Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 HI ,I just want to make sure I understand the dosing; Kirkman Labs sells n-acetyl in 100 mg. capsules. So in other words, you would give 20 of those if you wanted to try a 2000 mg dose?Did you divide the dose, or build up to it?How long before you saw a difference?Thank,Eileen > > Hi , > > Very interested in N-acetyl cysteine. I see that, in addition to everything else, it can also prevent some types of seizures. What type of dosage are you giving a 280-lb young man? Mine is not far behind at 240. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 I take this myself to clean out toxins. You have to take buffered vitamin C to protect the stomach. I have not had as many colds/lung problems/ etc since I've been taking it and I work with really sick children. Cheryl To: sList Sent: Thu, April 21, 2011 10:19:20 AMSubject: Re: Re: Need help! Aggression has become dangerous Where can this be purchased? Thanks in advance...> > Apple pectin and gigas (Korean Herb found in the NOW product Ache Action) will both lower testosterone. The issue is when the kids are younger they have a better chance of keeping the testosterone down with natural supplements. When they hit puberty at 13 or worse yet when they get between 18 and 21, the testosterone is too high to reduce naturally due to the dangerous behaviors. The high testosterone will also increase not only aggression but OCD and anxiety. The whole combination is deadly because behaviors can become almost psychotic. Psychotropic drugs such as resperdal will keep androgens down (testosterone) because prolactin is up. But the side effects are not good and many times the drugs stop working after a while. What is interesting is these drugs are used also with schizophrenics for the rage and psychotic behaviors. We have an office here in Tamarac for Dr. Mark Geier who treats over 1500 patients with autism and high testosterone across the US. This has a name....Hyperandrogenemia and if this is the problem your daughter has, you will at least be in the right place for help. Badillo9@...> > > > I am so sorry for you. My son who weighs 200 lbs. used to have very aggressive violent outbursts. He occasionally still has them. A lot of autistic kids have a genetic marker for excessive testosterone. My son is one of those kids. My son takes niacinamide, and lemon balm as well as stavzor (Depakote) to control this. We keep xanax on hand to give him if the situation gets really bad. Believe it or not eating peas will lower testosterone levels. In fact a German study was done on the effects of peas and beans on testosterone levels. I know how upsetting this is for you. When you see your child's signs that she is going to have an explosive situation, maybe giving her an ibuprofin would help. Sometimes it is hard for our kids to express when they have a headache, earache, etc. > A big thing with my son is staying calm and not being aggressive toward him during an "episode" As soon as he starts to "get of kilter" I usually take him to his room and tell him to stay there until he can calm down. Sometimes he will fall asleep and when he awakens he is as sunny and happy as ever. I often have to remind my husband and other sons not to interfere, as their first response is to become aggressive and to say what my DD son perceives as threatening type things to him, (i.e. knock it off, don't threaten your mother or you'll have to deal with me.) or they yell at him. Sometimes I just put my son in the car and we go for a long ride until he eventually has a good cry and calms down. When my son is having a day when everything seems to frustrate or upset him I try to take him to the beach, the park, or even shopping to get him away from the things that stress him. I don't think there is any real solution to this problem, but there are some thi ngs we can do to make it a little less upsetting. > Glenda> > > >> > > > Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.> > > > We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. > > > > We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.> > > > Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.> > > > Thanks.> > > > > > > > >> >> > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Jean, Thanks so much for sharing. So far we are not impressed with Joe Dimaggio. The psychaitrist that was assigned to my daugher's case has the bedside manner of a pill. Ugh! So, we will definately not be seeing him again. We live in Weston, but if your doctor is really that good and worth it, I can drive to Boca. Jean, if you don't mind me asking, now that things are stable with your child, how often do you have to go to the psychiatrist? Anyone else with a good psychaitrist that they can recommend, I'm all ears. Thanks. >>Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.>>We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. >>We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.>>Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.>>Thanks.