Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 A very warm welcome to you, Laila ----- Original Message ----- From: patlinda <patlinda@...> < onelist> Sent: Sunday, March 19, 2000 1:38 AM Subject: Re: [ ] Welcome llafary > From: patlinda <patlinda@...> > > Laila, > > I am glad you found our group and you are right, this is a nasty thing to > deal with alone. it helps to know that others suffer the same problems and > have the same ups and downs. If you want to have a pity party - there are > alays others ready to join you and it is a good excuse to eat chocolate. > The list is full of chocolate lovers and many of us are nutty about our > pets. When we share our joys, we get out minds off our problems so those > topics are related to RA, > > Many people on the list have both RA and Fibro. That is a tough combination > to deal with because it is sometimes hard to identify which is causing a > certain pain. Many of us have found that the fatigue associated with RA is > a difficult as the pain to deal with. In addition to the fatigue from the > disease, the medications you take may be increasing the fatigue. Hopefully, > if the diseases are under control, the fatigue will improve. That is what > happened for me - there is hope. > > Welcome to our group and we look forward to hearing from you. > > Pat > > At 06:39 PM 03/14/2000 -0800, you wrote: > >From: Laila Ravn LaFary <llafary@...> > > > >Hello again, > > > >I've read through the 40'ish mails that's filtered through the support list > >today, and inside of me, it's like a big boulder has fallen of me. > > > >I spend a very long time being tired, achy sore and batteling against > >something > >i didnt understand. I was close to losing my job (my husband was still in > >school and my job was our only income) and my RD only opped prednisone and > >MXT. > >When I was diagnosed, i also was diagnosed with Fibromyalgia at the same time, > >so have the pleasure of a double wammy. > > > >Please tell me some of you also have that, I have a hard time seeing what > >symptoms are RA and what is Fibromyalgia and I could really use to talk to > >someone about it. > > > >These days, i am off the prednisone (thank god) without any boneloss(thank god > >again), off prozac, and on trazodone instead, together with Celebrex, MXT and > >bunches of vitamins. My first x-rays have been compared recently with new > >ones, > >and shows no sign of joint deterioation, which is marvelous. > > > >But how to move on from here, one of the diseases are in controle, the > >other is > >slighlty, and i am still tired, achy and sore. > > > >So, thanks for being here, I didn't know how much I needed people like you > >around me. RA is a nasty thing to battle alone - I've realized that. > > > > > >Thanks, > > > > > >Laila > > > >--- a <aA@...> wrote: > > > Welcome Laila, > > > I'm glad you found us. When I found my first support group, I was shocked > > > at how many people had this disease. I thought I was one in a billion! We > > > have members ranging from newly diagnosed to 30 years with RA, and we've > > > tried every medicine available. Feel free to ask any questions. > > > > > > a > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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