Re: Losing the battle with PSC-Barb

[Guest guest]

I will add either “Good†or “Sad†to any people related articles or stories I might find. That way, it will be easier for folks to hit delete if they don’t want to read it.

Barb,

Thank you. I'm hoping that this will help eliminate the possibility of members reading things that they just can't handle.

I, too, believe that knowledge is power, but in this particular article the only knowledge provided is that PSC can lead to CC and that can lead to death. Anyone with PSC gets that information pretty quick after diagnosis, if not at the time of diagnosis. To drive that point home is overwhelming for most. I don't recommend sugar coating PSC, I think you already know that about me, but refraining from posting this specific type of article -- an obituary of a PSCer, if you will - may be worth consideration. (I'm thinking of the many parents of very young children on this site...they are keenly aware of the reality of PSC and all this knowledge will do is break their hearts.)

Respectfully concerned,

(MO)