Need help! Aggression has become dangerous

April 22, 2011

We have been seeing Dr. Armenteros in Coral Gables. He keeps Blake fairly stable through a cocktail of 3 medications plus one for emergencies. Blake was stable on Risperdal for some years, but eventually we had to add a couple of more drugs into the mix, This cocktail approach seems to be fairly common. The doctors usually use seizure medications as an additional drug since they have the effect as a mood stabilizer as well. Same with some blood pressure lowering medications. Blake took those for years until we had to switch. Now one of his medications is Lithium, which has not only helped his aggression and SIBs but also his cognitive abilities. It seemed to clear the fog a bit. But its not a panacea. He lives at home with me, but I am rarely alone with Blake in the case he has a mood swing. He can hurt me, but more scary is that he can hurt himself. I work out to try and keep strong (and to deal with a herniated disk I got along the way), but the reality is that he is much stronger than me.

Unfortunately, aggression appears to be quite common among the older adolescents and young adults. I keep a red soft judo helmet in several rooms of our home as well as one at school to protect Blake's head. When he gets mad, he may try to bang his head on the floor or another hard object. I also allow the school to use restraint (PCM) which is carried out by trained people (though last time they botched it up and we ended up in the ER) to protect him. But they are willing to keep him at the school rather than put him in a school or facility for aggressive students, so I try to work with them as best I can.

Personally, I think dealing with aggression is by far the most difficult thing we as parents have to deal with. Blake has 2 more years until he is out of school. The real job is to find a post secondary placement that will not only be a good and productive experience for him, but also a place in which they can handle his occasional outbursts.

My heart goes out to all of your parents who are dealing with aggression in your children. It is heartbreaking to have to accept the fact that your child can hurt you or themselves as well as the fact that very strong medications have to be a part of their daily existence. My thoughts are with you.

April 22, 2011

Hi all,I have a 11 yr old autistic son whos behavior has recently change ,he is becoming more aggressive in school and at home.We took him to Dr.Tuchman at the Dan Marino Center,he gave him VYVANCE,he did not mention anything about his growth (level of testosterone)It is now so interesting to see all the other parents out there going through similar situation and reading about Dr Mark Geier,has anyone taken their son or daughter to see this Dr as yet and how is it working out for you.Please share as I am desperate for some solution to my sons behavior.

Thanks to all

To: sList Sent: Thu, April 21, 2011 7:17:37 PM.Subject: Re: Re: Need help! Aggression has become dangerous

You can do the DMSA suppositories so the sulphur does not have to pass through the GI tract. We can only make it up to Melbourne once a month to get IV chelation at our DAN Dr.'s office so we do two suppositories a week in between. Where do you guys all get your chelation done down here? We went to Dr. Levinson's in SOBE for a year and then we had a nurse named come to our house for a while but now we just drive to Dr. Rossignal's office because his nurses are so gentle with my little guy and I feel really comfortable with them.

Re: Re: Need help! Aggression has become dangerous

You are right. Not to mention, sulphur by mouth feeds yeast. That is a problem with DMSA chelation.You *have* to fix the leaky gut in the first place. That is the first step in treating these kids. Probiotics, antiyeast. Rinse, repeat. The violence can come from just leaky gut and dysbiosis alone. I also think that I would not do this in any kid that did not have omega 3's on board for a while--at least a month or two. It would be like revamping the copper in the wires of your house without fixing the insulation.I got 500's at an integrative pharmacy here and gave him 4, but he is beast size.If he was smaller, I would probably start at the usual dose and go up, observing for effect.> > A word of caution using NAC Nacetylcysteine with autism.

The higher functioning kids(Aspies and ADHD) might tolerate it fine, but, this is a sulphur based amino acid needed to make glutathione and children with autism do not absorb well sulphur based supplements due to the state of their GI tracts and will be very reactive. NAC helps detox heavy metals. Not all kids do well on it. So if your child is already violent you might want to consider something else. >

April 22, 2011

Thank you Kim and Ruth...

I have been there many times myself....around age 12-13 and more recently as my son heads towards 18 years of age.

I agree that the right medicine (risperdal, zprexa or ability) and a great behavioral plan with reinforcers and consequences

is the way to go. I was mostly the one getting hit, grabbed and bruised because I was the one making most of the demands.

Although it was a very painful and frightening time, I would remind myself that my special child/young adult didn't mean to

harm me-he was just temporarily out of control.

I hope this difficult time passes quickly and remain strong.

Weinkle

Need help! Aggression has become dangerous

Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.

We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem.

We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid a

nd wha t she could do.

Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.

Thanks.

