ercp pain

[Guest guest]

My name is , I am 35 and was just diagnosed with PSC about a month

ago. I had my first ERCP yesterday, and they put in a stent. I was

told I would have bloating, but I did not expect the exuctiating pain I

experienced when I awoke from the anethesia. My blood pressure was so

low that they wouldn't give me anything for the pain. They kept

calling it " discomfort " , and telling me to pass gas. My body would not

respond to their demands. It wasn't until I was finally sent home and

took a hot bath that I got some relief.(about 5 hours after my

procedure) Are there any tricks anyone has about how to make the the

gas release quicker? Does anyone else have problems getting their

blood pressure up after the procedure. It took them about 3 hours to

get my blood pressure about 90? I have to get the stent out in 6-8

weeks and would apreciated any advice.

Thanks

[Guest guest]

Anesthesia WILL slow down your gut, which doesn't help. I've not experienced severe pain after ERCP, except when I developed pancreatitis, which IS excruciating. I've had an ERCP 3 times, developing pancreatitis the first two times. The 3rd time was for stent removal, which was a snap. The first two led to a 6 day hospital stay to " get over " the pancreatitis (nothing by mouth for 4 days).

Sorry, don't know of any tricks, but I've been encouraged to walk to " get things moving " in the past. Once I started doing laps in the ward, I knew I was getting close to going home. My BP is naturally fairly low (110/60), along with pulse. When admitted to the ER, they were concerned about a <50 pulse until I told them it was normal resting pulse for me.

Arne

55 - UC 1977, PSC 2000

Alive and (mostly) well in Minnesota

________________________________

From: [mailto: ] On Behalf Of susierac

My name is , I am 35 and was just diagnosed with PSC about a month ago. I had my first ERCP yesterday, and they put in a stent. I was told I would have bloating, but I did not expect the exuctiating pain I experienced when I awoke from the anethesia. My blood pressure was so low that they wouldn't give me anything for the pain. They kept calling it " discomfort " , and telling me to pass gas. My body would not respond to their demands. It wasn't until I was finally sent home and took a hot bath that I got some relief.(about 5 hours after my procedure) Are there any tricks anyone has about how to make the the gas release quicker? Does anyone else have problems getting their blood pressure up after the procedure. It took them about 3 hours to get my blood pressure about 90? I have to get the stent out in 6-8 weeks and would apreciated any advice.

[Guest guest]

I'm not sure about the pain. They probably could have given you morphine.

As to the low blood pressure, after my liver biopsy my blood pressure was low, and they gave me an IV, which brought my blood pressure up. But with the anesthesia I'm sure you already had an IV.

-Marie Fixing up the home? Live Search can help

[Guest guest]

, I've never had the problem with pain or gas after an ERCP but then I've never had a stent before either. My hep just does 2 ERCP's within about 6 weeks of each other to balloon the ducts some without the stent. However, I do have a normal BP of around 90/60 and they still give me pain meds when they give the Versed during the ERCP. How low is your BP usually? If it's normally that low I wouldn't think it would be a problem to give pain meds. Sorry, I'm not much help. Blessings, Barby - KS UC - 1965, ileostomy - 1972, BCIR (continent pouch) 1994, PSC - 1995 married 27 years , 5 sons, 2 daughers in law, 1 granddaugher born 6/06 and 2 golden retrievers

[Guest guest]

-- I always have a good bit of pain after an ERCP, but then I

always have extraordinary pain simply from gas. Try taking some Gas-X

and see if that doesn't help a good bit. When I've had a stent, I'm

usually somewhat uncomfortable (can't tolerate clothes with a waistband)

until the stent's removed.

I understand exactly what you mean about having your severe pain called

" discomfort. " Years ago, my Ob-Gyn was trying to get a uterine biopsy

done on me and I was crying, writhing with pain, and begging him to

stop; it was the worst pain I've ever felt. After I was dressed, he

said he was sorry I had experienced some discomfort. I about took his

head off and said " Let me tell you, that wasn't discomfort!! Discomfort

is lying naked and freezing on that stinkin' table. This was pain ...

extreme pain but you just kept right on going. " I do despise

condescension!!

Regards,

Carolyn B. in SC

[Guest guest]

-----Original

Message----- On Behalf Of susierac Subject: ercp pain

I had my first ERCP yesterday>>>

but I did not expect the exuctiating pain >>> They kept calling it

" discomfort " , and telling me to pass gas. Are

there any tricks anyone has about how to make the the gas release quicker?

Ken had this kind of pain after one of his ERCPs (it only happened once). They also told him it was gas and “discomfort”. When he

began to cry, I said enough is enough and insisted they give him something for the

pain. They

ended up giving him 2 pain shots, neither of which helped very much. After a shift change, a different nurse

told us she could help – and she did. She gave Ken a can of ginger ale and told him to get up and walk. He sure didn’t want to walk and

started out bent over, but after a short while, he was well enough to go home. Now, with every procedure, we stop and

buy ginger ale (just in case), but he hasn’t needed it again.

HTH Barb in Texas

[Guest guest]

,

You can have pancreatitis without having an elevation in your

amylase and lypase, but checking those would at least offer you the

chance of proving that your pain was related to this common

complication of ERCPs.

On another note, I just read a study that suggested chewing gum

after abdomenal surgery. If it is gas-related, then this should help

wake up your bowels after anesthesia. Keep insisting that the pain

is real and explain how much of it you are having. My one and only

stent hurt like crazy for the entire time it was in there, but once

it was removed a month later, I had nine months of almost no

symptoms. That part was bliss!

Hope the stent works as well for you as it did for me in that regard.

Best wishes,

Deb in VA

PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, Partial Portal

Vein Thrombosis 7/20/2006, 13 PTCs with drain placements/

replacements for bile duct strictures 9/2005-3/2006, 3 sinus

surgeries in 2006.

[Guest guest]

I have had many ERCP's and with each one the after

effects are different. My last one I was fine right

after the procedure, but 2 hours later as I arrived

home, the pain started very intense and the vomiting.

I wasted no time in getting to the local ER to get a

pain shot.

I am actually afraid to have another ERCP. It

definitely was not gas that was causing me problems.

Cindy Baudoux-Northrup

__________________________________________________

[Guest guest]

>

> They kept

> calling it " discomfort " , and telling me to pass gas.

I know just where you are coming from. When I was having my second

child, I went through some excruciating pain and was screaming for

them to put me to sleep. They did give me chlorophorm which had a bad

effect on the baby for a few minutes.

Afterwards the doctor told me that the " discomfort " I experienced was

due to the baby coming so quickly. I have never forgotten his

expression " discomfort " which so inadequately described what I was

feeling.

Regards

Norma

[Guest guest]

susan;

i had to have my stent removed after one night. the pain was so

horrible. i have never tried to have it again. i went into the e.r.

and they took it right out the very next morning. good luck.

by the way, i don't have u.c. or crohns. just psc.