Promoting Public Awareness of PF

[Guest guest]

Yesterday my daughter gave me a full discourse on how to get public attention to a dreadful medical situation. She is in the process of organizing a national group to gain broader recognition of the huge number of children and young adults who suffer the numerous and dreadful effects of Agent Orange in hopes that the Government will provide more monies for research and care.

Briefly, her husband died at age 55 from illnesses caused by exposure to Agent Orange in Vietnam. Her two daughters also are seriously effected, as well as her two grandchildren.

Because she has little money to do this, she has started out with YouTube and MySpace which are free. You can access these at www.dovv.net (Daughters of Vietnam Veterans) and www.neilmed.com/usa/index.phd.

Individuals are able to add their stories and post photos to each. Both sites get many hits.

It occured to me that this might be something we, as a group, could do. Hopefully, one of use has the computer skill and time to create the site and educate the rest of us on how to post our personal stories.

I lack the computer skills and lack the time as long as I continue manage my company. Hopefully that will end before I do and leave me time for things like this.

It will be interesting to read your responses. Jack79/IPF - UIP/dx06/05 Maine

[Guest guest]

Wonderful idea, Let us know what we can do... READY and WILLING. Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up." Yesterday my daughter gave me a full discourse on how to get public attention to a dreadful medical situation.  She is in the process of organizing a national group to gain broader recognition of the huge number of children and young adults who suffer the numerous and dreadful effects of Agent Orange in hopes that the Government will provide more monies for research and care. Briefly, her husband died at age 55 from illnesses caused by exposure to Agent Orange in Vietnam.  Her two daughters also are seriously effected, as well as her two grandchildren. Because she has little money to do this, she has started out with YouTube and MySpace which are free.  You can access these at www.dovv.net(Daughters of Vietnam Veterans) and www.neilmed.com/usa/index.phd. Individuals are able to add their stories and post photos to each.  Both sites get many hits. It occured to me that this might be something we, as a group, could do.  Hopefully, one of use has the computer skill and time to create the site and educate the rest of us on how to post our personal stories. I lack the computer skills and lack the time as long as I continue manage my company.  Hopefully that will end before I do and leave me time for things like this. It will be interesting to read your responses. Jack79/IPF - UIP/dx06/05 Maine