April 22, 2011

I realize I'm coming in on the tail end of this but some things crossed my mind...Have you consulted with a behavior analyst to determine the function of the behavior.There's a lot of research indicating that psychotropics are over prescribed and over utilized in our kids and the drugs do not ever address the function or teach the individual skills. I realize you are in a quandary because you are fearful for the safety of her and others but my first recommendation would be to have a behavioral assessment completed.Next steps if look at are as follows and in order:1. Biological, sensory needs. Always rule out any medical conditions first and treat prior to any other step. Really look at sensory sensitivities. That can strongly influence some of our kid's behaviors. Check (hunger, tired, pain/illness)2. Structure, or lack thereof, hard work, social demand3. Waiting: not getting what was wanted, having to stop something fun, disappointments4. Threats to self esteem: correction, criticism, losing, mistakes, teasing5. Unmet needs for attention: ignored, rejected, left aloneEmotional and behavioral supports:Use visuals, written rules/directions, timersGive warnings (5 minute countdown) for transitionsA 6-20 second response time for requestsAvoid restraint because it often escalates behavior.Teach calming strategies, self talk, counting, deep breaths, listen to music, play a game, anything to take her mind off what is bothersome.Help her to identify her feelings. Help to categorize emotions according to a green, yellow, red scale or the 5 point scale. If she doesn't have a communication system, she needs one.Hope this helps... Hang in there... We are all pulling for you!Sent from my iPhone

I'm sorry to hear that your daughter had to be admitted. Both times my daughter was admitted to the hospital were heartbreaking. But, they also gave me a chance for a respite because i knew she was safe and to regroup. I found that the hospital doctors had no interest in talking to my daughter's doctors at all and very little interest in talking to me. In fact, the doctor at Miami Childrens told me to stop calling her and to speak with a care coordinator who never had any answers to my questions. I pray that things go better for you.

Afted the hospital.admissions i would take.her to the psychiatrist every 3 to 4 weeks. We had a lot of communication over the phone though and that was a big help. We are now seeing the psychiatrist every 6 weeks. More importantly, we started seeing her psychologist every week. He is amazing. The weekly visits have been difficult as they are expensive but she has made so much progress it has been worth it.

I did not know about this list serve when all of this was happening and felt very alone... Very despairing. The people on the list have amazing advice and wisdom. You are definitely NOT alone.

Keep us posted on your daughter and yourself. Sending you hugs.

Jean

Jean Eccleston

Sent from my Samsung Captivate on AT & T

A P wrote:

>Jean,

>

>Thanks so much for sharing.

>

>So far we are not impressed with Joe Dimaggio. The psychaitrist that was assigned to my daugher's case has the bedside manner of a pill. Ugh!

>

>So, we will definately not be seeing him again. We live in Weston, but if your doctor is really that good and worth it, I can drive to Boca.

>

>Jean, if you don't mind me asking, now that things are stable with your child, how often do you have to go to the psychiatrist?

>

>Anyone else with a good psychaitrist that they can recommend, I'm all ears.

>

>Thanks.

>

>>

>>Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.

>>

>>We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem.

>>

>>We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.

>>

>>Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.

>>

>>Thanks.

>>

>>>

>

April 22, 2011

Our DAN Dr. checks our son's testosterone regularly. I am curious about the biomedical treatments that have been done with the children who seem to be the most aggressive? For instance, my son was behaving aggressively so our DAN Dr. ran some tests and found out that his cholesterol was dangerously low and this will cause aggressive behavior. Once we started supplementing with Sonic Cholesterol his aggression seemed to subside. Aggression always peeks its ugly head out when my son's gut is all out of whack as well. We treat for yeast and bacteria and he is suddenly a wonderful child again for about three months until the yeast and bacteria build back up.

Re: Re: Need help! Aggression has become dangerous

You are right. Not to mention, sulphur by mouth feeds yeast. That is a problem with DMSA chelation.

You *have* to fix the leaky gut in the first place. That is the first step in treating these kids. Probiotics, antiyeast. Rinse, repeat. The violence can come from just leaky gut and dysbiosis alone. I also think that I would not do this in any kid that did not have omega 3's on board for a while--at least a month or two. It would be like revamping the copper in the wires of your house without fixing the insulation.

I got 500's at an integrative pharmacy here and gave him 4, but he is beast size.

If he was smaller, I would probably start at the usual dose and go up, observing for effect.

>

> A word of caution using NAC Nacetylcysteine with autism.

The higher functioning kids(Aspies and ADHD) might tolerate it fine, but, this is a sulphur based amino acid needed to make glutathione and children with autism do not absorb well sulphur based supplements due to the state of their GI tracts and will be very reactive. NAC helps detox heavy metals. Not all kids do well on it. So if your child is already violent you might want to consider something else.

>

April 22, 2011

We used to give our son NAC with glutathione... I heard they work

together...

Re: Re: Need help! Aggression has become dangerous

Any health food store. Whole foods will carry it with the amino acids like

carnitine and the liver detox stuff. It is one of the three amino acids

that are a precursor to glutathione along with glycine and glutamic acid.

If I had to guess why it works, we know our kids have a problem with too

much glutamic acid (glutamate) a neurotransmitter in the brain. We know

they have low glutathione levels (a major antioxidative stress detoxer in

the liver).

