Re: Re: osteoporosis-reply

[Guest guest]

As you know, PSC progresses at a different pace for each person. Over 70% of us with the disease have ulcerative colitis, a form of IBD. I was recently told that eczema and joint pain are also common. Your husband can get meds for the UC, I took sulfasalazine, and later asacol. Both of these made life much easier, I could make a trip to town without stopping in a bathroom 3 times. They also lessened the frequency of flares. Try and get your docs to establish a dx of UC so the meds can be prescribed.

The mental confusion, ascites, itching, fatigue and diabetes are also part of the PSC. Most of it can be treated, so insist that your docs get on top of all these symptoms. Sometimes it takes a lot of persistence. Some have taken copies of the peer reviewed studies, you can find many here and in other sites, to show the docs. For more info, just ask and you should receive some answers here.

After transplant many people go on to live long and fulfilling lives. I talked to a therapist today who knows a transplant patient who received his liver 19 years ago and is still doing well. A transplant is a miracle but it is trading one condition for others, but for me the trade is certainly worth it, I would do it again in a flash.

Keep in touch,

Take Care

MizKit

[Guest guest]

Wow, I feel like we have just been guessing all these symptoms were connected or that he just had to "put up with them" because the doctors never mention those things. He had rectal bleeding, had a colonoscopy that was "normal" so the searching for a cause of the bleeding ended there. He was given a cream and said to call if it got worse. So do we pursue with liver specialist or regular doc to get dx for UC? How is it dx? cmp12305@... wrote: As you know, PSC progresses at a different pace for each person. Over 70% of us with the disease have ulcerative colitis, a form of IBD. I was recently told that eczema and joint pain are also common. Your husband can get meds for the UC, I took sulfasalazine, and later asacol. Both of these made life much easier, I could make a trip to town without stopping in a bathroom 3 times. They also lessened the frequency of flares. Try and get your docs to establish a dx of UC so the meds can be prescribed. The mental confusion, ascites, itching, fatigue and diabetes are also part of the PSC. Most of it can be treated, so insist that your docs get on top of all these symptoms. Sometimes it takes a lot of persistence. Some have taken copies of the peer reviewed studies, you can find many here and in other sites, to show the docs. For more info, just ask

and you should receive some answers here. After transplant many people go on to live long and fulfilling lives. I talked to a therapist today who knows a transplant patient who received his liver 19 years ago and is still doing well. A transplant is a miracle but it is trading one condition for others, but for me the trade is certainly worth it, I would do it again in a flash. Keep in touch, Take Care MizKit

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