>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 When we gave our boy NAC orally it made him wild, but he gets it intravenously when he gets IV chelation and it has a calming affect on him. Re: Re: Need help! Aggression has become dangerous There was a study using N-acetyl cysteine on ADHD preschoolers who were aggressive. We used that dose on our snarly, nasty 280 lb 2o year old bipolar Aspie, and there was a HUGE, and I mean HUGE difference. He smiles again. Wish we had known it when he was more violent. And he was. Very. > > Apple pectin and gigas (Korean Herb found in the NOW product Ache Action) will both lower testosterone. The issue is when the kids are younger they have a better chance of keeping the testosterone down with natural supplements. When they hit puberty at 13 or worse yet when they get between 18 and 21, the testosterone is too high to reduce naturally due to the dangerous behaviors. The high testosterone will also increase not only aggression but OCD and anxiety. The whole combination is deadly because behaviors can become almost psychotic. Psychotropic drugs such as resperdal will keep androgens down (testosterone) because prolactin is up. But the side effects are not good and many times the drugs stop working after a while. What is interesting is these drugs are used also with schizophrenics for the rage and psychotic behaviors. We have an office here in Tamarac for Dr. Mark Geier who treats over 1500 patients with autism and high testosterone across the US. This has a name....Hyperandrogenemia and if this is the problem your daughter has, you will at least be in the right place for help. Badillo9@... > > > > I am so sorry for you. My son who weighs 200 lbs. used to have very aggressive violent outbursts. He occasionally still has them. A lot of autistic kids have a genetic marker for excessive testosterone. My son is one of those kids. My son takes niacinamide, and lemon balm as well as stavzor (Depakote) to control this. We keep xanax on hand to give him if the situation gets really bad. Believe it or not eating peas will lower testosterone levels. In fact a German study was done on the effects of peas and beans on testosterone levels. I know how upsetting this is for you. When you see your child's signs that she is going to have an explosive situation, maybe giving her an ibuprofin would help. Sometimes it is hard for our kids to express when they have a headache, earache, etc. > A big thing with my son is staying calm and not being aggressive toward him during an "episode" As soon as he starts to "get of kilter" I usually take him to his room and tell him to stay there until he can calm down. Sometimes he will fall asleep and when he awakens he is as sunny and happy as ever. I often have to remind my husband and other sons not to interfere, as their first response is to become aggressive and to say what my DD son perceives as threatening type things to him, (i.e. knock it off, don't threaten your mother or you'll have to deal with me.) or they yell at him. Sometimes I just put my son in the car and we go for a long ride until he eventually has a good cry and calms down. When my son is having a day when everything seems to frustrate or upset him I try to take him to the beach, the park, or even shopping to get him away from the things that stress him. I don't think there is any real solution to this problem, but there are some thi ngs we can do to make it a little less upsetting. > Glenda > > > > > > > > Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well. > > > > We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. > > > > We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do. > > > > Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER. > > > > Thanks. > > > > > > > > > > > > > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Dear Jean: We use Dr. Devra Mintz. She is an excellent doctor, she tries to stay very neutral and keeps everything very professional, but she really cares. She is expensive and doesn't accept most insurance coverage, but she is fantastic at prescribing the right meds and keeping up with progress. She is worth the money. Sandy>>Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.>>We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. >>We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.>>Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.>>Thanks.>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 P.S. Dr. Mintz is in Weston.>>Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.>>We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. >>We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.>>Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.>>Thanks.>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 You are right. Not to mention, sulphur by mouth feeds yeast. That is a problem with DMSA chelation. You *have* to fix the leaky gut in the first place. That is the first step in treating these kids. Probiotics, antiyeast. Rinse, repeat. The violence can come from just leaky gut and dysbiosis alone. I also think that I would not do this in any kid that did not have omega 3's on board for a while--at least a month or two. It would be like revamping the copper in the wires of your house without fixing the insulation. I got 500's at an integrative pharmacy here and gave him 4, but he is beast size. If he was smaller, I would probably start at the usual dose and go up, observing for effect. > > A word of caution using NAC Nacetylcysteine with autism. The higher functioning kids(Aspies and ADHD) might tolerate it fine, but, this is a sulphur based amino acid needed to make glutathione and children with autism do not absorb well sulphur based supplements due to the state of their GI tracts and will be very reactive. NAC helps detox heavy metals. Not all kids do well on it. So if your child is already violent you might want to consider something else. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 What brand of NAC do you give and where do you get it? When should it be given? I'd like to give it to my sons. I take this myself to clean out toxins. You have to take buffered vitamin C to protect the stomach. I have not had as many colds/lung problems/ etc since I've been taking it and I work with really sick children. Cheryl To: sList Sent: Thu, April 21, 2011 10:19:20 AMSubject: Re: Re: Need help! Aggression has become dangerous Where can this be purchased? Thanks in advance...> > Apple pectin and gigas (Korean Herb found in the NOW product Ache Action) will both lower testosterone. The issue is when the kids are younger they have a better chance of keeping the testosterone down with natural supplements. When they hit puberty at 13 or worse yet when they get between 18 and 21, the testosterone is too high to reduce naturally due to the dangerous behaviors. The high testosterone will also increase not only aggression but OCD and anxiety. The whole combination is deadly because behaviors can become almost psychotic. Psychotropic drugs such as resperdal will keep androgens down (testosterone) because prolactin is up. But the side effects are not good and many times the drugs stop working after a while. What is interesting is these drugs are used also with schizophrenics for the rage and psychotic behaviors. We have an office here in Tamarac for Dr. Mark Geier who treats over 1500 patients with autism and high testosterone across the US. This has a name....Hyperandrogenemia and if this is the problem your daughter has, you will at least be in the right place for help. Badillo9@...> > > > I am so sorry for you. My son who weighs 200 lbs. used to have very aggressive violent outbursts. He occasionally still has them. A lot of autistic kids have a genetic marker for excessive testosterone. My son is one of those kids. My son takes niacinamide, and lemon balm as well as stavzor (Depakote) to control this. We keep xanax on hand to give him if the situation gets really bad. Believe it or not eating peas will lower testosterone levels. In fact a German study was done on the effects of peas and beans on testosterone levels. I know how upsetting this is for you. When you see your child's signs that she is going to have an explosive situation, maybe giving her an ibuprofin would help. Sometimes it is hard for our kids to express when they have a headache, earache, etc. > A big thing with my son is staying calm and not being aggressive toward him during an "episode" As soon as he starts to "get of kilter" I usually take him to his room and tell him to stay there until he can calm down. Sometimes he will fall asleep and when he awakens he is as sunny and happy as ever. I often have to remind my husband and other sons not to interfere, as their first response is to become aggressive and to say what my DD son perceives as threatening type things to him, (i.e. knock it off, don't threaten your mother or you'll have to deal with me.) or they yell at him. Sometimes I just put my son in the car and we go for a long ride until he eventually has a good cry and calms down. When my son is having a day when everything seems to frustrate or upset him I try to take him to the beach, the park, or even shopping to get him away from the things that stress him. I don't think there is any real solution to this problem, but there are some thi ngs we can do to make it a little less upsetting. > Glenda> > > >> > > > Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.> > > > We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. > > > > We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.> > > > Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.> > > > Thanks.> > > > > > > > >> >> > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 I'm sorry to hear that your daughter had to be admitted. Both times my daughter was admitted to the hospital were heartbreaking. But, they also gave me a chance for a respite because i knew she was safe and to regroup. I found that the hospital doctors had no interest in talking to my daughter's doctors at all and very little interest in talking to me. In fact, the doctor at Miami Childrens told me to stop calling her and to speak with a care coordinator who never had any answers to my questions. I pray that things go better for you. Afted the hospital.admissions i would take.her to the psychiatrist every 3 to 4 weeks. We had a lot of communication over the phone though and that was a big help. We are now seeing the psychiatrist every 6 weeks. More importantly, we started seeing her psychologist every week. He is amazing. The weekly visits have been difficult as they are expensive but she has made so much progress it has been worth it. I did not know about this list serve when all of this was happening and felt very alone... Very despairing. The people on the list have amazing advice and wisdom. You are definitely NOT alone. Keep us posted on your daughter and yourself. Sending you hugs. Jean Jean Eccleston Sent from my Samsung Captivate on AT & T A P wrote: >Jean, > >Thanks so much for sharing. > >So far we are not impressed with Joe Dimaggio. The psychaitrist that was assigned to my daugher's case has the bedside manner of a pill. Ugh! > >So, we will definately not be seeing him again. We live in Weston, but if your doctor is really that good and worth it, I can drive to Boca. > >Jean, if you don't mind me asking, now that things are stable with your child, how often do you have to go to the psychiatrist? > >Anyone else with a good psychaitrist that they can recommend, I'm all