If you make a cake using flour milk and eggs, and you had enough flour and

eggs for one cake but enough milk for six cakes, you would have a bunch of

milk leftover spoiling. You cannot make more cakes until you get more of

the other two ingredients. So if I flood you with enough flour and eggs to

finish the milk, you get more cakes, and use up the milk before is spoils.

In this way, if you flood the system with NAC, there would not be as much

glutamate around to cause problems in our kids' brains and you would get

bunches more glutathione.

You need vitamin D3 to make NAC work.

Milk thistle can also raise glutathione, and help protect livers from

antiseizure meds (depakote has a risk of liver failure, especially in kids)

SAM-e can also, but can also induce mania if your kid has bipolar disorder

(another cause for rages) I have a theory that this is in people who are not

on omega 3 fatty acids and have irritable cell membranes and therefore poor

signal transmission in the brain, but this is my own thinking, not based on

any paper).

> Where can this be purchased? Thanks in advance...

>

> >

> > Apple pectin and gigas (Korean Herb found in the NOW product

> > Ache Action) will both lower testosterone. The issue is when the kids

> > are younger they have a better chance of keeping the testosterone down

> > with natural supplements. When they hit puberty at 13 or worse yet when

> > they get between 18 and 21, the testosterone is too high to reduce

> > naturally due to the dangerous behaviors. The high testosterone will

> > also increase not only aggression but OCD and anxiety. The whole

> > combination is deadly because behaviors can become almost psychotic.

> > Psychotropic drugs such as resperdal will keep androgens down

> > (testosterone) because prolactin is up. But the side effects are not

> > good and many times the drugs stop working after a while. What is

> > interesting is these drugs are used also with schizophrenics for the

> > rage and psychotic behaviors. We have an office here in Tamarac for Dr.

> > Mark Geier who treats over 1500 patients with autism and high

> > testosterone across the US. This has a name....Hyperandrogenemia and if

> > this is the problem your daughter has, you will at least be in the right

> > place for help. Badillo9@...

> >

> > In a message dated 4/20/2011 8:21:39 P.M. Eastern Daylight Time,

> > hidden_garnet@... writes:

> >

> > I am so sorry for you. My son who weighs 200 lbs. used to have very

> > aggressive violent outbursts. He occasionally still has them. A lot of

> > autistic kids have a genetic marker for excessive testosterone. My son

> > is one of those kids. My son takes niacinamide, and lemon balm as well

> > as stavzor (Depakote) to control this. We keep xanax on hand to give him

> > if the situation gets really bad. Believe it or not eating peas will

> > lower testosterone levels. In fact a German study was done on the

> > effects of peas and beans on testosterone levels. I know how upsetting

> > this is for you. When you see your child's signs that she is going to

> > have an explosive situation, maybe giving her an ibuprofin would help.

> > Sometimes it is hard for our kids to express when they have a headache,

> > earache, etc.

> > A big thing with my son is staying calm and not being aggressive toward

> > him during an " episode " As soon as he starts to " get of kilter " I

> > usually take him to his room and tell him to stay there until he can

> > calm down. Sometimes he will fall asleep and when he awakens he is as

> > sunny and happy as ever. I often have to remind my husband and other

> > sons not to interfere, as their first response is to become aggressive

> > and to say what my DD son perceives as threatening type things to him,

> > (i.e. knock it off, don't threaten your mother or you'll have to deal

> > with me.) or they yell at him. Sometimes I just put my son in the car

> > and we go for a long ride until he eventually has a good cry and calms

> > down. When my son is having a day when everything seems to frustrate or

> > upset him I try to take him to the beach, the park, or even shopping to

> > get him away from the things that stress him. I don't think there is any

> > real solution to this problem, but there are some thi ngs we can do to

> > make it a little less upsetting.

> > Glenda

> >

> > >

> > > Yesterday my ASD child's aggression got to the point that it could not

> > > be controlled. She was so bad that the police had to be called to

> > > restrain her. She is very big and strong. she was very violent and

> > > caused a lot of damage to the home. she hurt her caregiver as well.

> > >

> > > We do not what caused this as she literally went from one room to seek

> > > out her caregiver and start punching. Her neurologist told us to go to

> > > the ER for a psych evaluation, though honestly I think this is a

> > > neurological problem.

> > >

> > > We are going back to the ER today to do this, but since she is now

> > > calm they will treat this as non important and make us wait for hours.

> > > I just want her to be looked at by a doctor and frankly be given a

> > > strong medication in the interim until all the tests can be done. This

> > > can not happen again, I never thought I'd say this but we are actually

> > > scared of this kid and what she could do.

> > >

> > > Any advice? We were there last night till midnight with no clear

> > > answers to a solution and I'm afraid it will be the same today. I am

> > > at my wits end. Next time I'm afraid that she will send someone else

> > > to the ER.

> > >

> > > Thanks.

> > >

> > > >

> > >

> >

>

> ------------------------------------

>

April 22, 2011

,

I read that L-Carnosine is a good supplement for seizure activity.

Has anyone else heard that?

