Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Dear Friends, Joe received the results of his liver biopsy today. He has cholangiocarcinoma. His gastro in Austin wanted to refer him to San , but Joe wants to go to Houston. Joe's previous gastroenterologist in Houston, Dr. Ian Sachs, from 1999, when Joe had his J-pouch surgery, is where Joe has started for referral. Joe would like to know if there are any prominent names for gastroenterology, oncology and hepatology in Houston that you all could share with us? Thanks, mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis 03/06, chronic pancreatitis 12/06, cholangiocarcinoma 12/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Firstly, I am so sorry. I am sure you will get many great ideas here. The only place I can think of off the top of my head is Mayo in Rochester as I believe they do the most with CC. All my best, Mom of Zoe (13) super soccer player; Noah (9) UC, PSC, and osteopenia and a great soccer and basketball player and; Aidan (5) moderately-severely hearing impaired great basketball shot (10-foot hoop none-the-less) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Warmbrodt wrote: Dear Friends, Joe received the results of his liver biopsy today. He has cholangiocarcinoma. Chris-My thoughts & prayers are with you & Joe and his wife as you all tackle this new dx. I wish I knew of someone in Houston, but I do know (as you probably do as well) that Houston as an outstanding cancer center.I will continue to keep you and your family in my thoughts & prayers.- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 -Hi Sorry to hear the news of Joe's biopsy. I hope that you get some responses from other members familiar with Houston so that you all can make a good decision on whwere to go. Although it is not the news one wants, tell him to keep his spirits up and we'll all pray and hope that he gets a solution. Rita (Florida) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Dear I'm so sorry to hear about Joe's results. My prayers and thoughts are with your family. Joe is lucky to have your help in making these important decisions right now. I'm sure that other PSCers will write in soon. I know that other PSCers with the CC diagnosis have done very well with Dr. Gores at Mayo in Minnesota. Thinking of you! Ricky Joe Dear Friends, Joe received the results of his liver biopsy today. He has cholangiocarcinoma. His gastro in Austin wanted to refer him to San , but Joe wants to go to Houston. Joe's previous gastroenterologist in Houston, Dr. Ian Sachs, from 1999, when Joe had his J-pouch surgery, is where Joe has started for referral. Joe would like to know if there are any prominent names for gastroenterology, oncology and hepatology in Houston that you all could share with us? Thanks, mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis 03/06, chronic pancreatitis 12/06, cholangiocarcinoma 12/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Dear My name is and I am 37 and have been recently diagnosed with CC. If there is anyway I can help please do not hesitate to ask. If he needs to talk to somebody who is going through the same thing he is please call me . I can at least tell you what I am doing and why I am doing it. > > Joe will have a liver biopsy in the morning. A CAT scan yesterday revealed tumors in his liver. Please pray, and for those of you who are not praying persons, please send positive thoughts Joe's way and for his wife, Jenn! > > Chris > mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis 03/06, chronic pancreatitis 12/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Thank you , Tiffiany and Rita. Prayers are truly appreciated. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 That is what I was thinking of!!! Thanks Ricky!! Mom of Zoe (13) super soccer player; Noah (9) UC, PSC, and osteopenia and a great soccer and basketball player and; Aidan (5) moderately-severely hearing impaired great basketball shot (10-foot hoop none-the-less) Dear I'm so sorry to hear about Joe's results. My prayers and thoughts are with your family. Joe is lucky to have your help in making these important decisions right now. I'm sure that other PSCers will write in soon. I know that other PSCers with the CC diagnosis have done very well with Dr. Gores at Mayo in Minnesota. Thinking of you! Ricky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Dear I wish I had some information to help with referrals, but all I can say is that I'm praying for you all. Hang in there! Deb in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2006 Report Share Posted December 19, 2006 Dear Hang in there.Sending hordes of prayers your way. Leah > > Dear Friends, > > Joe received the results of his liver biopsy today. He has cholangiocarcinoma. His gastro in Austin wanted to refer him to San , but Joe wants to go to Houston. Joe's previous gastroenterologist in Houston, Dr. Ian Sachs, from 1999, when Joe had his J-pouch surgery, is where Joe has started for referral. Joe would like to know if there are any prominent names for gastroenterology, oncology and hepatology in Houston that you all could share with us? > > Thanks, > mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis 03/06, chronic pancreatitis 12/06, cholangiocarcinoma 12/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2006 Report Share Posted December 19, 2006 Chris: My heartfelt prayers are with you and JOE. I also, agree with those that supported Rochester, Mayo. dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2006 Report Share Posted December 19, 2006 Thank you Prichsy. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2006 Report Share Posted December 19, 2006 Thank you, Dee. Chris Quote Link to comment Share on other sites More sharing options...
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