school supports

[Guest guest]

,

As usual, I am very behind in reading

email so I apologize for the late response. You may remember that Suzanne was

on homebound instruction most of last year and is on it again this year. If you

need any help with the school let me know. It’s not quite as cut and dry

since you are not going to a public school and that may be something you need

to think about in the future. The private religious based schools are not bound

to the federal laws regarding a free and appropriate education (FAPE) in the

same way that the public schools are. Before Suzanne needed homebound

instruction I had a “504 plan” put into place; this is similar to

an IEP and is used for kids with medical problems that do not necessarily adversely

affect their learning (it’s really all legal semantics). If you ever need

help with this, please do not hesitate to contact me.

LINDA

(Mom of Suzanne,

17; IBD 1/04; PSC 3/04)

From:

[mailto: ] On Behalf Of Warmbrodt

Sent: Friday, December 22, 2006 10:00 AM

To:

Subject: Re: Re:

weak legs?

Hi ,

When my son was school age, (he became ill at age 14 with

what was first diagnosed as crohns, then this diagnosis was changed to UC), he was

too sick to go to school, and spent a lot of time in Texas Children's

Hospital. We were able to get together with the school's ARDS (Admission,

Review and Dismissal) comittee and they came up with an IEP (Individual

Education Plan) for homebound instruction.

Noah should be able to do his work from home when he is able

and to go to school when he feels well enough. The school system

MUST accomodate Noah's needs according to the Federal Disability Act.

Chris

mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute

pancreatitis 03/06, chronic pancreatitis 12/06, CC 12/06

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[Guest guest]

Thanks . We are SO lucky that they

really are great about giving us whatever we need. (SO FAR) In the future I

very well may have to pull him and move him home. He is on the list to be home

this second semester with the PA Cyber School…but I don’t know that

he will allow that. He is still so social and really enjoys his friends.

I really can’t take that from him.

So plug and chug we’ll go to work

with them to keep him on the honor roll…how amazing is that?! Next year

gets tougher though…

Hugs,

Mom of Zoe

(13) super soccer player;

Noah (9) UC,

PSC, enthesopathy and osteopenia and a great soccer and basketball player and;

Aidan (5)

moderately-severely hearing impaired great basketball shot (10-foot

hoop none-the-less)