Re: Gwynne

[Guest guest]

Gwynne, How good to hear from you. I'll be fine. had a good sweat today so I am sure it's on the run. I am having a gathering if anyone wants to come. The only plan is "SIT & GAB" well, there will be eating and sitting & gabbing & eating. That is about as imaginative as I can muster. lolSo far I know Beth, Jane and Eddie are pretty sure. Jon & Teri are a maybe. Leanne said she can't make it, but I am still hoping she can. Please give us an update on you.. Have you been traveling more? Oh I just know your so happy to breathe so nice and easy. Judy posted a couple weeks ago and it sounds like she is still having quite a time. Her lung birthday was Aug. 22. I do hope tour shakes have quieted. But in the big scheme of things that isn't a biggie.  I talked to Joyce a few weeks ago and she ask about you. She is still fighting like a trooper. and having a rough time. God Bless you.  Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up." Peggy,Here's hoping that your cold stays mild and goesaway quickly! Are you having a group visit, or is itjust Jane and Eddie? Lucky ducks.Shelia,You have my sincere condolences on the loss ofyour husband. What a difficult time for you - takecare of yourself. Z,How scary about Mike! You'll both be in my prayersand good wishes that it's not too serious.Hugs and blessings,Gwynnie 57 single-lung transplanted on 4-3-08at UTHSC - San Ft. Worth, TX

[Guest guest]

Gwynne

I figured, as post transplant, your list of meds and doctors would be

long.

I did not make it to Kimbell but figured I'd come back for it, for the

Zoo, for the Museum of Science and History. Plenty of excuses to come

back to Fort Worth.

We need to work on plans to meet Elisa. My schedule is most flexible and

I can probably do anything that fits for the two of you.

Hard to believe its been six months. Hard to believe it all period. Just

think in another six months you'll be a year old. Amazing how our

attitudes toward birthdays change or at least mine has. I use to hate

them, try to ignore them, not want to even admit to another year older.

Now, they are each so precious. I can't imagine how your next one will

feel.

>

> I'm so sorry to hear the sad news about . She

> was so good to keep us posted even during some of

> her worst times. She was an inspiration to many of us,

> certainly to me. She seemed to strike a balance between

> fighting her disease and accepting her condition, all the

> while caring about us. I admired that she always kept it real,

> and there was a sweetness about her that made it

> impossible not to love her. I knew this was coming, but

> I'm really sorry to lose her. God bless our newest angel.

>

> Brett,

> Hang in there. You are amazing and have a terrific attitude.

> That goes a LONG way. You're in my thoughts and prayers.

>

> ,

> How is the HIPS program working out? Oh, I forgot - seems

> like you might already be gone off to your island retreat,

> which sounds heavenly. Just yesterday I saw the photos from

> my daughter and son-in-law's honeymoon to Fiji. It's really

> a long trip to get from here to there, but MAN is it gorgeous!!

> They met quite a lot of folks from Australia at their resort,

> and were even in the wedding of one couple they met - fun!

> They thought the genuine kindness and gentleness of the

> Fijian people was very touching.

>

> Shelia,

> I was just thinking of you and hoping you're having a good

> day. Hopefully every day gets better over time. Grieving is

> so exhausting!

>

> To Kathy, Kerry, and all our brave ones waiting for the call,

> I pray it happens soon and that you have peace.

>

> Tina,

> I miss your posts. I'm sorry your current situation, not very

> surprisingly, is so difficult, but hopefully it will improve soon.

> It's so unfair to have to deal with all that mess and your

> illness too. I'm sending prayers for strength and courage.

>

> Judy,

> I'm hoping you're doing much better. How have the treatments

> been going and are you any stronger? How about the leg pain?

> I hope you're home. You're in my thoughts a lot.

>

> Bruce,

> I got on board too late to be included, but FYI, I'm on 16

> prescription medications and 4 OTCs. Some of those meds

> are taken in multiples several times a day, so it all adds up.

> In addition to my one bad lung with IPF, I have GERD,

> osteoporosis. chronic ear trouble for which I have tubes

> in both ears, a bum hand from a bad break several years ago,

> and year-round allergies. There are other lesser issues, but

> mostly stuff I can deal with. Post lung transplant patients are

> more susceptible to lymphoma and skin cancer, so I am

> religious about sunscreen. I have basically 9 main doctors,

> but the one I see by far the most often is my transplant

> pulmonologist. Some of the rest of them are once-a-year

> or only-in-emergency specialists. I have weekly labs now

> that I'm on Coumadin, and monthly transplant clinic visits

> at which they draw blood, do a chest x-ray, spirometry,

> and doctor follow-up.

> Did you ever get to the Kimbell or the zoo? If not, you'll

> just have to come back. Call me when you do!

> Can you believe it's been 6 months since my transplant?

>

> ,

> It's good to see you back and great news that you had such

> a good time. I figured you would!!

>

> Jane,

> I got rid of my treadmill when I got too sick for mine. But

> now I need to get another one, so I'll be shopping for that

> soon. I see a lot of folks at pulmonary rehab using the

> " arm cycles " . I'm following closely your updates on your

> trial. Hope you're having a good day.

