by 12%, compared to one done prior to the ablation.) I am due to have another Holter Monitor test done on Nov 27th. (Due to the ablation, I was allowed to stop taking a beta blocker and digoxin -- and felt much less dizzy and disoriented as a result. I continue to take a blood thinner - warfarin.)An Oximeter test was done, also in late September, recording my oxygen levels during the night. I was deficient in oxygen 90% of the time, and "severely deficient" at times.My heart, it appears, is contributing to low levels of oxygen in my body. The lung specialist believes there is a crossover effect between heart and lungs (due to sleep apnea)and that both the irrythmia and oxygen deficiency are releated. He has ordered up a sleep study that will be done in the hospital, leading most likely to CPAP therapy.I am a non-smoker, not overweight, exercise by walking whenever I can (but in the last two months I notice a frequent shortage of breath and an increasing cough... not a deep cough, more like a reflex -- but now frequent.)As I said, the original CT scan was done in August. I was not aware of any IPF symptoms at that time. But now there is a feeling of "tightness" in my chest when I breathe, sometimes odd pains, and the frequent cough. I would like to have another CT Scan done by the end of the year -- but I don't know if the lung specialist will authorize it.I live in Canada, where most of what I need (except CPAP equipment) is covered by a government health plan. I would welcome having a doctor who is candid with me about IPF. I would also welcome any further information or advice that readers of this forum may care to provide. johnH Now with a new friend-happy design! Try the new Yahoo! Canada Messenger Quote Link to comment Share on other sites More sharing options...
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