diaper rash help

February 6, 2002

Hi all...

During my daughters last hospitalization, she had a very, very bad diaper

rash..literally whelps on her bottom. Cincinnati Children's pharm. sent

up what they call " magic butt cream " and it took care of it in less than a

week. I'm sure if your pharmacy or physician called they would be more than

happy to share the recipe...I know there is an 800 no, but of course I can't

find it..lol, the name of the hosp is Children's Hospital Medical Center..the

non-800 no is . Just ask for the pharmacy.

Hope this helps someone...

Manda mommy of Piper 8 mths w/cf

February 6, 2002

I have a 4 mth old daughter who has lots of diaper rash due to enzzymes,

dairrhea, and antibiotics. Someone gave me the recipe for homemade wipes

and they have helped alot to keep her butt from getting so red. Here is the

recipe:

Cut a roll of VIVA White paper towels in half.

In a rubbermaid container, mix:

2 cups water

1 Tbls Baby Oil

2 Tbls Baby gel

Add paper towels

Hope this helps the diaper rash.

H

Re: Vomiting, Vomiting, just go away vomiting

> ,

>

> Her doctors keep insisting that she doesn't have a dairy allergy as this

> would have shown up during the endoscope. I figure it can't hurt to have

> an allergist actually tell me this as well. Emma's hiney is regularly

> pretty sore. I figured that the poop of all CFers was probably pretty

> acidic or at least those with acid reflux and this was why we have to

> clean her up immediately before her hiney becomes inflamed. If I wait

> five minutes, it gets really red. I never thought about asking them

> about this. Just another reason to ask about the Pancreacarb. Thanks!

>

> Our thoughts are with you and , we are all hoping there was a lab

> testing error for the A1A deficiency test. I have never heard of this

> but it certainly didn't sound good. I hope the second test is negative.

>

> - mother of Emma 18 months w/cf and Isabelle 3 years wo/cf

>

> On Mon, 04 Feb 2002 15:29:22 +0000 Ware

> mamabear@...> writes:

> > ,

> >

> > What occurred to me before finishing reading your post was

> > allergies. I know

> > a mom whose kid does not have CF, but has severe food allergies, and

> > her

> > symptoms sound very similar to your daughter's. The way she refuses

> > milk and

> > Pediasure -- could she have a dairy allergy?

> >

> > I hope you and the doctors figure out what is going on. You sure

> > have been

> > through a lot trying to get her digestive symptoms under control. It

> > sounds

> > like you are doing everything you can.

> >

> > Also, we switched to Pancreacarb for , from Creon, and noticed

> > a huge

> > difference in his digestion and stools. It seemed to help a lot,

> > reduce gas

> > and bloating. Also, on Creon his poop smelled awful -- like vomit --

> > and

> > burned his little bottom immediately. With the Pancreacarb that has

> > completely gone away.

> >

> > *&~*&~*&~*&~*&~*&~*&~*&~*&~*&~&*~*&~*&~&*~*&~*&~&*

> >

> > mama to , 16 months old w CF and 3 years wo CF

> >

>

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

> PLEASE do not post religious emails to the list.

>

> -------------------------------------------

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

February 6, 2002

Another tip for diaper rash (or rather diaper ass, as my first child

inadvertanly dubbed it...)

If it looks like a burn, with skin peeling off and raw looking, ask

for a prescription for silvadene (the creme that they use for

burns) Not only does it work but it also keeps infection from

setting in. It seems to work well for enzyme butt syndrome.

Another option that worked evertime except for the burn type

rashes was a combo the pharmacist mixed (the first time, after

that we figured out it was much cheaper to mix it at home

ourselves) was zinc oxide, eucerine creme (the thick stuff, not the

lotion), nystatin, and hydrocortisone creme. Our CF clinic called

this Happy butt creme....

Of course, for uncomplicated yeast diaper rash, the most

convenient, readily available middle of then night without a doc

on call is lotrimin creme (yep, the stuff for feet). apply it under

zinc oxide or vaseline to keep it from coming off as fast.

there is always aquafor, the expensive med manufactured for

diaper rash. truthfully, all of the above worked the best for us,

though and the aquafor didn't work that great.

If you live in canada, for prevention, try zincofax extra strength.

We buy the stuff in cases when we are there in the summer, its

muchbetter than the zinc oxide you can buy in the states. there is

always bag balm, also, for prevention, if, that is, you can stand

the smell.

Take care and good luck

Jen, mommy of 7 munchkins been there and done that with

" diaper ass " lol (3 with CF)

> I have a 4 mth old daughter who has lots of diaper rash due to

enzzymes,

> dairrhea, and antibiotics. Someone gave me the recipe for

homemade wipes

> and they have helped alot to keep her butt from getting so red.

Here is the

> recipe:

> Cut a roll of VIVA White paper towels in half.

> In a rubbermaid container, mix:

> 2 cups water

> 1 Tbls Baby Oil

> 2 Tbls Baby gel

> Add paper towels

>

> Hope this helps the diaper rash.