I give my son Carn-aware. It also has zinc, which he is also deficient in. There were some double blind studies conducted about L-Carnosine in kids with apraxia. And, in some cases, arenâ€™t seizures the reason for apraxia?

Someone can help here. Itâ€™s been a long time since Iâ€™ve read about any of this.

So, Iâ€™m wondering if L-Carnosine would help with seizure activity too. My son is up to about 3-4 pills a day and we saw a dramatic increase in language once we started it.

From: Karp

Sent: Thursday, April 21, 2011 9:20 AM

To: sList

Subject: Re: Re: Need help! Aggression has become dangerous

Hi ,Very interested in N-acetyl cysteine. I see that, in addition to everything else, it can also prevent some types of seizures. What type of dosage are you giving a 280-lb young man? Mine is not far behind at 240.

To: sList Sent: Thu, April 21, 2011 5:03:51 AMSubject: Re: Re: Need help! Aggression has become dangerousThere was a study using N-acetyl cysteine on ADHD preschoolers who were aggressive. We used that dose on our snarly, nasty 280 lb 2o year old bipolar Aspie, and there was a HUGE, and I mean HUGE difference. He smiles again. Wish we had known it when he was more violent. And he was. Very.> > Apple pectin and gigas (Korean Herb found in the NOW product Ache Action) will both lower testosterone. The issue is when the kids are younger they have a better chance of keeping the testosterone down with natural supplements. When they hit puberty at 13 or worse yet when they get between 18 and 21, the testosterone is too high to reduce naturally due to the dangerous behaviors. The high testosterone will also increase not only aggression but OCD and anxiety. The whole combination is deadly because behaviors can become almost psychotic. Psychotropic drugs such as resperdal will keep androgens down (testosterone) because prolactin is up. But the side effects are not good and many times the drugs stop working after a while. What is interesting is these drugs are used also with schizophrenics for the rage and psychotic behaviors. We have an office here in Tamarac for Dr. Mark Geier who treats over 1500 patients with autism and high testosterone across the US. This has a name....Hyperandrogenemia and if this is the problem your daughter has, you will at least be in the right place for help. Badillo9@...> > > > I am so sorry for you. My son who weighs 200 lbs. used to have very aggressive violent outbursts. He occasionally still has them. A lot of autistic kids have a genetic marker for excessive testosterone. My son is one of those kids. My son takes niacinamide, and lemon balm as well as stavzor (Depakote) to control this. We keep xanax on hand to give him if the situation gets really bad. Believe it or not eating peas will lower testosterone levels. In fact a German study was done on the effects of peas and beans on testosterone levels. I know how upsetting this is for you. When you see your child's signs that she is going to have an explosive situation, maybe giving her an ibuprofin would help. Sometimes it is hard for our kids to express when they have a headache, earache, etc. > A big thing with my son is staying calm and not being aggressive toward him during an "episode" As soon as he starts to "get of kilter" I usually take him to his room and tell him to stay there until he can calm down. Sometimes he will fall asleep and when he awakens he is as sunny and happy as ever. I often have to remind my husband and other sons not to interfere, as their first response is to become aggressive and to say what my DD son perceives as threatening type things to him, (i.e. knock it off, don't threaten your mother or you'll have to deal with me.) or they yell at him. Sometimes I just put my son in the car and we go for a long ride until he eventually has a good cry and calms down. When my son is having a day when everything seems to frustrate or upset him I try to take him to the beach, the park, or even shopping to get him away from the things that stress him. I don't think there is any real solution to this problem, but there are some thi ngs we can do to make it a little less upsetting. > Glenda> > > >> > > > Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.> > > > We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. > > > > We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.> > > > Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.> > > > Thanks.> > > > > > > > >> >> > > > ------------------------------------

April 22, 2011

You'll see a big change in your son. You can call me and we can talk about it. 561 482-2855

Hi all,I have a 11 yr old autistic son whos behavior has recently change ,he is becoming more aggressive in school and at home.We took him to Dr.Tuchman at the Dan Marino Center,he gave him VYVANCE,he did not mention anything about his growth (level of testosterone)It is now so interesting to see all the other parents out there going through similar situation and reading about Dr Mark Geier,has anyone taken their son or daughter to see this Dr as yet and how is it working out for you.Please share as I am desperate for some solution to my sons behavior.

Thanks to all

To: sList Sent: Thu, April 21, 2011 7:17:37 PM.Subject: Re: Re: Need help! Aggression has become dangerous

You can do the DMSA suppositories so the sulphur does not have to pass through the GI tract. We can only make it up to Melbourne once a month to get IV chelation at our DAN Dr.'s office so we do two suppositories a week in between. Where do you guys all get your chelation done down here? We went to Dr. Levinson's in SOBE for a year and then we had a nurse named come to our house for a while but now we just drive to Dr. Rossignal's office because his nurses are so gentle with my little guy and I feel really comfortable with them.

