Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Did someone here go up and see Dr. Bergasa? I am asking because today Noah was referred to a neurologist for his itching, and I feel like they are chasing their tails. The only thing they have tried is rifampin and they are not even waiting for his bile acids to come back to do this. I am somewhat confused, and frustrated. They said they expect the BA to be high. Are they thinking that they can’t or don’t feel comfortable prescribing something stronger? I don’t know what to think. Any ideas? I am getting a little frustrated with this whole thing. Noah’s quality of life is in the crapper. He still says the “little men are in the bed climbing all over him.” And the new symptom is a nightly headache. Mom of Zoe (13) super soccer player; Noah (9) UC, PSC, enthesopathy and osteopenia and a great soccer and basketball player and; Aidan (5) moderately-severely hearing impaired great basketball shot (10-foot hoop none-the-less) Quote Link to comment Share on other sites More sharing options...
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