> H

> Re: Vomiting, Vomiting, just go away

vomiting

>

> > ,

> >

> > Her doctors keep insisting that she doesn't have a dairy

allergy as this

> > would have shown up during the endoscope. I figure it can't

hurt to have

> > an allergist actually tell me this as well. Emma's hiney is

regularly

> > pretty sore. I figured that the poop of all CFers was probably

pretty

> > acidic or at least those with acid reflux and this was why we

have to

> > clean her up immediately before her hiney becomes

inflamed. If I wait

> > five minutes, it gets really red. I never thought about asking

them

> > about this. Just another reason to ask about the

Pancreacarb. Thanks!

> >

> > Our thoughts are with you and , we are all hoping there

was a lab

> > testing error for the A1A deficiency test. I have never heard of

this

> > but it certainly didn't sound good. I hope the second test is

negative.

> >

> > - mother of Emma 18 months w/cf and Isabelle 3

years wo/cf

> >

> > On Mon, 04 Feb 2002 15:29:22 +0000 Ware

> > writes:

> > > ,

> > >

> > > What occurred to me before finishing reading your post

was

> > > allergies. I know

> > > a mom whose kid does not have CF, but has severe food

allergies, and

> > > her

> > > symptoms sound very similar to your daughter's. The way

she refuses

> > > milk and

> > > Pediasure -- could she have a dairy allergy?

> > >

> > > I hope you and the doctors figure out what is going on. You

sure

> > > have been

> > > through a lot trying to get her digestive symptoms under

control. It

> > > sounds

> > > like you are doing everything you can.

> > >

> > > Also, we switched to Pancreacarb for , from Creon,

and noticed

> > > a huge

> > > difference in his digestion and stools. It seemed to help a

lot,

> > > reduce gas

> > > and bloating. Also, on Creon his poop smelled awful -- like

vomit --

> > > and

> > > burned his little bottom immediately. With the Pancreacarb

that has

> > > completely gone away.

> > >

*&~*&~*&~*&~*&~*&~*&~*&~*&~*&~&*~*&~*&~&*~*&~*&~&*

> > >

> > > mama to , 16 months old w CF and 3 years wo

CF

> > >

> >

__________________________________________________

______________

> > GET INTERNET ACCESS FROM JUNO!

> > Juno offers FREE or PREMIUM Internet access for less!

> > Join Juno today! For your FREE software, visit:

> > http://dl.www.juno.com/get/web/.

> >

> > PLEASE do not post religious emails to the list.

> >

> > -------------------------------------------

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

February 7, 2002

I've heard from a friend, but have never tried myself, that putting a layer

of Mylanta on the bottom and drying with a hair dryer on low (not too close

or you will burn them w/the dryer!) really helps clear up that super ouchy,

bright red, welty rash.

>

> Reply-To: cfparents

> Date: Thu, 07 Feb 2002 07:17:39 -0000

> To: cfparents

> Subject: Re: diaper rash help

>

> Another tip for diaper rash (or rather diaper ass, as my first child

> inadvertanly dubbed it...)

> If it looks like a burn, with skin peeling off and raw looking, ask

> for a prescription for silvadene (the creme that they use for

> burns) Not only does it work but it also keeps infection from

> setting in. It seems to work well for enzyme butt syndrome.

> Another option that worked evertime except for the burn type

> rashes was a combo the pharmacist mixed (the first time, after

> that we figured out it was much cheaper to mix it at home

> ourselves) was zinc oxide, eucerine creme (the thick stuff, not the

> lotion), nystatin, and hydrocortisone creme. Our CF clinic called

> this Happy butt creme....

> Of course, for uncomplicated yeast diaper rash, the most

> convenient, readily available middle of then night without a doc

> on call is lotrimin creme (yep, the stuff for feet). apply it under

> zinc oxide or vaseline to keep it from coming off as fast.

> there is always aquafor, the expensive med manufactured for

> diaper rash. truthfully, all of the above worked the best for us,

> though and the aquafor didn't work that great.

> If you live in canada, for prevention, try zincofax extra strength.

> We buy the stuff in cases when we are there in the summer, its

> muchbetter than the zinc oxide you can buy in the states. there is

> always bag balm, also, for prevention, if, that is, you can stand

> the smell.

> Take care and good luck

> Jen, mommy of 7 munchkins been there and done that with

> " diaper ass " lol (3 with CF)

>

>> I have a 4 mth old daughter who has lots of diaper rash due to

> enzzymes,

>> dairrhea, and antibiotics. Someone gave me the recipe for

> homemade wipes

>> and they have helped alot to keep her butt from getting so red.

> Here is the

>> recipe:

>> Cut a roll of VIVA White paper towels in half.

>> In a rubbermaid container, mix:

>> 2 cups water

>> 1 Tbls Baby Oil

>> 2 Tbls Baby gel

>> Add paper towels

>>

>> Hope this helps the diaper rash.