Re: Re: Need help! Aggression has become dangerous

You are right. Not to mention, sulphur by mouth feeds yeast. That is a problem with DMSA chelation.You *have* to fix the leaky gut in the first place. That is the first step in treating these kids. Probiotics, antiyeast. Rinse, repeat. The violence can come from just leaky gut and dysbiosis alone. I also think that I would not do this in any kid that did not have omega 3's on board for a while--at least a month or two. It would be like revamping the copper in the wires of your house without fixing the insulation.I got 500's at an integrative pharmacy here and gave him 4, but he is beast size.If he was smaller, I would probably start at the usual dose and go up, observing for effect.> > A word of caution using NAC Nacetylcysteine with autism. The higher functioning kids(Aspies and ADHD) might tolerate it fine, but, this is a sulphur based amino acid needed to make glutathione and children with autism do not absorb well sulphur based supplements due to the state of their GI tracts and will be very reactive. NAC helps detox heavy metals. Not all kids do well on it. So if your child is already violent you might want to consider something else. >

April 22, 2011

My son's pediatrician checked his testosterone level, and it came back a 27. He said it fell into a normal range (over 30 is considered high). I've spoken to other parents, who said that children's testosterone levels should not be above a 12. Does anyone know for certain if this level is safe for a 8 1/2 year old?

> > A word of caution

using NAC Nacetylcysteine with autism. The higher functioning kids(Aspies and ADHD) might tolerate it fine, but, this is a sulphur based amino acid needed to make glutathione and children with autism do not absorb well sulphur based supplements due to the state of their GI tracts and will be very reactive. NAC helps detox heavy metals. Not all kids do well on it. So if your child is already violent you might want to consider something else. >

April 23, 2011

After reading through these emails and sitting through tears.....I truly realize that I'm not alone and I'm not going crazy! Yes, my seventeen year old son has had (thankfully not in a while) major aggressive episodes where I've had to lock myself and my dog in a room so that he couldn't get to us.....while crying the whole time wondering when it will end. You hear so many success stories of children that have beaten autism to the extent where they can participate in society and enjoy life......and that is a wonderful thing. However, what about the ones that can't make it out of that fog, like my son and others....the ones that don't have the words to tell you what neurons are firing off in their heads that may cause them to act out aggressively....what about them? My heart goes out to you for going through the ordeal with the police and the hospital! I pray that you find answers for your daughter. I live in fear of that happening one day to my son and I just pray and pray that it won't happen, while working diligently with his school and working with him at home. I guess I just wanted all of you who responded to this email, with like stories, to know how much I have appreciated your honesty and candor. Your stories have given me strength.....and I pray for strength for each and every one of you and your children....

Lesli

Re: Re: Need help! Aggression has become dangerous

Thank you all for your kind words and prayers, we need this. Today I admitted her to the mental health dept at Joe DiMaggio. Although the process took a full day, the staff were very good to us. She will probably be there a few days. It was hard to drop off my baby there especially since she is now so remorseful of her actions and seems to be back to her old self. But in my broken heart somewhere I know it's for the best. While she is there I want to make sure they are working with her neurologist. She may have had a seizure in all this so I want to make sure those other tests are done that another member suggested as well.

Oh on one last note, she had been on Risperdal for a very long time. Initially that drug was like liquid gold for her but we noticed lately that although we have increased the dosage it wasn't doing the job. So at this point I'm certainly searching for other alternatives. < /div>

I will take all of your advice into consideration.

Thank You for this list. Without It i would feel so alone. At least now I feel that there are others that can relate and share.

Sent from my iPad

I am so sorry for you. My son who weighs 200 lbs. used to have very aggressive violent outbursts. He occasionally still has them. A lot of autistic kids have a genetic marker for excessive testosterone. My son is one of those kids. My son takes niacinamide, and lemon balm as well as stavzor (Depakote) to control this. We keep xanax on hand to give him if the situation gets really bad. Believe it or not eating peas will lower testosterone levels. In fact a German study was done on the effects of peas and beans on testosterone levels. I know how upsetting this is for you. When you see your child's signs that she is going to have an explosive situation, maybe giving her an ibuprofin would help. Sometimes it is hard for our kids to express when they have a headache, earache, etc.

A big thing with my son is staying calm and not being aggressive toward him during an "episode" As soon as he starts to "get of kilter" I usually take him to his room and tell him to stay there until he can calm down. Sometimes he will fall asleep and when he awakens he is as sunny and happy as ever. I often have to remind my husband and other sons not to interfere, as their first response is to become aggressive and to say what my DD son perceives as threatening type things to him, (i.e. knock it off, don't threaten your mother or you'll have to deal with me.) or they yell at him. Sometimes I just put my son in the car and we go for a long ride until he eventually has a good cry and calms down. When my son is having a day when everything seems to frustrate or upset him I try to take him to the beach, the park, or even shopping to get him away from the things that stress him. I don't think there is any real solution to this problem, but there are some things we can do to mak e it a little less upsetting.

Glenda

>

> Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.

>

> We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem.

>

> We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.

>

> Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.

>

> Thanks.

