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Leah/Robbie

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Dear Leah,

My son also had this problem with his weight and it was pretty scary

as well as a great source of anxiety for me. It was definitely more

related to his UC rather than his PSC.

His UC was so bad that he did need to have a colectomy. Unfortunately

nothing we tried controlled his UC adequately.

If it is the UC that might be keeping Robbie from gaining weight you

might want to talk with his Dr's about trying other medications.

I wish you all the best, I know others have success with different medications.

Lee

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