ears. > >Thanks. > > > > > >> >>Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well. >> >>We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. >> >>We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do. >> >>Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER. >> >>Thanks. >> >> >> >>> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Hi, First I want to say how sorry I am that you are experiencing this type of frightening behavior. I also want to tell you that you are in no way alone. If you were an abused spouse you could flee the dangerous and emotionally painful situation you are experiencing, but this is your child and there is nowhere to run. I am the parent of two children with Autism, although my son is really no longer a child in size or age. This birthday he turns 21, and we have been dealing with aggression and self injury since he entered middle school.When dodging a 300 pound 6 ft. charging Autistic man, it can get scary, even with a great behavioral plan on board. The individuals that work with my son are trained to expected the unexpected, and while I cringe each time one of them is bruised by my son I look at any and all factors leading up to the act of aggression. Sometimes there are just no easy answers. There are times that we will never know why an aggressive episode occurs because there may be internal factors we are unable to assess. There are many pharmacological choices many of which we have tried, and I have found that a regular "cocktail" of meds including Depakote and Abilify are helpful. Perhaps the most useful thing I'd like to say to you is you will make it through this and figure out what works best. This is not unlike everything else you have made it through over the last many years, but perhaps, knowing there are others out there will make it less painful. Be Strong and when you don't know where to turn come here to the list where will make sure your voice is heard. Ruth Singer-Strunck Need help! Aggression has become dangerous Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well. We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and wha t she could do. Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 That is why my child can only tolerate NAC intravenously. When it has top go through his GI tract the sulpur feeds the yeast and bacteria and before we know it we have a full blown case of wild child on our hands. Re: Re: Need help! Aggression has become dangerous A word of caution using NAC Nacetylcysteine with autism. The higher functioning kids(Aspies and ADHD) might tolerate it fine, but, this is a sulphur based amino acid needed to make glutathione and children with autism do not absorb well sulphur based supplements due to the state of their GI tracts and will be very reactive. NAC helps detox heavy metals. Not all kids do well on it. So if your child is already violent you might want to consider something else. There was a study using N-acetyl cysteine on ADHD preschoolers who were aggressive. We used that dose on our snarly, nasty 280 lb 2o year old bipolar Aspie, and there was a HUGE, and I mean HUGE difference. He smiles again. Wish we had known it when he was more violent. And he was. Very. > > Apple pectin and gigas (Korean Herb found in the NOW product Ache Action) will both lower testosterone. The issue is when the kids are younger they have a better chance of keeping the testosterone down with natural supplements. When they hit puberty at 13 or worse yet when they get between 18 and 21, the testosterone is too high to reduce naturally due to the dangerous behaviors. The high testosterone will also increase not only aggression but OCD and anxiety. The whole combination is deadly because behaviors can become almost psychotic. Psychotropic drugs such as resperdal will keep androgens down (testosterone) because prolactin is up. But the side effects are not good and many times the drugs stop working after a while. What is interesting is these drugs are used also with schizophrenics for the rage and psychotic behaviors. We have an office here in Tamarac for Dr. Mark Geier who treats over 1500 patients with autism and high testosterone across the US. This ha s a name....Hyperandrogenemia and if this is the problem your daughter has, you will at least be in the right place for help. Badillo9@... > > > > I am so sorry for you. My son who weighs 200 lbs. used to have very aggressive violent outbursts. He occasionally still has them. A lot of autistic kids have a genetic marker for excessive testosterone. My son is one of those kids. My son takes niacinamide, and lemon balm as well as stavzor (Depakote) to control this. We keep xanax on hand to give him if the situation gets really bad. Believe it or not eating peas will lower testosterone levels. In fact a German study was done on the effects of peas and beans on testosterone levels. I know how upsetting this is for you. When you see your child's signs that she is going to have an explosive situation, maybe giving her an ibuprofin would help. Sometimes it is hard for our kids to express when they have a headache, earache, etc. > A big thing with my son is staying calm and not being aggressive toward him during an "episode" As soon as he starts to "get of kilter" I usually take him to his room and tell him to stay there until he can calm down. Sometimes he will fall asleep and when he awakens he is as sunny and happy as ever. I often have to remind my husband and other sons not to interfere, as their first response is to become aggressive and to say what my DD son perceives as threatening type things to him, (i.e. knock it off, don't threaten your mother or you'll have to deal with me.) or they yell at him. Sometimes I just put my son in