2007 CONFERENCE AGENDA, REGISTRATION FORM, AND VIRTUAL WALK INFO

[Guest guest]

Dear All,

I am very pleased to announce the agenda for our 2007 conference to be held in Denver, Colorado from April 13-15, 2007. We have been working closely with Dr. Everson at the University of Colorado Health Sciences Center to put together an exciting agenda that will be of interest to all PSCers and caregivers. You will notice the addition of more question and answer sessions, since this was a suggestion we received after the 2006 conference. We also have added a special pediatric session in the afternoon for all our parents of PSCers. Klug will again be the keynote speaker at our Saturday night banquet. There is the possibility that there may be a few minor changes in the agenda between now and April, but I'll keep you updated.

I'm also sending information about the 2007 Virtual Walk and the registration form for the walk as well. As many of you know, this is our one yearly fundraiser that was created by Lee Bria. Our first Virtual Walk in 2006 was a huge success, thanks to all of you! The money raised from the walk brings us closer to investing in more PSC research, so please consider joining us in this fun fundraiser. Even if you can't make it to the conference, you can join in the Virtual Walk.

Here's hoping that many of you will be able to come to the 2007 conference. I'm looking forward to hearing all the brilliant presentations, but especially to seeing all of you again to share our hopes, dreams, concerns, and fears. Feel free to write in with any questions you have. See you soon!!!

Together in the fight, whatever it takes!

Ricky

PSC 2003