>

> >

>

April 23, 2011

Yes you are right....Carnosine is good for seizures and so is GABA and L-Taurine. Some kids to really well with Carnosine and do respond with language; but as always it is not always the case with every child. However, it is very helpful for seizures.

,

I read that L-Carnosine is a good supplement for seizure activity.

Has anyone else heard that?

I give my son Carn-aware. It also has zinc, which he is also deficient in. There were some double blind studies conducted about L-Carnosine in kids with apraxia. And, in some cases, arenâ€™t seizures the reason for apraxia?

Someone can help here. Itâ€™s been a long time since Iâ€™ve read about any of this.

So, Iâ€™m wondering if L-Carnosine would help with seizure activity too. My son is up to about 3-4 pills a day and we saw a dramatic increase in language once we started it.

From: Karp

Sent: Thursday, April 21, 2011 9:20 AM

To: sList

Subject: Re: Re: Need help! Aggression has become dangerous

Hi ,Very interested in N-acetyl cysteine. I see that, in addition to everything else, it can also prevent some types of seizures. What type of dosage are you giving a 280-lb young man? Mine is not far behind at 240.

To: sList Sent: Thu, April 21, 2011 5:03:51 AMSubject: Re: Re: Need help! Aggression has become dangerousThere was a study using N-acetyl cysteine on ADHD preschoolers who were aggressive. We used that dose on our snarly, nasty 280 lb 2o year old bipolar Aspie, and there was a HUGE, and I mean HUGE difference. He smiles again. Wish we had known it when he was more violent. And he was. Very.> > Apple pectin and gigas (Korean Herb found in the NOW product Ache Action) will both lower testosterone. The issue is when the kids are younger they have a better chance of keeping the testosterone down with natural supplements. When they hit puberty at 13 or worse yet when they get between 18 and 21, the testosterone is too high to reduce naturally due to the dangerous behaviors. The high testosterone will also increase not only aggression but OCD and anxiety. The whole combination is deadly because behaviors can become almost psychotic. Psychotropic drugs such as resperdal will keep androgens down (testosterone) because prolactin is up. But the side effects are not good and many times the drugs stop working after a while. What is interesting is these drugs are used also with schizophrenics for the rage and psychotic behaviors. We have an office here in Tamarac for Dr. Mark Geier who treats over 1500 patients with autism and high testosterone across the US. This has a name....Hyperandrogenemia and if this is the problem your daughter has, you will at least be in the right place for help. Badillo9@...> > > > I am so sorry for you. My son who weighs 200 lbs. used to have very aggressive violent outbursts. He occasionally still has them. A lot of autistic kids have a genetic marker for excessive testosterone. My son is one of those kids. My son takes niacinamide, and lemon balm as well as stavzor (Depakote) to control this. We keep xanax on hand to give him if the situation gets really bad. Believe it or not eating peas will lower testosterone levels. In fact a German study was done on the effects of peas and beans on testosterone levels. I know how upsetting this is for you. When you see your child's signs that she is going to have an explosive situation, maybe giving her an ibuprofin would help. Sometimes it is hard for our kids to express when they have a headache, earache, etc. > A big thing with my son is staying calm and not being aggressive toward him during an "episode" As soon as he starts to "get of kilter" I usually take him to his room and tell him to stay there until he can calm down. Sometimes he will fall asleep and when he awakens he is as sunny and happy as ever. I often have to remind my husband and other sons not to interfere, as their first response is to become aggressive and to say what my DD son perceives as threatening type things to him, (i.e. knock it off, don't threaten your mother or you'll have to deal with me.) or they yell at him. Sometimes I just put my son in the car and we go for a long ride until he eventually has a good cry and calms down. When my son is having a day when everything seems to frustrate or upset him I try to take him to the beach, the park, or even shopping to get him away from the things that stress him. I don't think there is any real solution to this problem, but there are some thi ngs we can do to make it a little less upsetting. > Glenda> > > >> > > > Yesterday my ASD child's aggression got to the point that it could not be controlled. She was so bad that the police had to be called to restrain her. She is very big and strong. she was very violent and caused a lot of damage to the home. she hurt her caregiver as well.> > > > We do not what caused this as she literally went from one room to seek out her caregiver and start punching. Her neurologist told us to go to the ER for a psych evaluation, though honestly I think this is a neurological problem. > > > > We are going back to the ER today to do this, but since she is now calm they will treat this as non important and make us wait for hours. I just want her to be looked at by a doctor and frankly be given a strong medication in the interim until all the tests can be done. This can not happen again, I never thought I'd say this but we are actually scared of this kid and what she could do.> > > > Any advice? We were there last night till midnight with no clear answers to a solution and I'm afraid it will be the same today. I am at my wits end. Next time I'm afraid that she will send someone else to the ER.> > > > Thanks.> > > > > > > > >> >> > > > ------------------------------------

April 24, 2011

Where do you get Carnaware.

Sent from my Samsung Epicâ„¢ 4G

badillo9@... wrote:

>Yes you are right....Carnosine is good for seizures and so is GABA and

>L-Taurine. Some kids to really well with Carnosine and do respond with

>language; but as always it is not always the case with every child. However, it

is

>very helpful for seizures.

