Re: ... fibro attacks us without regards to weight Ditto= just to say

[Guest guest]

I just want to say your all correct in my head. It has nothing to do with

what weight one is. I had a major life threatening disorder at 19yrs old and it

put me at 126 lbs for my 5 " 10 ht. The thyroid was removed, I felt great until

after my last child was born, so this does fit what they say, onset child

bearing age, though lived through Hell all those yrs., as the Dr's blamed it on

thyroid disease, 3 sm children stess etc. Nothing titled until 4 yrs ago.

Fibro attacks all. It makes me mad also what we go through, it makes me mad the

people who shrug us off as nuts, attention seekers or whatever, but it also

makes me angry at this disease, I mean after all if I have to hurt this bad

every day maybe the rest of my life as it has been doing it half of it now, I

can't take my meds and get pain free, only the edge taken off. And your right

what about the days we look like crap, unkept because to painfull, to exhausted

to do something extra to ourselves, what about the

times we want to go somewhere so bad, and if we happen to get ourselves there,

the prep and energy doing it causes me to leave the place soon as I can. And all

the other things that go with this disease. Afterall I catch myself thinking,

if I have to be this way then dang why isn't this disease visible to others, why

don't I have spots all over me, grow extra limbs or something so I will

understand when I get weird looks when I tell people I feel awfull, and they

look at ya like ya right, what possible can be that bad, you look good! I

really think they need to do better with putting the disease out there showing

like anatomoy or our body in skelation form seeing my nerves throughout my body

burning in flames, knives stuck in various areas of the body, ice cold water

dripping down oneside of the body while the other side just refuses t move for

you, and when you push it to go it feels like your snapping your spine and limbs

in a million peices. And now I also notice my

eyes are going in and out again! So to the commercial doesn't matter who is

one there if they would make it more graphic, so people would gasp! when it

first came on. At least this is how I feel today. I don't even look at myself

much anymore, one day I will look and be horrified, right now I have been to

sick to long! Hope you all a lighter day. Take Care

Sharon

jill larion wrote: Statistically people with

fibro are overweight. This is due to the fact that the thyroid and adrenals are

often off and many of the meds cause weight gain. This does not mean thin people

can not have fibro. I agree that they should not portray an overweight person in

a fibro commercial because of the stigma of " fat " people in this country. Most

people would probably think if she would lose weight she would be fine.....which

we know is not true. Yes, even skinny can suffer as much as anyone else.

Although, I think excess weight will contribute to more pain. I know when I'm

carrying extra weight my joints hurt more which adds to my fibro pain.

My complaint with the commercial is it does not portray the seriousness of fibro

and how devastating it is on one's life, including their family. The woman

sitting in the chair with her make up and hair done saying that she has had a

tough day because she is sore........really? Is that what most fibro people feel

is a tough day? To me, being sore is having a good day! A bad day is when my

body hurts so bad that I feel like dieing. I have days when it's too painful to

change the channel with the remote or I can't eat because I can't stop crying.

On a good day I have my hair and make up done and am just sore and it hurts to

write.

~Jill

Re: fibro commercial..... fibro attacks us without regards to

weight

I must say that I have talked to several people who are not overweight and have

fibro. Actually, I guess alot of us are overweight. But.... When we look at it

that way then it may lead people to believe that fat causes fibro. I mean, if I

dropped 50 pounds, I am sure my muscles and everything else would still hurt. It

really has nothing to do with weight I think. And .... If they depicted an

overweight person on that commercial.... then people might tend to just say

" well, if the woman would lose weight maybe she would not hurt " . Fibro attacks

people of every size, every ethnic group, socioeconomic group, every age and

every walk of life.

hugs,

Debra V.

wrote:

" It really irks me when I see that aenorexic, thin boney women in

Pfizer's Lyrica comercial. She is no good represention of a fibro

patient. Based on what I have read here, many of you most likely may be

overweight. Even I am bigger than that boney woman. How can she have a

lot of muscle pain when she doesn't show much muscle? "

Well, don't I feel like an idiot. I guess I must not have fibro since I am not

overweight, although I'm not anorexic anymore. I was in high school but hey, who

cares, right? Yeah, I can get out of bed most mornings and deal with my pain but

only because I have to go to work so I can afford my meds. Sorry that I am also

a " thin, boney woman " . Did it ever occur to anyone that most Americans are

overweight? I'm sorry that I can't gain weight no matter what I do. I don't eat

out a lot, in fact I don't eat a lot anyway because of my issues from having my

gall bladder out.

I don't show much muscle, but they are there and they hurt. And I also keep a

diary. I might not write more than a few sentences but I keep one. Yes, my hand

goes numb and my arm hurts but I do it.

Guess I will go back to the doctor and tell them I have been misdiagnosed since

I'm not overweight, thin and boney and I can write in a diary.

You all may have thought that commercial didn't portray a " real " fibro patient.

But it personally hurts me to feel like I can't have fibro because I'm not fat

and because I can do things others can't. I understand that there are people out

there that are disabled because of this disease, but you don't have to make

others feel like we can't have it because we aren't disabled. Everyone is

different.

I won't be checking my mail for a few days so I have a chance to let this

subject blow over so I don't get anymore upset than I am.

---------------------------------

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[Guest guest]

My weight as an adult remained at a steady 135lbs until I was 37yrs old.

At 6 ft tall that's very thin.

I didn't gain weight until after I was married and went up to 175lbs,

at one time I weighed 195lbs and figured the it was helping my L5

herniation to have a gut pulling on it.

It didn't seem to change anything despite what I weighed, the skinny

135lbs, the normal 175lbs, or the too much 195lbs.