the car and we go for a long ride until he eventually has a good cry and calms down. When my son is having a day when everything seems to frustrate or upset him I try to take him to the beach, the park, or even shopping to get him away from the things that stress him. I don't think there is any real solution to this problem, but there are some thi ngs we can do to m ake it a little less upsetting. > Glenda > > > > > > > > Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well. > > > > We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. > > > > We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do. > > > > Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER. > > > > Thanks. > > > > > > > > > > > > > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 You can do the DMSA suppositories so the sulphur does not have to pass through the GI tract. We can only make it up to Melbourne once a month to get IV chelation at our DAN Dr.'s office so we do two suppositories a week in between. Where do you guys all get your chelation done down here? We went to Dr. Levinson's in SOBE for a year and then we had a nurse named come to our house for a while but now we just drive to Dr. Rossignal's office because his nurses are so gentle with my little guy and I feel really comfortable with them. Re: Re: Need help! Aggression has become dangerous You are right. Not to mention, sulphur by mouth feeds yeast. That is a problem with DMSA chelation. You *have* to fix the leaky gut in the first place. That is the first step in treating these kids. Probiotics, antiyeast. Rinse, repeat. The violence can come from just leaky gut and dysbiosis alone. I also think that I would not do this in any kid that did not have omega 3's on board for a while--at least a month or two. It would be like revamping the copper in the wires of your house without fixing the insulation. I got 500's at an integrative pharmacy here and gave him 4, but he is beast size. If he was smaller, I would probably start at the usual dose and go up, observing for effect. > > A word of caution using NAC Nacetylcysteine with autism. The higher functioning kids(Aspies and ADHD) might tolerate it fine, but, this is a sulphur based amino acid needed to make glutathione and children with autism do not absorb well sulphur based supplements due to the state of their GI tracts and will be very reactive. NAC helps detox heavy metals. Not all kids do well on it. So if your child is already violent you might want to consider something else. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 I agree with a whole heart what my sweet friend Ruth just shared. I too can relate and like Ruth I to have a twenty one year old 250 lb man son. And although I strongly agree with so many of the suggestions you were given. pharmacology is never a cure all, I do believe that we all need to combine forces for the future of our adult children. The schools have in my estimination fallen short on how to work with this population. Often putting them in classrooms with other emotionally difficult kids, where they become a target. And all the great principals that work for kids with ADS go out the window. I watched the autism community move mountains with our young children. Why do they become so disposable in adult hood. I really think these are things we need to be talking about. Clearly with all the post on this subject our children are no longer the minority in the autism world. I wish you all peace in this really difficult time, keep sharing we will figure this out. WE HAVE TOO!!!Kim GluskyFrom:strunckies@...Subject:Re: Need help! Aggression has become dangerousDate:April 21, 2011 7:17:54 PM EDTTo:sList Hi,First I want to say how sorry I am that you are experiencing this type of frightening behavior. I also want to tell you that you are in no way alone. If you were an abused spouse you could flee the dangerous and emotionally painful situation you are experiencing, but this is your child and there is nowhere to run.I am the parent of two children with Autism, although my son is really no longer a child in size or age. This birthday he turns 21, and we have been dealing with aggression and self injury since he entered middle school.When dodging a 300 pound 6 ft. charging Autistic man, it can get scary, even with a great behavioral plan on board. The individuals that work with my son are trained to expected the unexpected, and while I cringe each time one of them is bruised by my son I look at any and all factors leading up to the act of aggression.Sometimes there are just no easy answers. There are times that we will never know why an aggressive episode occurs because there may be internal factors we are unable to assess.There are many pharmacological choices many of which we have tried, and I have found that a regular "cocktail" of meds including Depakote and Abilify are helpful.Perhaps the most useful thing I'd like to say to you is you will make it through this and figure out what works best. This is not unlike everything else you have made it through over the last many years, but perhaps, knowing there are others out there will make it less painful. Be Strong and when you don't know where to turn come here to the list where will make sure your voice is heard.Ruth Singer-Strunck Need help! Aggression has become dangerous Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and wha t she could do.Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.Thanks. Quote Link to comment Share on other sites More sharing options...
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