Re: Fever disappeared - Leah

[Guest guest]

Leah,

I would be surprised if Robbie did not experience another episode of

the same sort of fever within a month. I would suggest preparing now

for a course of action to take when that happens. The fever resolved

without treatment this time but that does not mean that it always will.

I experienced similar fevers early in my PSC experience. They

disappeared within about 12 hours and I felt back to normal a day

later. The problem was they kept occurring every 2 to 3 weeks. I was a

slow learner, but eventually it got through to me that medical

intervention was needed. My doctor prescribed oral antibiotics and

that treatment when fevers occurred usually gave me 6 to 18 months

fever free.

Tim R, ltx 1998, recurrent PSC 2002

> ... the fever simply disappeared and we have no idea why it

> came. Doc says considering he is alright now, LET IT GO !

>

[Guest guest]

Tim Romlein wrote:

>My doctor prescribed oral antibiotics and

>that treatment when fevers occurred usually gave me 6 to 18 months

>fever free.

>

>

I concur with what Tim says! He described almost exactly what my

experience has been. Not only did the fevers go away for an extended

period of time when I took the antibiotics, but I just felt better in

general than I had and my labs got much better. (MELD went from 19 down

to about 10).

athan

[Guest guest]

Leah,

Tim and athon describe my experiences, too, to some degree. I

never got 6-18 months without an infection, but I did feel better

and recover faster if I took antibiotics and took them right away. I

think the fact that I'd been having cholangitis attacks since 1994

and didn't get any antibiotics directly for them until 1998 had

something to do with how quickly my liver went downhill and how

infected it was all the time. (I wasn't in denial - I actively

started looking for a diagnosis at the end of '95, but it took me

three years to get one!) I ended up taking antibiotics constantly

before transplant. It seems to me (absolutely non-scientific opinion

here) that if you can slow the infections, you can at least slow the

symptoms of the rest of PSC.

HTH,

Deb in VA

PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, Partial Portal

Vein thrombosis 7/20/2005, 13 PTCs w/ drain placements/ replacements

9/2005-3/2006, 3 sinus surgeries 2006, Osteopenia 7/2006, Intestinal

varicies and bleeds starting 8/2006.