Re: Hello everyone & PSC Conference

[Guest guest]

> I was thinking of going to the conference in Denver to see what other

> info I can find out and meet some of you.

Tammy - You will hear from many in this group what wonderful support

the entire group provides to each other. There are some incredibly

knowledgeable people in the group who provide great information to all

of us and are very responsive to questions.

My 16 year old son was diagnosed with PSC last February. I discovered

this group about 3 or 4 weeks before the PSC conference. I felt I was

taking a risk in traveling across the country to the conference, but

also thought it would be worthwhile (I'm a thrifty person, so the

expense was a big concern for me). TRULY, it was a wonderful

experience. To learn so much, so fast and to meet such a wonderful

group - yes, if at all possible, please come to Denver!

Joanne

, Ca; mom to , 16, UC / PSC 2-06; JRA 2-98

[Guest guest]

Thank You for your response Joanne.

I am trying to get my Mom to take the trip out with me.

I think it will be a good source of support and some very needed

information.

How is your son doing?

I am taking 3000 mg of URSO FORTE.

Please keep in touch.

Thanks again.

Tammy V

> > I was thinking of going to the conference in Denver to see what

other

> > info I can find out and meet some of you.

>

> Tammy - You will hear from many in this group what wonderful support

> the entire group provides to each other. There are some incredibly

> knowledgeable people in the group who provide great information to

all

> of us and are very responsive to questions.

>

> My 16 year old son was diagnosed with PSC last February. I

discovered

> this group about 3 or 4 weeks before the PSC conference. I felt I

was

> taking a risk in traveling across the country to the conference, but

> also thought it would be worthwhile (I'm a thrifty person, so the

> expense was a big concern for me). TRULY, it was a wonderful

> experience. To learn so much, so fast and to meet such a wonderful

> group - yes, if at all possible, please come to Denver!

>

> Joanne

> , Ca; mom to , 16, UC / PSC 2-06; JRA 2-98

>