Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 hi peggy i am doing ok--using 4 liters on exertion, walking the dog, etc. had a flare up in the spring, transplant doc suggested listing, but increased prednisone to 40 and flare up went down, have been weaning pred down to 15. Just increased to 17.5 due to weird feelings. Think it may have been change in blood pressure meds. Blue Cross refused to pay for what i was taking, so changed to something else and weird symptoms started about the same time, so off of BP med for now--weird feelings went away. will see family doc sept 15th this has been one very hot and humid summer, hard to get motivated until last couple of weeks, spent a lot of time in my garden--don't have the energy for it that I used to have bending down is a problem--makes me cough, so if i plan ahead, i bring a stool into garden when i work can't drive long distances anymore--when the tires hit the side of the road, I woke up had a sleep study and nap study--no sleep apnea, waiting for follow-up to nap study Jerry is doing well--he's gaining weight, kidney stones are disolving, glad he changed docs noticed a lot of the same names on web site and a lot of new names hope every one is doing ok as for the new names, sorry to see them, but glad you found this support group Pink Joyce IPF 3/06 Pennslvania Quote Link to comment Share on other sites More sharing options...
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