>

> Sher and Peggy,

> Just thinking of both of you and hoping you're doing well.

> Sher, how's the pain? Peggy, you're completely rid of all

> sniffles, I trust. We're actually having porch weather here

> right now. Evenings are around 56 degrees and the daily

> highs are around 82 - really lovely. We need MORE of this

> in Texas, God bless our poor, hot little selves who get two

> weeks of winter as a rule.

>

> Hugs and blessings,

> Gwynne 57 Single-lung transplant for IPF on 4-3-08

> at UTHSC San Fort Worth, TX

>

[Guest guest]

I know exactly what you mean Bruce,(about b-days)I used to not care to much for them eitherbut now I know each day is precious and a birthday is 364 more precious days mistie and elizabeth surprised me today by showing up at my work with happy birthday balloons .... I was just happy to see them I don't care much for the balloonsGwynneI figured, as post transplant, your list of meds and doctors would belong.I did not make it to Kimbell but figured I'd come back for it, for theZoo, for the Museum of Science and History. Plenty of excuses to comeback to Fort Worth.We need to work on plans to meet Elisa. My schedule is most flexible andI can probably do anything that fits for the two of you.Hard to believe its been six months. Hard to believe it all period. Justthink in another six months you'll be a year old. Amazing how ourattitudes toward birthdays change or at least mine has. I use to hatethem, try to ignore them, not want to even admit to another year older.Now, they are each so precious. I can't imagine how your next one willfeel.>> I'm so sorry to hear the sad news about . She> was so good to keep us posted even during some of> her worst times. She was an inspiration to many of us,> certainly to me. She seemed to strike a balance between> fighting her disease and accepting her condition, all the> while caring about us. I admired that she always kept it real,> and there was a sweetness about her that made it> impossible not to love her. I knew this was coming, but> I'm really sorry to lose her. God bless our newest angel.>> Brett,> Hang in there. You are amazing and have a terrific attitude.> That goes a LONG way. You're in my thoughts and prayers.>> ,> How is the HIPS program working out? Oh, I forgot - seems> like you might already be gone off to your island retreat,> which sounds heavenly. Just yesterday I saw the photos from> my daughter and son-in-law's honeymoon to Fiji. It's really> a long trip to get from here to there, but MAN is it gorgeous!!> They met quite a lot of folks from Australia at their resort,> and were even in the wedding of one couple they met - fun!> They thought the genuine kindness and gentleness of the> Fijian people was very touching.>> Shelia,> I was just thinking of you and hoping you're having a good> day. Hopefully every day gets better over time. Grieving is> so exhausting!>> To Kathy, Kerry, and all our brave ones waiting for the call,> I pray it happens soon and that you have peace.>> Tina,> I miss your posts. I'm sorry your current situation, not very> surprisingly, is so difficult, but hopefully it will improve soon.> It's so unfair to have to deal with all that mess and your> illness too. I'm sending prayers for strength and courage.>> Judy,> I'm hoping you're doing much better. How have the treatments> been going and are you any stronger? How about the leg pain?> I hope you're home. You're in my thoughts a lot.>> Bruce,> I got on board too late to be included, but FYI, I'm on 16> prescription medications and 4 OTCs. Some of those meds> are taken in multiples several times a day, so it all adds up.> In addition to my one bad lung with IPF, I have GERD,> osteoporosis. chronic ear trouble for which I have tubes> in both ears, a bum hand from a bad break several years ago,> and year-round allergies. There are other lesser issues, but> mostly stuff I can deal with. Post lung transplant patients are> more susceptible to lymphoma and skin cancer, so I am> religious about sunscreen. I have basically 9 main doctors,> but the one I see by far the most often is my transplant> pulmonologist. Some of the rest of them are once-a-year> or only-in-emergency specialists. I have weekly labs now> that I'm on Coumadin, and monthly transplant clinic visits> at which they draw blood, do a chest x-ray, spirometry,> and doctor follow-up.> Did you ever get to the Kimbell or the zoo? If not, you'll> just have to come back. Call me when you do!> Can you believe it's been 6 months since my transplant?>> ,> It's good to see you back and great news that you had such> a good time. I figured you would!!>> Jane,> I got rid of my treadmill when I got too sick for mine. But> now I need to get another one, so I'll be shopping for that> soon. I see a lot of folks at pulmonary rehab using the> "arm cycles". I'm following closely your updates on your> trial. Hope you're having a good day.>> Sher and Peggy,> Just thinking of both of you and hoping you're doing well.> Sher, how's the pain? Peggy, you're completely rid of all> sniffles, I trust. We're actually having porch weather here> right now. Evenings are around 56 degrees and the daily> highs are around 82 - really lovely. We need MORE of this> in Texas, God bless our poor, hot little selves who get two> weeks of winter as a rule.>> Hugs and blessings,> Gwynne 57 Single-lung transplant for IPF on 4-3-08> at UTHSC San Fort Worth, TX> Brett Bowserbrett@...