Keljo & Children's Hospital

[Guest guest]

,

I am sorry that you are not having a positive experience

with Dr. Keljo and the Children’s team. He is the third GI that we have

seen at Children’s and I am finding him to be the best. For example, last

time surgery was a possibility for Suzanne I asked about fertility rates

because of an article I had read (likely as a result of this group), Dr. Harpavat

wasn’t familiar with it, and even after sending the citation to one of

the student doctors she was working with Dr. Harpavat did not seem it was an

issue that even needed to be discussed. If you remember, I loved Dr.

Harpavat and still think she is an excellent doctor, she is just young

therefore lacks experience. When Dr. Keljo talked to us about surgery HE

brought up the fertility issues and was very knowledgeable about it.

It’s very difficult because we are entrusting our

children to the medical community – and the feeling not having control

can become overwhelming. I must admit as I read your thoughts about Dr. Keljo

it shook me a little because we are about to let him do major surgery on

Suzanne and of course we want to go into this experience with complete

confidence in the medical team; I will keep you updated on my experiences with

him. Have you considered other GIs at Children’s? At this point I think I

know all of them! I know that Joanne G. (Todd’s Mom) is also very knowledgeable

about the Children’s GI team.

Take care; you and Noah are in my prayers.

LINDA

(Mom of Suzanne,

17; IBD 1/04; PSC 3/04)

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[Guest guest]

,

I do think I am at the top of the food

chain so-to-speak over there (at CHP) in seeing Keljo and Squires and soon

Shneider. My desire is going to be for Shneider to take over his care and

for everyone else to keep their mitts out of it…although that might not

be entirely possible. I think I might keep Squires and Shneider. I

DO like Keljo…so much so I did not want to hurt him in adding Squires.

I just could see that he did not have the liver knowledge I needed. I

could tell that I knew more about PSC then he did. NOT GOOD.

He was great on the IBD front

however. I think he is your man.

Interestingly enough, when Squires nurse

called today regarding labs…they had no clue that he had referred to

neuro or why he would have. So, one hand does not know what the other is

doing. In this situation, I would prefer that Keljo deal with the IBD

issues and Squires make all decisions dealing with the liver until Shneider is

on the case.

I think Suzanne is fine with him on the

IBD front. He is amazing and has a very KIND heart! But in this

case that only gets him so far since this has been going on since after

Thanksgiving. I think Noah has HE. I hate to have to SAY that to

them…they should be able to figure that out. I DID say that when we

were there. They did take ammonia levels. But from what I hear it ammonia

is not the only indicator of HE.

Mom of Zoe

(13) super soccer player;

Noah (9) UC,

PSC, enthesopathy and osteopenia and a great soccer and basketball player and;

Aidan (5)

moderately-severely hearing impaired great basketball shot (10-foot

hoop none-the-less)