>

>In a message dated 4/23/2011 3:45:04 P.M. Eastern Daylight Time,

>austintandt@... writes:

>

>,

>

>I read that L-Carnosine is a good supplement for seizure activity.

>

>Has anyone else heard that?

>

>I give my son Carn-aware. It also has zinc, which he is also deficient

>in. There were some double blind studies conducted about L-Carnosine in kids

>with apraxia. And, in some cases, arenâ€™t seizures the reason for apraxia?

>

>Someone can help here. Itâ€™s been a long time since Iâ€™ve read about any

>of this.

>

>So, Iâ€™m wondering if L-Carnosine would help with seizure activity too. My

>son is up to about 3-4 pills a day and we saw a dramatic increase in

>language once we started it.

>

>From: _ Karp_ (mailto:deniseslist@...)

>Sent: Thursday, April 21, 2011 9:20 AM

>To: _sList _ (mailto:sList )

>Subject: Re: Re: Need help! Aggression has become dangerous

>

>Hi ,

>

>Very interested in N-acetyl cysteine. I see that, in addition to

>everything else, it can also prevent some types of seizures. What type of

dosage

>are you giving a 280-lb young man? Mine is not far behind at 240.

>

>____________________________________

>

>To: sList

>Sent: Thu, April 21, 2011 5:03:51 AM

>Subject: Re: Re: Need help! Aggression has become dangerous

>

>There was a study using N-acetyl cysteine on ADHD preschoolers who were

>aggressive. We used that dose on our snarly, nasty 280 lb 2o year old

>bipolar Aspie, and there was a HUGE, and I mean HUGE difference. He smiles

>again. Wish we had known it when he was more violent. And he was. Very.

>

>On Apr 20, 2011, at 5:47 PM, _badillo9@..._ (mailto:badillo9@...)

>wrote:

>

>>

>> Apple pectin and gigas (Korean Herb found in the NOW product

>Ache Action) will both lower testosterone. The issue is when the kids are

>younger they have a better chance of keeping the testosterone down with

>natural supplements. When they hit puberty at 13 or worse yet when they get

>between 18 and 21, the testosterone is too high to reduce naturally due to the

>dangerous behaviors. The high testosterone will also increase not only

>aggression but OCD and anxiety. The whole combination is deadly because

>behaviors can become almost psychotic. Psychotropic drugs such as resperdal

will

>keep androgens down (testosterone) because prolactin is up. But the side

>effects are not good and many times the drugs stop working after a while. What

>is interesting is these drugs are used also with schizophrenics for the rage

> and psychotic behaviors. We have an office here in Tamarac for Dr. Mark

>Geier who treats over 1500 patients with autism and high testosterone across

>the US. This has a name....Hyperandrogenemia and if this is the problem

>your daughter has, you will at least be in the right place for help.

>_Badillo9@..._ (mailto:Badillo9@...)

>>

>> In a message dated 4/20/2011 8:21:39 P.M. Eastern Daylight Time,

>_hidden_garnet@..._ (mailto:hidden_garnet@...) writes:

>>

>> I am so sorry for you. My son who weighs 200 lbs. used to have very

>aggressive violent outbursts. He occasionally still has them. A lot of

autistic

>kids have a genetic marker for excessive testosterone. My son is one of

>those kids. My son takes niacinamide, and lemon balm as well as stavzor

>(Depakote) to control this. We keep xanax on hand to give him if the situation

>gets really bad. Believe it or not eating peas will lower testosterone

>levels. In fact a German study was done on the effects of peas and beans on

>testosterone levels. I know how upsetting this is for you. When you see your

>child's signs that she is going to have an explosive situation, maybe giving

>her an ibuprofin would help. Sometimes it is hard for our kids to express

>when they have a headache, earache, etc.

>> A big thing with my son is staying calm and not being aggressive toward

>him during an " episode " As soon as he starts to " get of kilter " I usually

>take him to his room and tell him to stay there until he can calm down.

>Sometimes he will fall asleep and when he awakens he is as sunny and happy as

>ever. I often have to remind my husband and other sons not to interfere, as

>their first response is to become aggressive and to say what my DD son

>perceives as threatening type things to him, (i.e. knock it off, don't

threaten

>your mother or you'll have to deal with me.) or they yell at him.

>Sometimes I just put my son in the car and we go for a long ride until he

>eventually has a good cry and calms down. When my son is having a day when

>everything seems to frustrate or upset him I try to take him to the beach, the

park,

>or even shopping to get him away from the things that stress him. I don't

>think there is any real solution to this problem, but there are some thi

>ngs we can do to make it a little less upsetting.

>> Glenda

>>

>> >

>> > Yesterday my ASD child's aggression got to the point that it could not

>be controlled. She was so bad that the police had to be called to restrain

>her. She is very big and strong. she was very violent and caused a lot of

>damage to the home. she hurt her caregiver as well.

