Re: Think on this..... Fibromyalgia WONT kill us- ToBonnie

[Guest guest]

> >

> > Ok, just thoughts again that run through my head. I have been

> comtemplating the mystery of this illness. The truth is, NO ONE

> knows exactly what the hell it is. There are theories probably as

> thick as a text book, yet no one has it figured out. It is all

> pretty much a guessing game because they cannot pin point the

> monster. What is it really? Several answers are: it is too much

> substance P in the spinal fluid, it is autoimmune, it is not

> autoimmune it is a disease of the nervous system, it is toxins, it is

> a hidden virus they can't find, it is a mycoplasma, it is

> inflammatory in nature, it is not inflammatory, etc. etc. etc.

> >

> > I want to know for sure how they know the potential fatality of

> this illness? Ok, maybe it won't keel us over right away. Maybe it

> can. However, I suppose that so many of us have suffered for so

> many years and did not die from it. But think of it this way, fibro

> puts some people in bed for good. (some, not all). When you go to

> bed and can't hardly move and cannot care for yourself anymore, then

> the secondary health problems come into play. Just the immobility is

> dangerous to anyone. We are like a car that idles at about 6 or 8

> thousand RPM's instead of the healthy 1500 RPM's. Our muscles and

> nerves are in full gear and running all the time. If we took a car

> and punched the gas until it went into the red zone, it would not

> take long for the engine to blow. (just a little analogy). So, they

> think our bodies are not wearing out at an abnormal rate??

> >

> > And why the hell do I feel somedays like I am dying. I feel like

> everything in my body is screaming and starting to refuse to

> function.. For some it affects our bowels, our bladder/urinary

> tract. Fibro does somehow affect the heart too because it has been

> documented that alot of us have an irregular heartbeat. (I do). It

> affects the brain in that we become so clouded we can hardly

> concentrate or remember. It causes unexplained numbness and tingling

> that comes and goes at will. And don't forget the unrelenting

> pain. And lets mention the fact that people with fibromyalgia more

> often than not will get other illnesses that ARE fatal. Seems that

> Lupus comes close to going hand in hand with this unidentifiable

> crap. (as well as a host of other illnesses). Many people here have

> more diagnoses than fibro alone. Alot of those diseases set in AFTER

> the fibro went to work on us.

> >

> > My take on it? They don't know a damn thing about what this is.

> They are playing guessing games now. (not to say there is not some

> good research now). And it took so long for anyone to believe it

> is real that they simply did not care to research it much until

> recent years. How many poor souls went to their graves being labeled

> a " hypochondriac " ?

> >

> > I say it is more of a mystery than any other illness I have ever

> heard of. I am tired of it for myself and the many other lives it

> destroys. I am angry at a beast I cannot even put a identity on.

> >

> > If I died tomorrow (which I hope I wont).... they could not do

> any autopsy to find out if it was fibromyalgia that caused my heart

> attack or whatever natural cause they might lay it off to.

> >

> > I will bet they did not use to think MS could be fatal.

> Especially back in the days MS was also a stigma and not proven to be

> a REAL disease. And then..... they had to say " OH, we were wrong.

> This is a real disease now that we have found some evidence. And by

> the way, yeah it can kill you " .

> >

> > love and hugs,

> > Debra V.

> >

> >

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