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I remember having no sense of taste after my surgery. It lasted for several months. I tried to focus on the texture, temp, and memory of foods . I found that cold fruit and yogurt with crunchy cereal was about all I could handle. Then I remembered about frozen cokes. That was a bit of wonderful! Even though I had to argue with people who said that I was diabetic and couldn't have it, I kept saying that any calorie was a good calorie at that point. I was right. It turned a corner for me. Also popsicles, custard(milk eggs and sugar, so easy to eat protein) and pasta with lemon and garlic were good for me.

I still have to force myself to eat chicken, it tastes like hospital food to me, no matter how I cook it. I used to look through the grocery store ads on Sunday to search for anything that might tempt me.

It will get better, hang in there.

Take Care

MizKit

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Since my surgery on 1/21, my eating habits have not returned

to " normal " or any semblance of normal for me. For example, today I

had 3 slices of turkey lunchmeat, a piece of cheese, an english

muffin, and a can of fruit cocktail.

Please believe me when I say this is FAR FAR less than I normally

eat. I'm losing about 3-4 pounds a week. I'm nauseous most of the

time, I have only thrown up once or twice. Phenergan doesn't get rid

of the nausea, it just makes my sleepy. I have no appetite. Just

thinking about food or eating makes me nauseous. I have no history

of anorexia or other food issues.

At what point does this become a problem? I'm still overweight by

BMI standards (but another 9#s of weight loss and I won't be anymore)

I don't have the joint pain that I normally seem to have when my LFTs

are way up, but the fatigue is pretty miserable.

This just isn't a good way to treat my body, but I'm tired of going

to see my GI doc just so he can tell me I am fine. Any ideas?

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,

Have they tried Zofran? When Noah was in last week they gave him

Zofran for the nausea and I know others on the list have used that. I

think it comes in IV form and also a dissolvable tablet. I would ask

for it as the sleepiness is not supposed to be as severe as phenergan.

Prayers,

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I had a prescription for zofran, but it requires extra paperwork from my doctor for my insurance to cover it. Walmart was going to charge me $1,000 for a month's worth. Maybe it's time to give my doc a call and see what he thinks.

On the up side....I did eat a semi normal breakfast this morning. :-) Dry cereal and a cup of yogurt....that's close enough to for me.

Happy Valentine's day to everyone!

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,

Yeah unfortunately, I don't think it is cheap. We were lucky that it

was just given inpatient in the IV line.

I think I would push for it though if it means keeping you from

weakening. I know Noah is frail enough without added weight loss from

nausea. I don't think his Medicaid would cover it at all. If I get

this new job hopefully...it would have an Rx plan that would should he

ever need it. I know in MO uses it with success.

I hope you are feeling better soon.

www.caringbrigde.org/visit/noahwmartens

www.luvzoenoahaidan.blogspot.com

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