>> >

>> > We do not what caused this as she literally went from one room to seek

>out her caregiver and start punching. Her neurologist told us to go to the

>ER for a psych evaluation, though honestly I think this is a neurological

>problem.

>> >

>> > We are going back to the ER today to do this, but since she is now

>calm they will treat this as non important and make us wait for hours. I just

>want her to be looked at by a doctor and frankly be given a strong

>medication in the interim until all the tests can be done. This can not happen

>again, I never thought I'd say this but we are actually scared of this kid and

>what she could do.

>> >

>> > Any advice? We were there last night till midnight with no clear

>answers to a solution and I'm afraid it will be the same today. I am at my

wits

>end. Next time I'm afraid that she will send someone else to the ER.

>> >

>> > Thanks.

>> >

>> > >

>> >

>>

>

>------------------------------------

>

>Yahoo! Groups Links

>

>(Yahoo! ID required)

>

>_sList-fullfeatured _

>(mailto:sList-fullfeatured )

>

April 24, 2011

My email is messed up so I cannot insert the link but the website is Autism Coach.Go to autismcoach.comNot only can you purchase supplements, you can find links to some of the research (including the double blind study on Carnaware). The study indicates that "significant improvements in language and socialization were observed in 90% of children within the autism spectrum using L-Carnosine, as opposed to children taking a placebo."Read the actual study for more but I believe you will be impressed.Plus, the Carnaware has Zinc, which many of our kid's are low on and can be linked to smell and taste (read: eating aversions). Hope this helps!Sent from my iPhone

Where do you get Carnaware.

Sent from my Samsung Epicâ„¢ 4G

badillo9@... wrote:

>Yes you are right....Carnosine is good for seizures and so is GABA and

>L-Taurine. Some kids to really well with Carnosine and do respond with

>language; but as always it is not always the case with every child. However, it is

>very helpful for seizures.

>

>In a message dated 4/23/2011 3:45:04 P.M. Eastern Daylight Time,

>austintandt@... writes:

>

>,

>

>I read that L-Carnosine is a good supplement for seizure activity.

>

>Has anyone else heard that?

>

>I give my son Carn-aware. It also has zinc, which he is also deficient

>in. There were some double blind studies conducted about L-Carnosine in kids

>with apraxia. And, in some cases, arenâ€™t seizures the reason for apraxia?

>

>Someone can help here. Itâ€™s been a long time since Iâ€™ve read about any

>of this.

>

>So, Iâ€™m wondering if L-Carnosine would help with seizure activity too. My

>son is up to about 3-4 pills a day and we saw a dramatic increase in

>language once we started it.

>

>From: _ Karp_ (mailto:deniseslist@...)

>Sent: Thursday, April 21, 2011 9:20 AM

>To: _sList _ (mailto:sList )

>Subject: Re: Re: Need help! Aggression has become dangerous

>

>Hi ,

>

>Very interested in N-acetyl cysteine. I see that, in addition to

>everything else, it can also prevent some types of seizures. What type of dosage

>are you giving a 280-lb young man? Mine is not far behind at 240.

>

>____________________________________

>

>To: sList

>Sent: Thu, April 21, 2011 5:03:51 AM

>Subject: Re: Re: Need help! Aggression has become dangerous

>

>There was a study using N-acetyl cysteine on ADHD preschoolers who were

>aggressive. We used that dose on our snarly, nasty 280 lb 2o year old

>bipolar Aspie, and there was a HUGE, and I mean HUGE difference. He smiles

>again. Wish we had known it when he was more violent. And he was. Very.

>

>On Apr 20, 2011, at 5:47 PM, _badillo9@..._ (mailto:badillo9@...)

>wrote:

>

>>

>> Apple pectin and gigas (Korean Herb found in the NOW product

>Ache Action) will both lower testosterone. The issue is when the kids are

>younger they have a better chance of keeping the testosterone down with

>natural supplements. When they hit puberty at 13 or worse yet when they get

>between 18 and 21, the testosterone is too high to reduce naturally due to the

>dangerous behaviors. The high testosterone will also increase not only

>aggression but OCD and anxiety. The whole combination is deadly because

>behaviors can become almost psychotic. Psychotropic drugs such as resperdal will

>keep androgens down (testosterone) because prolactin is up. But the side

>effects are not good and many times the drugs stop working after a while. What

>is interesting is these drugs are used also with schizophrenics for the rage

> and psychotic behaviors. We have an office here in Tamarac for Dr. Mark

>Geier who treats over 1500 patients with autism and high testosterone across

>the US. This has a name....Hyperandrogenemia and if this is the problem

>your daughter has, you will at least be in the right place for help.

>_Badillo9@..._ (mailto:Badillo9@...)

>>

>> In a message dated 4/20/2011 8:21:39 P.M. Eastern Daylight Time,

>_hidden_garnet@..._ (mailto:hidden_garnet@...) writes:

>>

>> I am so sorry for you. My son who weighs 200 lbs. used to have very

>aggressive violent outbursts. He occasionally still has them. A lot of autistic