>> H

>> Re: Vomiting, Vomiting, just go away

> vomiting

>>

>>> ,

>>>

>>> Her doctors keep insisting that she doesn't have a dairy

> allergy as this

>>> would have shown up during the endoscope. I figure it can't

> hurt to have

>>> an allergist actually tell me this as well. Emma's hiney is

> regularly

>>> pretty sore. I figured that the poop of all CFers was probably

> pretty

>>> acidic or at least those with acid reflux and this was why we

> have to

>>> clean her up immediately before her hiney becomes

> inflamed. If I wait

>>> five minutes, it gets really red. I never thought about asking

> them

>>> about this. Just another reason to ask about the

> Pancreacarb. Thanks!

>>>

>>> Our thoughts are with you and , we are all hoping there

> was a lab

>>> testing error for the A1A deficiency test. I have never heard of

> this

>>> but it certainly didn't sound good. I hope the second test is

> negative.

>>>

>>> - mother of Emma 18 months w/cf and Isabelle 3

> years wo/cf

>>>

>>> On Mon, 04 Feb 2002 15:29:22 +0000 Ware

>>> writes:

>>>> ,

>>>>

>>>> What occurred to me before finishing reading your post

> was

>>>> allergies. I know

>>>> a mom whose kid does not have CF, but has severe food

> allergies, and

>>>> her

>>>> symptoms sound very similar to your daughter's. The way

> she refuses

>>>> milk and

>>>> Pediasure -- could she have a dairy allergy?

>>>>

>>>> I hope you and the doctors figure out what is going on. You

> sure

>>>> have been

>>>> through a lot trying to get her digestive symptoms under

> control. It

>>>> sounds

>>>> like you are doing everything you can.

>>>>

>>>> Also, we switched to Pancreacarb for , from Creon,

> and noticed

>>>> a huge

>>>> difference in his digestion and stools. It seemed to help a

> lot,

>>>> reduce gas

>>>> and bloating. Also, on Creon his poop smelled awful -- like

> vomit --

>>>> and

>>>> burned his little bottom immediately. With the Pancreacarb

> that has

>>>> completely gone away.

>>>>

> *&~*&~*&~*&~*&~*&~*&~*&~*&~*&~&*~*&~*&~&*~*&~*&~&*

>>>>

>>>> mama to , 16 months old w CF and 3 years wo

> CF

>>>>

>>>

> __________________________________________________

> ______________

>>> GET INTERNET ACCESS FROM JUNO!

>>> Juno offers FREE or PREMIUM Internet access for less!

>>> Join Juno today! For your FREE software, visit:

>>> http://dl.www.juno.com/get/web/.

>>>

>>> PLEASE do not post religious emails to the list.

>>>

>>> -------------------------------------------

>>>

>>> The opinions and information exchanged on this list should

>>> IN NO WAY

>>> be construed as medical advice.

>>>

>>> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

> ANY MEDICATIONS OR

>> TREATMENTS.

>>>

>>> --------------------------------------------------

>>>

February 7, 2002

When they have welts on their bottom, I believe they usually prescribe

NYSTATIN ointment. It is a prescription and is not available over the

counter. I called in a problem for Emma's hiney a few months back and

this is what the CF center prescribed so I think this is what you are

refering to. I don't know if it's prescribed only for specific

conditions such as maybe having a yeast problem, etc but I have had it

prescribed when Emma's been on antibiotics and her hiney is really raw.

I don't think zinc oxide is really good to use once welts appear. It's

really meant to create a barrier between their hiney and the water/pee

and is not necessarily meant for use for healing which I don't believe it

can. It's more of a protective approach to use before it gets to the

really bad stage with open sores/welts.

Hope this helps,

- mother of Emma 18 months w/cf and Isabelle wo/cf

On Wed, 6 Feb 2002 23:12:26 EST pipersmommy0612@... writes:

> Hi all...

>

> During my daughters last hospitalization, she had a very, very bad

> diaper

> rash..literally whelps on her bottom. Cincinnati Children's

> pharm. sent

> up what they call " magic butt cream " and it took care of it in less

> than a

> week. I'm sure if your pharmacy or physician called they would be

> more than

> happy to share the recipe...I know there is an 800 no, but of course

> I can't

> find it..lol, the name of the hosp is Children's Hospital Medical

> Center..the

> non-800 no is . Just ask for the pharmacy.

>

> Hope this helps someone...

>

> Manda mommy of Piper 8 mths w/cf

>

February 7, 2002

I am usually a lurker, but thought I would throw out my experience.

My hospital too has a diaper rash cream like the " magic butt crème " and

I had to get it locally as it was the only thing that worked on my

daughter's bottom. She has short gut as well so I know of the whelps and

bleeding from diapers no matter how many times you change them.

Anyway, when I called to get the ingredients you wouldn't believe what's

in it. Nystatin powder & cream, zinc oxide, vitamin A&D ointment and

dibucaine. So they include something for the yeast or other topical

fungus, zinc oxide as a drying agent, vitamin A&D ointment for a barrier

and the dibucaine I assume for pain relief.

If you can get the Nystatin, you can make a cream yourself with over the

counter baby products (leaving off the pain medication - though I

personally think it's great)

Just my thoughts

Mommy to Chalee will be one year old next week, with cf and short gut.

Re: diaper rash help