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Re: Hi all - Irene

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Yes, so far just more Prednisone. And an ortho boot. He put NSAIDS

on my allergic reaction list so I can't take Vioxx and all the good

stuff that would really help. I'll start something else in

September that will just be yet another maintenance drug. My yearly

physical is Sept 4 - how fun is that? I hate the Prednisone but

that GOD it works for me. The NSAIDS caused edema and that's no

good.

Looks like you are doing pretty well after what you went through

earlier in the year. We were all pretty worried about you.

>

> Hi , I'm glad you're having a good day! Sorry to hear about

the gout and the kidneys. Are they putting you on any meds?

> On my left kidney....lower pole I have a cyst. Cysts on other

organs also.Irene

> PF 03/07 Raynaud's Disease 09/07

>

> Hi all

>

>

> Today is a good day. Just popping in again to say HI. I seem to be

> in and out these days a good bit. Hope you have all been feeling

> good. Sorry to read Judy is not feeling well.

>

> More fun stuff - my achilles tendonitis turned out to be gout.

> Funny. All this time I've been saying my kidneys are the only

things

> that work correctly - now we find out that isn't the case at all.

I

> can't processess protein correctly. Boy that sucks! With diabetes

> and Celiac disease good old grilled steak and a glass of wine was

> about the only thing I really had to look forward to. I got really

> contrary yesterday and ate a corn bread muffin. Boy that'll show

em.

>

> S, Lubbock, TX

> NSIP w/PF 12/2006 et al

>

>

>

>

>

__________________________________________________________________

> Ask a question on any topic and get answers from real people. Go

to Yahoo! Answers and share what you know at

http://ca.answers.yahoo.com

>

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Hi , with what happenned earlier this year, it's pretty much under control at the moment...At the moment I'm trying my best not to let it show, that I'm not doing so good! In July I developped tonsil infection, Cellulitis on IV antibiotics for 7 days. I was diagnosed with Stenosing Tendinitis, now in August developped severe abdominal pain due to the Anemia meds, dr's scared me to death by doing a blood test, to see if my organs were failing and told me about it while they were drawing up the blood...On Monday had Cortisone injections on both palms....if Cortisone injections don't help, will have to have surgery...A big possibility I have Sleep Apnea and waiting for an appointment...it will take a long time for an appointment because when they see my age, they won't consider it as important....even though I have PF and Asthma...it would have been different if I was twice the age lol!. I was referred to a dermatologist

because of new moles that have appeared in my back...a long time ago I removed the previous ones. I developped a skin tag (like a little cyst) were the sun doesn't shine...and waiting to hear if it can be removed....After my PFT's was seeing little stars and birdies and puked in the waiting room waiting to see my lung dr.

More meds were added to my list and more dr's...and I was really looking forward to reducing the list....more appointments, I cancelled a few for the month of August and September and moved everything to the month of October....

IrenePF 03/07 Raynaud's Disease 09/07

Hi all> > > Today is a good day. Just popping in again to say HI. I seem to be > in and out these days a good bit. Hope you have all been feeling > good. Sorry to read Judy is not feeling well. > > More fun stuff - my achilles tendonitis turned out to be gout. > Funny. All this time I've been saying my kidneys are the only things > that work correctly - now we find out that isn't the case at all. I > can't

processess protein correctly. Boy that sucks! With diabetes > and Celiac disease good old grilled steak and a glass of wine was > about the only thing I really had to look forward to. I got really > contrary yesterday and ate a corn bread muffin. Boy that'll show em.> > S, Lubbock, TX> NSIP w/PF 12/2006 et al> > > > > ____________ _________ _________ _________ _________ _________ _> Ask a question on any topic and get answers from real people. Go to Yahoo! Answers and share what you know at http://ca.answers. yahoo.com>

Now with a new friend-happy design! Try the new Yahoo! Canada Messenger

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